Newly diagnosed with NST HER2+

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Aliburns79
Aliburns79 Member Posts: 1 ✭
in Newly diagnosed
44 years old  and never expected this. My GP initially thought it was an adenocarcinoma but sent me off for a mamo and ultrasound straight away. Both showed changes with the ultrasound showing lobular cancer but on biopsy it has come back as no special type. I have an appt with Dr Rippy next week to discuss options. Hardest part so far has been telling my parents and my adult (21 yrs and 18yrs) children. 

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  • arpie
    arpie Member Posts: 7,611 ✭
    edited October 2023
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    So sorry to see you here @Aliburns79 - joining the club no one wants to join  :(   It is a real emotional roller coaster & you'll be experiencing everything from sadness thru to anger ..... 

    Interesting that you've been shown as 'No Special Type', also known as NST (I wasn't really aware of the term before yesterday!) ... @GorgyS just posted yesterday with the same diagnosis .... so you may find some info here, helpful xx
    https://onlinenetwork.bcna.org.au/discussion/25959/invasive-breast-cancer-of-no-special-type#latest

    Feel free to check out this thread too, about the forum in general, what to take to hospital with you & even 'self assessment' tick sheets ....  make sure you take a trusted buddy with you to all your 'early' appointments, as an extra set of ears & support, as it is easy to miss stuff .... and consider recording the appointments too, so you can go over them later, in the peace & quiet of your own home xx 
    https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest

    In the mean time, keep yourself as busy as you can, doing things you love (I just went fishing every day!!!)  As your brain will want to go off on weird tangents xx

    All the best for your appt next week .... 
  • Blossom1961
    Blossom1961 Member Posts: 2,381 ✭
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    @Aliburns79
    Mine was NST and Her2+ve and ER/PR-ve. Once your Dr has a plan let us know how you go and post any questions you may have. It is easier once you know the next steps. Not knowing sends our minds into overdrive. Try to keep busy while you wait. Maybe get an early start on preparing and freezing meals for when you don't feel like cooking. 
  • Julez1958
    Julez1958 Member Posts: 1,135 ✭
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    Hi @Aliburns79
    I just wanted to say I  didn’t have Dr Rippey but she is spoken of very highly in breast cancer circles.
    Sending you virtual hugs.
    🌺
  • Tarma
    Tarma Member Posts: 73 ✭
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    NST !  Well you learn something new each day 😊

    This cancer trip just gets more and more confusing lol  

    @Aliburns79 welcome to the group  😊 
  • Cindi
    Cindi Member Posts: 134 ✭
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    Hi Aliburns79

    Hi, I'm sorry for your diagnosis. I've also recently been diagnosed with Lobular, but not sure what "type" it is, I'm tempted to ask my specialist's secretary for copies of my results as my guy doesn't give out much info unless I drag it out :( he's a man of few words) but meant to be a top surgeon, so that's what's important I guess.

    I'm also in Sydney.

    It is hard telling loved ones I know, but I think everyone does come to terms with it once you have more info, as there's so much that can be done for BC these days.

    Good luck with your appointment, I suggest you write notes on what to ask and write down answers, and definitely take someone close to you for support and extra ears incase you miss something.

    XX


  • Blossom1961
    Blossom1961 Member Posts: 2,381 ✭
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    @Cindi I asked my GP for all the paperwork as it got sent to her as well as the specialist. She was more than happy to help.
  • Cindi
    Cindi Member Posts: 134 ✭
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    Thanks Blossom1961, Thanks for that :)

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