Forum Discussion

Annedipa's avatar
Annedipa
Member
11 years ago

hello

hello, I have been reading the online posts for a few weeks now but this is my first blog post. I was diagnosed with stage 2b triple negative bc on 18th September. up to the point of actually getting biopsy results I was sure it was all a mistake. lost my sister last year to secondary bc, and an aunt and cousins some years back. I think I might be a little less scared if there was a survivor amongst them but I guess that will need to be me, or so the plan goes anyway im currently having neoadjuvant chemotherapy. first cycle I felt really sick for more than a week. second round not quite as nauseous but dizzy, which didnt happen first time. feels a bit strange having the chemo first when most seem to have had ops first but im told its far more common than it used to be. I've been finding the information in this network to be very helpful and inspirational when im having some down days. Anne
triple-negative-breast-cancer

4 Replies

Sort By
  • Annedipa's avatar
    Annedipa
    Member
    11 years ago
    hi Julia, yes I got a referral today for genetic testing. since I still have a long way to go with chemo my oncologist said we have plenty of time. I think it is important for my other sister and nieces to know and also my boys since they can pass the gene on. Anne
  • Annedipa's avatar
    Annedipa
    Member
    11 years ago
    hi Michelle, I had my third cycle of AC today, on 3 weekly's for 4 cycles. then I go weekly for another 12 weeks with Placitaxel and carboplatin. I drink green tea but hadnt thought to put ginger in it. I will give it a try, thank you Anne
  • Julia44's avatar
    Julia44
    Member
    11 years ago

    Hi Annedipa,

    I am wondering with BC in your family if you will be having the genetic testing?

    All the best,

    Julia

  • Michelle_R's avatar
    Michelle_R
    Member
    11 years ago

    It sounds as though you have caught your TNBC early and your team is hitting it hard straight away.  I am so sorry you lost your sister and other family to bc, but every case is different, and that doesn't mean that things will be the same for you at all.  Chemo isn't easy but you can do it, and if it is making you feel sick, then it is making your cancer feel sicker!  Are you having weekly chemo?  There is bound to be someone here who was on the same program, so keep in touch with how you are going.

    I am/was also TNBC - there is a group here you can join and read other stories which can be helpful when you have the same type of diagnosis.  I had 12 weeks of chemo, and found that drinking green tea with fresh ginger slices in it really prevented nausea, especially in the morning first thing. The tea shops have a brand called Sencha which isn't bitter at all - an arrowroot biscuit also helps along with the tea! (I was not a tea drinker before).

    I had surgery first, but lots of people have chemo first these days - it shrinks the tumour and makes surgery simpler for one thing.  Remember, there are lots of pink sisters here for you, so post whenever you need to talk or vent or get a hug.  Just take things one day at a time - you will get through this.

    Big hug, Michelle xx