My First Post

lisa256
lisa256 Member Posts: 44
edited October 2016 in Newly diagnosed

Hello

I am new to this site.

I was officially diagnosed with breast cancer on the 10/12/2013 and what a rollercoaster ride it has been since then, not only for me but for my friends and family also.

I am having 4 lots of AC chemo and then 12 lots of taxol. Hopefully after that, the cancer lump will have shrunk and then I will have a lumpectomy and then radiation. I had my first chemo treatment on the 13th December and my next will be on the 27th December. The first few days after my first treatment I felt very nauseous, light headed and out of it. Since then, I have just been feeling very, very lethargic. Took a short walk the other day and it felt like I had walked 50km and was training for oxfam again. It has been a whirlwind of blood tests, ct scans, chemo, mammograms, specialist appointments, medication and needles, needles, needles. My emotions are up then down. I'm trying to eat healthy and I miss my daily chocolate indulges. And on top of all that, it's Christmas. Thank goodness I have such great support !!!

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Comments

  • Merlins mum
    Merlins mum Member Posts: 443
    edited March 2015
    Yes chemo hits the energy levels big time. Hope you have something to manage the nausea. My advice is also to eat healthy but I also allow myself a treat each day. Hey. It's a hard enough road without chocolate! Don't fret the emotional thing. It just happens but all this will pass in time.
    Take care

    Julie.
  • Hazel M
    Hazel M Member Posts: 708
    edited March 2015

    Welcome to the breast cancer network, you will find a lot of comfort from us ladies. Chemo does make you really tired and lethargic, so rest when you need to. I hope they gave you something to help with nausea. You will find yourself very emotional at times, let it all out when your feeling down, we are always hear if you need reassurance. Hope you are well enough to enjoy Xmas Day and I wish you all the best for 2014,

    Hazel xx

  • lisa256
    lisa256 Member Posts: 44
    edited March 2015

    Hello Mich

    I live in Melbourne. I haven't had time to look up any face to face support groups in my area yet but I will.

    I have already ordered My Journey Kit but I think I probably won't get it until January now because they will close over Christmas.

    The 256 does stand for my birthdate. It is also my aunties birthday and my grandmothers birthday on my mothers side. How's that. And my mum's birthday is the 12th of the 12th and she is the twelth child born.

    Thanks for your support and kind words. 

    I hope you have a lovely Chrissy too !!

    Lisa xxx

  • Robyn W
    Robyn W Member Posts: 1,932
    edited March 2015

    Welcome from me too:)I found the tiredness the worst with the chemo.I had my last chemo last Monday,and if I could tell you one thing that helped me the most,it is that walking every day is so important.My oncologist kept on telling me this,and I walked every single day.Even on those few days when your legs feel like lead,just do a bit.It actually alleviates the fatigue.Your emotions will continue to be all over the place while you are on chemo.I am sure it's a combination of what you are dealing with,and the chemo itself.When you feel like crying,just do it.Dont try to make sense of it.As Deanne said,eating what you feel like,and when you feel like it,really does help with that nauseous feeling that you can get sometimes.My worst days after chemo were days 5 to about 10,then things started to improve again.Its great to have good support Lisa,and important to lean on these people and take time when you need it,just for YOU:) I hope you have a peaceful Christmas,and you will be through chemo and on to the next step before you know it! Sending a big hug. xoxox Robyn

  • Robyn W
    Robyn W Member Posts: 1,932
    edited March 2015

    Welcome from me too:)I found the tiredness the worst with the chemo.I had my last chemo last Monday,and if I could tell you one thing that helped me the most,it is that walking every day is so important.My oncologist kept on telling me this,and I walked every single day.Even on those few days when your legs feel like lead,just do a bit.It actually alleviates the fatigue.Your emotions will continue to be all over the place while you are on chemo.I am sure it's a combination of what you are dealing with,and the chemo itself.When you feel like crying,just do it.Dont try to make sense of it.As Deanne said,eating what you feel like,and when you feel like it,really does help with that nauseous feeling that you can get sometimes.My worst days after chemo were days 5 to about 10,then things started to improve again.Its great to have good support Lisa,and important to lean on these people and take time when you need it,just for YOU:) I hope you have a peaceful Christmas,and you will be through chemo and on to the next step before you know it! Sending a big hug. xoxox Robyn

