I’m a stage 2 early breast cancer patient . Triple positive . Lump 4mm on detection now reduced down less than 2mm with 4 weeks of taxcel chemo to go ( previously completed r x fortnightly AC chemo). Herceptin Infusions has been weekly 8 weeks , another 4 to go then becomes 3 weekly in 2021 . I’m now at point of having to decide on surgery option. I’ll be clarifying these questions to my surgery team as well .ive been told,I’m a candidate for lumpectomy , and this will require radiation treatment .the question of reconstruction I’ve decided can be left for later ( at present I don’t think I will bother but.....one doesn’t always know till you are really in that situation).it was made clear to me that status of my lymph nodes is almost a separate issue . At present no sign of enlargement on physical,exam or scan or ultrasound . Sentenial lymph nodes will be checked On day of surgery has anyone been in same situation where lymph nodes were found to be cancerous- how many ? did you have wide clearance Of the breast lump with lumpectomy and radiation? ( with clear margins at lumpectomy).What I suppose I’m trying to get my head around is a few issues radiation therapy - it’s been a interesting time with chemo ( that I had to have ) and I’d somehow like to avoid radiation therapy . Q if I opt for mastectomy -can I avoid radiation If lymph nodes clear ? Or if it’s in lymph nodes , they’ll do,a clearance/wide excision will I end up having to have radiation as well Hope that makes sense . I do understand that radiation burns etc do not end up a major issue with everyone but I’m tending to think it’s one less,toxin to impose on my body . Surgery isn’t easy either but......

Just a update - had a lumpectomy on 4th jan 2021. 6 nodes removed and all were non cancerous. Excision margins clear on lesion which had responded well to chemotherapy. Down from 4 cm to hard to find (despite marker) lump,requiring mammogram to insert fine wire prior to surgery. Little dispruption to,symmetry of left breast . I think I’ll be able to wear normal bras once healing complete. Now awaiting radiation treatment to,start, and ongoing three weekly herceptin and I think hormone therapy. Feeling positive about the future. It’s been a long six months. Thank you to those here posting their comments as it helped me immensely

I also used Mepitel during my Radiotherapy for 5 weeks and then until it peeled off afterwards.I had no signs that I had had 25 doses of Radiotherapy. The explanation that I had about how it works, was different than I had thought.Apparently it allows the skin to maintain it's own moisture and not lose it. Also it decreases skin sensitivity and irritation, with it's protective barrier. For theses reasons it is important to have it on 24/7. Even on the weekend.And have it replaced at next Radiotherapy appt. Some times there will be daily patching. My main area lasted 2 1/2 weeks first time applied.

Update as of 26th jan . I ended up going with recommendations as per surgeon. Lumpectomy ,SLN and 6 lymph nodes removed . Best possible outcome ( thank god) in that no cancer in lymph nodes and clear margins around tumour which had shrunk considerably post chemo. I’m very happy with surgical result as very little left breast defect ( apart from the blue dye blobs which may fade over time) . Should be able to,wear normal non underwire bras in a few months. Am to see radiation specialist next week for planning appointment . I appear to,have some cording in armpit but will be seeing lymphodema clinic soon for treatment. Fingers crossed that this treatment pathway kicks the ca to the kerb . Still to,have hormone regime appointment and herceptin will continue until later in 2021

Thanks everyone for your comments . I think I’m resigned to going along with medical recommendations with radiation if it’s warranted ( lumpectomy will,mean I have to,have it anyhow. ) I’m still to decide on whether I’ll,have a mastectomy , but now appreciate if cancer found in lymph nodes with a mastectomy I’m up for radiation as well. At the moment I’ve had 9th dose of taxel,and am battling signs of -web-herald neuropathy . Does 8 and 9 were reduced to 75%. Oncologist trying to,get me to dose 11 but we’ll have to,see how the PN goes each week .

@noosa_blue150 Great news to hear that all has gone well! I too had DCIS 3 years ago & following advice from my surgeon, had a lumpectomy & during the surgery she moved some tissue from under my breast to fill in the gap & now, you wouldn't even know I had surgery! As my margins were clear, the surgeon recommended i only have rad treatment for 3 weeks so I didnt have to have chemo.One piece of advice i would like to share with you is that my oncologist recommended I use Mepitel film during my rad treatment. I know not all patients can have this & some hospitals dont have it. I had my treatment in a private hospital. This clear film protects you from the radiation burn. It covers the treatment area & you keep it on for the entire treatment plus a few weeks after, as that is when the rad is at its peak. You shower with it on but you need to keep it bubble free & make sure it doesnt tear. Every day before my treatment, I would pop in to see the nurse & she would check me out & patch up any film that needed repair work. Yes, it does take a few days to get use to it but eventually I saw it as my protective shield & after my treatment ended & I took it off, I had NO redness, burning or peeling. You wouldnt have even known I had rad treatment. 5 weeks of being wrapped up was totally worth it so you may like to discuss this with your specialist & I know there are other options available to help in this area too. Good luck with your next step & so glad you are progressing well & ticking off those boxes! Sending love, strength & prayers xx

