Forum Discussion
A little hurdle
Morning ladies
It's been a rough week. Started great with a chat to the plastic surgeon about my reconstruction and no worries about doing this after radiation. Then chemo, but anaemic so also followed up the next day with a blood transfusion. I also had this pesky little lesion growing on my Left breast (mastectomy side) which appeared after my first chemo and initially was put down to a skin reaction, then some dodgy post op skin with poor blood supply but the sucker started to grow. So Thursday brings a biopsy and still hopeful words from my surgeon.
Last night though, my surgeon is in my living room telling me the lesion is cancerous and seems to be the same type as that taken out. Why it is growing while I am having chemo we do not know - it could mean chemo is not working and cancer has also spread elsewhere. So today I am off to Peter Mac for a PET scan to see if it is showing signs of being anywhere else.
I am sitting here, not having slept more than about an hour all night, waiting for them to phone me with a time for the scan.
There are too many ifs, buts and maybes dependent upon today's results (God I hope they can fit me in today - waiting the weekend would be torture) but at the very least it is more surgery and a likely change to my treatment. Radiation is a definite now and there are all sorts of chemo options.
I feel like I've been flattened by a truck - and the taxotere hasn't even hit me yet - that pleasure awaits me this weekend. For the first time in this "journey" (a word I have been reluctant to use) I am really frightened but I am trying to stay focused on one step at a time and not let myself wander off too much into the what ifs.
Please say a little prayer if you do or if you have any spare send a little positive energy my way today - every little bit helps.
Amanda xx
38 Replies
I will get onto the pack thanks Amy. We are shattered but trying to be a little normal for the kids. I love my husband and my children so much and I am going to put them through so much pain and leave them without their mother - that pains me more than the thought of what is ahead for me. It's just so bloody unfair... I agree with getting help and "they" are sorting that out. We have big decisions to make. None of our family live here, my husband has a very busy job - we have three young children. We need to take it a step at a time and try to live life to the fullest which I am struggling to contemplate this morning.
The sky is blue and the sun is out however so I am going to distract myself with my garden for just a little while.
Amanda x
Hi Amanda, I have only just seen your blog. So shocked to hear your news. I am sending all my positive vibes to you. You are such a wonderful and beautiful person who has helped so many others. This disease is such a b..........It is always lingering. Each of us would think that whilst on treatment it is held at bay. No we can't have that luxury. I told my Medical Oncologist yesterday that I would never have chemo again. He said never say never. I told him that I would need a lot of convincing and is he the man to do it? After reading your story, I am staying with my gut feeling. We are all guinea pigs as there is such a diverse range of bc. It is so out of control. I am saying a prayer for you Amanda. I know with your strength you will get through this hurdle. On the form for my next lot of scans my surgeon has mentioned metatastic bc. It scares me to bits. My scans before chemo were clear as well so let's see what the next ones bring. None of us can let our guard down - not for a minute. I hope from all the comments you feel the love that we are all sending to you - you are so special. XLeonie
I have just jumped on and read your update Amanda and my tears are streaming down.I can't believe it.What a hard weekend for you and your family. Just know that we are all thinking about you and praying for you tonight.
luv Tonya xx
I have just jumped on and read your update Amanda and my tears are streaming down.I can't believe it.What a hard weekend for you and your family. Just know that we are all thinking about you and praying for you tonight.
luv Tonya xx
Oh Amanda!!
I am so very sorry & shocked at this news. Cyber Hugs & lots of positive vibes headed your way as you and your family deal with this latest hurdle and your medical team come up with a new strategy to fight this disease...don't give up - we are all thinking of you and keeping you in our prayers....
Cheryl xxx
Aw, Amanda -- so not the news you wanted. I'm sure you're all shell-shocked but just remember you still have good and positive times ahead of you. Sending all my love and best wishes.
Oh Amanda I'm so sorry! You have been such a wonerful source of strength and advice to so many of us here, now I hope we can do the same for you. Know that I am here for you anytime and that you are in my thoughts. I don't know what else to say but I am sending you all the love and strength I have to help you through. Stay strong beautiful lady.
Cath xxxx
Oh Amanda I'm so sorry! You have been such a wonerful source of strength and advice to so many of us here, now I hope we can do the same for you. Know that I am here for you anytime and that you are in my thoughts. I don't know what else to say but I am sending you all the love and strength I have to help you through. Stay strong beautiful lady.
Cath xxxx
No Amanda I can't believe it - just so unfair makes me upset and angry all at once.
I have been thinking about you all day - will continue to pray for you and your family as you face this news.
It sounds like your surgeon is in your corner so will trust the team will work with you the best steps forward with a changed treatment plan.
We are all here for you when you need to download etc. As hard as it is try to take one day at a time.
Sending lots of love and cyber hugs to you beautiful lady. xxxxxxx
Thank you all. Unfortunately it is bad news for me - no other way to coat it. I have secondaries on my lungs, a node in my neck also. Game changing in a big way.
We are shell shocked. I had clear scans before chemo so this has grown while I have been on it. Chemo is not killing the cancer. Now we just have to hope to control the cancer and stop it spreading and learn to live with the disease og term.
To say I don't know what to do with myself is an understatement.
Thank you again for your support.
Amanda xx
