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Palmbeachprincess
Palmbeachprincess Member Posts: 39
edited June 2020 in Metastatic breast cancer
Hi all
i just had my recent pet scan and I am NED!!
I can not believe it. I’ve had breast cancer, skin, liver, lower sacrum bone and extensively in my pleural lining.
I thought I’d share my news to give hope to others and reading positive news really helped and inspired me.
sending love 
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Comments

  • Giovanna_BCNA
    Giovanna_BCNA Member Posts: 1,839
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    Hello @Palmbeachprincess awesome news!!

  • Blossom1961
    Blossom1961 Member Posts: 2,433
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    @Palmbeachprincess Woohoo. Fantastic news. Thank you for sharing. 
  • Juicyfruit123
    Juicyfruit123 Member Posts: 5
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    Congratulations, what great news
  • PV123
    PV123 Member Posts: 202
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    Congratulations @Palmbeachprincess
    Such wonderful news!! So happy for you.  You are so right, there are so many new drugs being developed.  What drugs are you taking now. 
  • Palmbeachprincess
    Palmbeachprincess Member Posts: 39
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    @PV123
    I currently take abemaciclib (an oral chemo drug, that I pay $5000 per month for!) and fulvestrant which is 2 injections in the bottom each month. Plus every 3 moths xgeva. A bone strengthening injection. 
    I ve done the full Monty though, chemo, Radiotherapy, tamoxifen etc. 
    Xx
  • PV123
    PV123 Member Posts: 202
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    Hi @Palmbeachprincess
    Is abemaciclib not subsidised through PBS.  That seems like a lot to pay, could your Onco request cheaper price as compassionate access.  It is wonderful news that it is working.
  • Palmbeachprincess
    Palmbeachprincess Member Posts: 39
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    @PV123
    its a new drug and not yet available for me under my circumstances on the pbs. 
    my Onc is certain it will become on the pbs without the restrictions for me at some point which is good as $5k a month is unsustainable long term 
    xx 
  • PV123
    PV123 Member Posts: 202
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    @Palmbeachprincess, hopefully it does come on pbs and keeps having such good results.  Good luck with your treatment.
  • FLClover
    FLClover Member Posts: 1,561
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    Congratulations, fantastic news! 👏🏻 Keep being a fighter 💪🏻
  • jennyss
    jennyss Member Posts: 2,015
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    Dear @Palmbeachprincess ,

    Best wishes from jennyss in Western NSW


  • Sister
    Sister Member Posts: 4,960
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    Great news!  I hope it comes on the pbs sooner rather than later for you.
  • kmakm
    kmakm Member Posts: 7,974
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    Bloody brilliant! I'm very happy for you. Long may it continue! K xox
  • iserbrown
    iserbrown Member Posts: 5,611
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    Excellent news!
    Lovely to hear!
    Best wishes 
  • arpie
    arpie Member Posts: 7,821
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    Awesome news!!  Hope it is on pbs sooner than later!! Xx