Lumpectomy vs mastectomy and lymph nodes surgery

Sister
Member
5 years ago
Great result. Keep up those exercises and hope the clinic sorts the cording quickly (depending on the type of cording, it may take a few appointments).
noosa_blue150
Member
5 years ago
Update as of 26th jan . I ended up going with recommendations as per surgeon. Lumpectomy ,SLN and 6 lymph nodes removed . Best possible outcome ( thank god) in that no cancer in lymph nodes and clear margins around tumour which had shrunk considerably post chemo. I’m very happy with surgical result as very little left breast defect ( apart from the blue dye blobs which may fade over time) . Should be able to,wear normal non underwire bras in a few months. Am to see radiation specialist next week for planning appointment . I appear to,have some cording in armpit but will be seeing lymphodema clinic soon for treatment. Fingers crossed that this treatment pathway kicks the ca to the kerb . Still to,have hormone regime appointment and herceptin will continue until later in 2021
Christine_66
Member
5 years ago
First time I was diagnosed was in 2009, left breast stage 2 DCIS invasive. Had a lumpectomy, sentinel node biopsy resulting in an ancillary clearance of a further 24 lymph nodes. This lead to 4 rounds of chemo, 6 weeks of radiation and 5 years of tamoxifen.
Nov 2020 second diagnosis of DSIS in right breast. I have had a lumpectomy and no lymph node involvement this time 👏🏻👏🏻
Therefore no chemo required and I can chose to have radiation only and risk a third time. Hell no!! I have decided to have a bilateral mastectomy on the 20th April to not live with the anxiety of a possible return.
Also, once you have had radiation you can’t have it again 🤔🤔 so if it returned, they would come off anyway. I am in control now 💪💪

I wish you well in your decision, to do what is right for you 😘
SIro
Member
5 years ago
Thank you Anne65 for your tips & advice. I hope to get home weekends too but am mindful that fatigue can be an issue so will see how I go driving the long distance near the end of my 4 weeks. Hope you are going well. xx
Anne65
Member
5 years ago
@Siro I live 200kms from Adelaide where I had my surgery, radiation treatment etc. I was able to claim each trip through the PATS scheme. Not sure if the name differs from state to state, I stayed in Adelaide with family for the 3 weeks of my rad treatment & only came home on weekends. As you are so far away, there may be options available for you to stay in the city where you are having treatment. Often i see that Cancer Councils have accommodation available to those living remotely so might be worth checking out. It is hard not living nearby your treatment facility/surgeon but hopefully you can find some options to help out. Good luck with your treatment. xx
SIro
Member
5 years ago
Thank you. Yes I have started the process on the travel claims & what’s available since having my surgery. Thinking it will be something I can also get done whilst away & faster internet.
Locksley
Member
5 years ago
@SIro because you travel a long way for treatment you will be able to claim some if ypur travel costs. Good luck with your radiation.
SIro
Member
5 years ago
Hi I’m a newby here but so good to read all the comments & get some real life understanding. I start Radiotherapy 27 Jan. but have to travel 500km from home (remote farm) so focus has been on those logistics. It’s good to learn all the tips here from all you lovely brave women. Thank you.
Abbydog
Member
5 years ago
I also used Mepitel during my Radiotherapy for 5 weeks and then until it peeled off afterwards.
I had no signs that I had had 25 doses of Radiotherapy.
The explanation that I had about how it works, was different than I had thought.
Apparently it allows the skin to maintain it's own moisture and not lose it. Also it decreases skin sensitivity and irritation, with it's protective barrier. For theses reasons it is important to have it on 24/7. Even on the weekend.
And have it replaced at next Radiotherapy appt.
Some times there will be daily patching. My main area lasted 2 1/2 weeks first time applied.
FLClover
Member
5 years ago
@noosa_blue150 @Locksley I totally agree with @Anne65 about the Mepitel. I used it too and my skin was excellent post treatment. No burns at all where the Mepitel was, just smooth skin 😊. The small areas where it came off had painful burns, so boy was I glad to have used it on most of my area!!! 👌🏻👌🏻♥️. Good luck girls, radiation breezes past 😘