Keep calm and carry on

Smiley Ky
Smiley Ky Member Posts: 32 ✭
edited December 2013 in Day to day

It's been a while since my last blog post. Honestly nothing too much has been happening.

I was taking the experimental drug I mentioned in my last post but after a bone scan it showed it had not been working and two new cancers have popped up in my femur and rib bones. 

How did I feel about that? Not surprised; I mean I didn't want to hear I have new cancers but since I began the trial drugs I did not feel any change within myself like the side effects (nausea, diarrhea, mouth ulcers, etc), none what so ever so I assumed it wasn't working as it grew nearer to my bone scan and they cannot up the dosage of the drugs. In fact no one has had a bigger dosage than me.

I have now begun to take Everlomis. It's been a couple of weeks now and my belly gets upset from time to time and my liver in slightly imflamed but apart from that I feel fine.

I also found out my tendons in my hips are weak from chemo and radiotherapy. I've had a hard time trying to exercise and being menopausal I have no motivation LOL. I can't believe the changes in your body when you are in menopause! I'm definately not the same person as I was physically. I can't even do my Pilate moves anymore, I get craps, I have no strength and when I sweat I have a hot flush at the same time which makes it super worse and uncomfortable! I'm still learning how to take care of myself.

 

Comments

  • Deanne
    Deanne Member Posts: 2,163 ✭
    edited March 2015
    I like how you put that you are still learning how to take care of yourself. It is like that with all the effects of the drugs and treatment on our poor bodies. Those hot flushes during exercise certainly add to the challenge. I am doing some exercise in the pool now. It is gentler on the joints and easier to keep cool.

    Hope the new drug has a positive effect for you. Take care. Deanne xxx
  • Janey235
    Janey235 Member Posts: 1,206 ✭
    edited March 2015
    There are times when I have felt that life is really unfair and this is definitely one of them. When I hear of young people like you going through this bugger of a disease. AND Being thrown into menopause, geesh! All I can say is hang in there. We are hear to listen :)
    Love and hugs
    Janey xxx

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