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Good news

PalmbeachprincessPalmbeachprincess Member Posts: 39
edited June 26 in Metastatic breast cancer
Hi all
i just had my recent pet scan and I am NED!!
I can not believe it. I’ve had breast cancer, skin, liver, lower sacrum bone and extensively in my pleural lining.
I thought I’d share my news to give hope to others and reading positive news really helped and inspired me.
sending love 
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Comments

  • Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 1,552
    Hello @Palmbeachprincess awesome news!!

  • Blossom1961Blossom1961 Regional VictoriaMember Posts: 1,556
    @Palmbeachprincess Woohoo. Fantastic news. Thank you for sharing. 
  • Juicyfruit123Juicyfruit123 Member Posts: 4
    Congratulations, what great news
  • PV123PV123 Member Posts: 137
    Congratulations @Palmbeachprincess
    Such wonderful news!! So happy for you.  You are so right, there are so many new drugs being developed.  What drugs are you taking now. 
  • PalmbeachprincessPalmbeachprincess Member Posts: 39
    @PV123
    I currently take abemaciclib (an oral chemo drug, that I pay $5000 per month for!) and fulvestrant which is 2 injections in the bottom each month. Plus every 3 moths xgeva. A bone strengthening injection. 
    I ve done the full Monty though, chemo, Radiotherapy, tamoxifen etc. 
    Xx
  • PV123PV123 Member Posts: 137
    Hi @Palmbeachprincess
    Is abemaciclib not subsidised through PBS.  That seems like a lot to pay, could your Onco request cheaper price as compassionate access.  It is wonderful news that it is working.
  • PalmbeachprincessPalmbeachprincess Member Posts: 39
    @PV123
    its a new drug and not yet available for me under my circumstances on the pbs. 
    my Onc is certain it will become on the pbs without the restrictions for me at some point which is good as $5k a month is unsustainable long term 
    xx 
  • PV123PV123 Member Posts: 137
    @Palmbeachprincess, hopefully it does come on pbs and keeps having such good results.  Good luck with your treatment.
  • FLCloverFLClover Member Posts: 51
    Congratulations, fantastic news! 👏🏻 Keep being a fighter 💪🏻
  • jennyssjennyss Western NSWMember Posts: 809
    Dear @Palmbeachprincess ,

    Best wishes from jennyss in Western NSW


  • SisterSister Adelaide Hills, SAMember Posts: 4,592
    Great news!  I hope it comes on the pbs sooner rather than later for you.
  • kmakmkmakm MelbourneMember Posts: 7,903
    Bloody brilliant! I'm very happy for you. Long may it continue! K xox
  • iserbrowniserbrown Regional VictoriaMember Posts: 4,124
    Excellent news!
    Lovely to hear!
    Best wishes 
  • arpiearpie Mid North Coast, NSWMember Posts: 3,884
    Awesome news!!  Hope it is on pbs sooner than later!! Xx
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