Forum Discussion

Flaneuse's avatar
Flaneuse
Member
8 years ago

A tip to avoid pain during observations during chemo administration

IF YOU'RE NEW TO CHEMO, WATCH OUT FOR THIS.

A few weeks ago, during my chemo infusion, a "pool" nurse without chemo experience came and did my obs half-way through. It hurt like hell. Now, I've always had a very high pain threshold, and this wasn't 10 on the scale; but it hurt a lot: at the cannula site and a sliding ache all the way up the vein it was plugged into. I was massaging the arm to soothe it. I told her it really hurt and she said, "It's probably the pressure."

Later ,I told the real chemo nurse. She said, "Oh, I always pause the chemo when I do the obs during it." I had never noticed that they did that. Today, a nursing student came to do the half-way obs and he made no move to pause the chemo. I said, "You ARE going to pause the chemo, aren't you?" He looked mystified. I said, "If you don't, it will hurt me a lot." He said he's not allowed to stop chemo and went over to a senior chemo nurse. I heard her ask, "Who wants to stop it?" He gestured at me. She came flying over, "Are you okay? Are you having a reaction? Why do you want to stop it?" I said, "I don't want to stop it. I just want it paused while he does the obs or it hurts a lot." She said, "Of course." And paused it. After a while she came back and restarted it when he had finished the obs. 

I'm stunned that they don't train students to go and get a chemo nurse BEFORE they're ready to start the obs. It should NOT be up to the patient to manage this: to alert inexperienced people to this. I only learned the hard way, by suffering the first time, and then having to tell the nurse and thus learn what should be done. 

14 Replies

  • I was told that it was just anxiety the first time I went in for chemo. Hours of pain and tears.  Turned out that the port was probably not needled properly and nothing was going into the vein but into the flesh.  Luckily my husband noticed the swelling before they connected the chemo!  So much for "just anxiety".
  • @Zoffiel  @kmakm yes. A friend said this afternoon that if I'd made a big fuss or cried or something, they would have marked my file "irrational anxiety" or some such.