Friday update 16 April 2021
Hello everyone,
Welcome to Fridays update. You may have
noticed some new BCNA online network moderators in the online community over
the last few weeks. We have expanded our
team of moderators which now includes Jenny, Carissa, Anna, Sandra, Pat &
Michelle.
The aim of moderation
is not censorship, but to ensure that the online community meets its legal
responsibilities and remains a safe, friendly, and supportive space for all
Australians affected by breast cancer.
Moderators will check all information and links posted in the online
community to ensure information is factually correct and reserve the right to
edit or remove any incorrect or misleading information.
If you have posted something and
have missed the 15-minute window allowed for editing a post, please contact one
of the moderators who will edit or delete the comment that you are concerned
about. Please call BCNA on 1800 500 258
if further support or information is required.
Don’t forget to check into the Community
info tab in the top blue navigation bar. Here you will find the community guidelines
and information that will help you navigate the online community.
Community highlights
Every week we have lots of great discussions within the online network,
here are some that you may have missed.
1. Surgery tomorrow @Potter_21 great to hear that you are recovering well.
2. International FLAT day Great thread!
3. On our walks Love this picture @jennyss
Community news
Fulvestrant
listed on PBS
Recently, Novartis announced that
from 1 April 2021 Kisqali (ribociclib) in combination with fulvestrant (Fulvestrant Sandoz®) would be listed on the Pharmaceutical
Benefits Scheme (PBS) for the treatment of hormone receptor positive (HR+),
human epidermal growth factor receptor 2 negative (HER2-) metastatic breast
cancer. Read more
What does it mean to live your best life during and after a
breast cancer experience? What services are available to support your physical
and emotional wellbeing? How can you make sure you’re heard and are your own
best advocate when it comes to your care?
In this Breast Cancer Network Australia virtual conference,
join us to explore what it means to live, love and learn with breast cancer.
We’ll be unpacking the emotional, physical and economic implications of living with
breast cancer, what loving and caring for yourself looks like
through this experience – including combatting feelings of powerlessness and
losing a sense of self – and learning about the critical role
the Breast Care Nurse plays in each person’s journey, and what to do if you
can’t access one.
We’ll be joined by people who have been affected by breast
cancer as well as subject matter experts including a psychiatrist, psychologist
and Breast Care Nurse.
Through a range of interactive panel sessions, Q&As
and breakout rooms, this conference aims to equip all attendees with the
practical tools and information that you need to live the very best life you
can, plus provide opportunities to connect with others.
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To register for this Virtual Conference click here
Host a High Tea this May to celebrate the family and friends who
are with you through thick and thin while raising vital funds for BCNA.
Gather
your nearest and dearest, to enjoy special High Tea treats with your loved
ones, who will be tickled pink while supporting BCNA’s information and support
services. Funds raised will assist in supporting BCNA’s My
Journey online tool, designed specifically to help women and men make the best
decisions about breast cancer treatment and care by providing up-to-date,
reliable information tailored to their changing needs.
Registering
your event is easy. Once you’ve registered, we’ll send you a ‘how to’ guide
on hosting a High Tea – with recipes and tips as well as a support pack with
posters, pink lady cut-outs, donation tins and BCNA balloons. And as an
added bonus, to thank you for registering your High Tea event, the first 10
hosts to register will receive a bottle of DKNY perfume! For more
information, click here.
This week’s reflective
quote
"A good head and a good heart are always a
formidable combination."
-
Nelson Mandela
Enjoy your weekend, stay warm
The mod team.
Giovanna, Carissa, Jenny,
Anna, Sandra, Michelle, and Pat