Dizzy turns - BC Trip Negative diagnosed July 2019

Options
TillyBilly
TillyBilly Member Posts: 37
Hi ladies! I thought I’d reach out & ask if anyone is going through same thing as me! As I don’t feel I’m getting anywhere at the Doctors even though tests done, bloods, heart monitor & all come back ok!?!?!?  

So I had a bad dizzy turn back in 2021 at work & ambulance called. Nothing for 2 years then from Jan ‘23 to now I have had 7 more. Some worse than others. Going dizzy, vomiting, some taking days to get over. Normally I feel it come on the dizziness & nauseous but one of my recent ones, there was no signs at all & I collapsed at work as I walked down the hallway momentarily blacked out, then started to vomit as usual, this one actually scared me as no sign or symptoms at all. Obviously went to Doctors again, more blood tests, heart monitor- all clear! Still Left with no answers!!!

Doctor ruled out vertigo early on, he mentioned vestibular migraines to which he put me on medication as I was getting headaches through the night which I was weaned off! But I have no headache when the dizzy turns have happened. Now i feel in limbo as I don’t know why I’m having these dizzy turns & left with no answers! 

So wondering if anyone is going through same! Just hard not knowing & when next ones going to happen & with nothing from Doctors 🙏 ☺️
«1

Comments

  • Blossom1961
    Blossom1961 Member Posts: 2,430
    Options
    Sounds like my vertigo. I would ask for some tablets just to see if it makes a difference. Sometimes tests don't pick up the obvious. Also, I get migraines and find if I have electrolytes everyday then it stops these from occurring. I used to just make sure I had plenty of water but now have to have the electrolytes as well. These things are such a hassle to navigate. Sending big hugs
  • TillyBilly
    TillyBilly Member Posts: 37
    Options
    thanks for your response. Vertigo was ruled out. I’ve not been having migraines. But he mentioned vestibular ones as I was getting headaches through night at sleep. Which I also haven’t been getting for a while now but still having the dizzy turns. 😊
  • iserbrown
    iserbrown Member Posts: 5,606
    Options
    I had dizzy turns for the first couple of years.  Dizzy and nausea.  I was prescribed Stemetil.  
    Eventually it stopped. 
    No real reason given.  For me, I put it down to the stress and fatigue of diagnosis and treatment. 
    Fatigue was the hardest as I found I had to give in to it!
    Hope yours settles soon
    Take care

    https://www.bcna.org.au/resource-hub/articles/fatigue/

  • TillyBilly
    TillyBilly Member Posts: 37
    Options
    Thank you. Will have to look into that. 🤞 it’s just so worrying ☺️
  • Locksley
    Locksley Member Posts: 953
    Options
    @TillyBilly can you ask your doctor for a referral for a ct brain scan.
  • TillyBilly
    TillyBilly Member Posts: 37
    Options
    Thanks. I did have a scan beginning of 2023, I pushed for it. Came back clear! Just frustrating & scary it keeps happening & just comes out of no where! Just wondering if anyone going through same or searching for help! ☺️
  • cranky_granny
    cranky_granny Member Posts: 796
    Options
    Hi @TillyBilly thats got to be annoying. I remember my husband had similar symptoms he was eventually diagnosed with Ménière’s disease he lived on valium and had to take all added salt out of his diet. What finally twigged his doctor to his diagnosis was his hearing deteriorated hope its not that for you. The other thing they ruled out first vertigo then next was labyrinthitis eventually they found the reason. 
    its only a suggestion but worth looking into. 
  • TillyBilly
    TillyBilly Member Posts: 37
    Options
    Thanks, I looked up the Ménière’s disease from your comment. My hearings fine, I literally just had that tested when I had my eye test. I’ll look at labyrinthitis. Any suggestion is a good one atm. ☺️
  • iserbrown
    iserbrown Member Posts: 5,606
    Options
    When these dizzy spells start do you have an underlying reason, like a cold or ear infection?



  • TillyBilly
    TillyBilly Member Posts: 37
    Options
    Hi, no neither. So nothing that we can say could be a trigger.
  • cranky_granny
    cranky_granny Member Posts: 796
    Options
    @TillyBilly I Forgot to mention that the ent specialist that hubby went to  did a special test which they spun him  around and recorded it somehow, something to do with the overproduction of the fluid in the inner ear on one side. Before he got up of a morning he would have to balance the fluid out by gently moving his head from one side to the other. He said it helped. He couldn’t walk in a straight line. 
  • TillyBilly
    TillyBilly Member Posts: 37
    Options
    One of the times I was admitted to hospital they gave me an exercise todo, might be similar thing of balancing fluid to do with inner ear & crystals! But that seems to relate to vertigo which my Doctor ruled out! 
    Thanks ☺️ 
  • iserbrown
    iserbrown Member Posts: 5,606
    Options
    Labyrinthitis suggests an underlying infection. 
    https://www.healthdirect.gov.au/amp/article/labyrinthitis

    We all react differently medically, some sail through treatment with minimal effect others suffer lots of side effects.

    Perhaps going back to your GP to say it's causing you anxiety

    Best wishes 
    Take care
  • AllyJay
    AllyJay Member Posts: 955
    Options
    Have they checked you for Autonomic Dysfunction? I was diagnosed with this and had quite a few symptoms as you mention. My worst dizziness occurs if I've been, say, leaning forward and down to get something from a lower kitchen cupboard, and then having done that, stand up straight. I was also checked out for vestibular and other inner ear problems, and they were ruled out. I hope they get to the bottom of this for you.
  • arpie
    arpie Member Posts: 7,803
    Options
    Extreme dehydration can cause all those symptoms - the dizziness, vomiting, passing out .... it happened to me when I'd over-exerted myself freshwater fishing (in waders) & had not been drinking any water ...
    I also went deathly pale and sweated profusely (which sounds weird, when you are dehydrated!) 
    It happened to me again last year after 5 hrs in the kayak  ....  My buddy got me a watered down bottle of Gatorade & it helped me recover in an hour or 2 - back fishing again!   ;)