Osteoporosis

Hi I'm 58 and 6 years post diagnosis and 4 yeas post treatment for HER2+ BC. Had chemo and radio plus Herceptin.
Had two bone density tests during treatment half way and at end. There were some signs of bone loss but at no point was I told to keep having these tests. Fast forward to a fall and fractured wrist and a bone density test. I've been diagnosed with osteoporosis of my hips and lower back. Probably caused by steroids during treatment and menopause.
Has anybody had experience taking Aclasta or Prolia? Any side effects or pain? I want the truth.
Thanks for reading.
CassieB
Had two bone density tests during treatment half way and at end. There were some signs of bone loss but at no point was I told to keep having these tests. Fast forward to a fall and fractured wrist and a bone density test. I've been diagnosed with osteoporosis of my hips and lower back. Probably caused by steroids during treatment and menopause.
Has anybody had experience taking Aclasta or Prolia? Any side effects or pain? I want the truth.
Thanks for reading.
CassieB
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I also have her2 positive BC, I am on herceptin till September this year. Because I am ER+, I also take Letrozole. I have osteopenia diagnosed when I had a fall and had a cracked rib a few years back.Letrozole will lead to further bone loss and I expect when I have it tested again, I will also have osteoporosis and will need to take one of the medications. I have asked my Onco about these medications, however she has indicated that she will refer me to the bone specialist. A friend of mine is taking prolia and she has had no side effects.
I've had 3 doses now. After the first one, I had dreaadful bone pain a few days later, for a week to 10 days, to the point of taking endone a couple of times. If it had been the same or worse 2nd time around, I don't think I would have been keen to keep going. However, I had no reaction all to the 2nd and 3rd doses. I'm due for anotherbone scan soon, so will be interesting to see the results. I'm really hoping not to need to keep going with it, as I don't fill the requirements for PBS subsidy, so it costs quite a bit. However, if I have to, I'll keep going
As for side effects .. the first infusion did cause terrible bone pain for about 24 hours so 12 months later armed with paracetamol and ibuprofen I was a little nervous... I didn’t need to be though because I had absolutely no pain/ nothing at all!
All the best with your decision xJanineG
Thanks again, all the best to you 😊