  • lisa256
    lisa256 Member Posts: 44
    edited March 2015
    Hello Julie
    Thanks for your advice.
    I do have some tablets for the nausea and I will allow myself my treats from now on.
    Have a good Christmas !!
    Lisa
  • lisa256
    lisa256 Member Posts: 44
    edited March 2015
    Hello Deanne
    Thankyou for your insight and good advice.
    That will be great if the taxol has less nausea side effects.
    I will keep up the walking. I have to. My dog sits there everyday with her big sad eyes until I take her.
    Hope you have a good Chrissy !!
    Lisa xxx
  • lisa256
    lisa256 Member Posts: 44
    edited March 2015
    Sorry Mich
    This was meant for Julie. I will get the hang of this!!
    Lisa
  • lisa256
    lisa256 Member Posts: 44
    edited March 2015
    Hello Julie
    Thanks for the good advice.
    I do have tablets for the nausea and I will allow myself my treats from now on.
    Have a good Christmas !!
    Lisa
  • lisa256
    lisa256 Member Posts: 44
    edited March 2015
    Hello Hazel
    Thankyou for your warm welcome.
    I do have tablets for the nausea.
    The first week after chemo I couldn't stomach much but now I have my full appetite back so I am going to make the most of Christmas Day.
    I hope you have a lovely Christmas.
    Lisa xxx
  • lisa256
    lisa256 Member Posts: 44
    edited March 2015
    Hello Adean
    I am not getting a xmas present this year because my husband let me go to Amsterdam, Paris and Italy for a month in May with my cousin while he stayed home and looked after the kids.
    I don't live in those areas of Melbourne but thankyou.
    Hope you have a good Christmas.
    Lisa
  • Mich x
    Mich x Member Posts: 1,530
    edited March 2015

    Obviously a great month and a great year for us, only special people were born then hee hee hahahah.  I am the 24th Feb.

    Do you have kids and grandkids yet Lisa?   I have 2 kids both married and 3 grandees so that is what my Christmas is all about this year.

    It is true what they say in that you will find the strength hun to get yourself through all this.  Just hold on tight for the ride. 

    I remember that My Journey Kit became my lifeline.  I took my diary everywhere with me, I wrote about all my appts in there, my diagnosis, my feelings and so much more.  I still refer to it 2 years on.  BCNA has so much interesting and helpful information available to you.  I am glad you have found them and found us.

    Enjoy the silly season and remember we are here for you. 

    Lots of love always, Mich xoxoxoxo

  • lisa256
    lisa256 Member Posts: 44
    edited March 2015

    Hello Robyn

    I bet you are glad that the Chemo is over. But as the Carpenters song sort of goes 'I've only just begun ...........' I will try to walk everyday. Thanks for all of your useful advice and support !!

    Have a great Christmas.

    Lisa xxx

  • Janey235
    Janey235 Member Posts: 1,206
    edited March 2015
    I've been absent from this network for the past week so just catching up. I'm sending you a big welcome too. The ladies that have replied already have given you good advice so I won't go over that again. Just wanted to let you know that we are here for you anytime you want to vent, put down your thoughts or just let us know what's going on with you. This network of wonderful ladies has been my savour this last year and I'm sure you've come to the right place.

    I am one year now past my diagnosis date and I'm doing fine. It's a hard journey and a roller coaster of emotions but I'm here to tell you it's doable. And this year seems to have flown by for me. Just some reassuring words for you to hear.

    Where abouts in Melbourne are you. I'm setting up a face to face group with some of our Melbourne ladies in the new year and will let you know when this is up and running. We will be meeting in the City area once a month if you're interested.

    Sending you hugs Lisa.

    Love Janey xxx
  • lisa256
    lisa256 Member Posts: 44
    edited March 2015

    Hello Janey

    Thanks for your warm welcome and reassuring words.

    I'm really glad to hear you are doing so well 12 months on.

    I live in the outer eastern suburbs of Melbourne. A bit of a hike but please keep me posted.

    Lisa xxx