28 unsure on what treatment plan to take

Well done @Tamlyn. These are truly tough decisions to make at a very difficult time. Give yourself a pat on the back! K xox

@Tamlyn sounds like a good plan. Keep us updated ! Good luck with egg harvest 

Thanks @youngdogmum, I have started fertility and at this stage I think Im going to go ahead with chemo. 

They have also prescribed me Zoladex for my chemo treatment :) Thank you for all your help, I hope you had a wonderful Christmas x 

@Tamlyn as I said my team really recommended not wasting my money and felt chemo was best given age.. it’s no guarantee of course but is hopefully going to give us the opportunity to live into our 4th 5th and 6th decade... 
Why not do one round of egg harvest when your period comes next week, and keep thinking about it? You can tell the fertility docs you’re going ahead with chemo and then change your mind last minute after the eggs are collected? No one will force you to go ahead at that point if you really aren’t sure. Medicare covered most of mine and I’m guessing being at public KEMH it will as well... we pay $500/yr to keep our embryos frozen so a small ongoing cost if I ever choose to use them... 

This will give you the opportunity to travel to Perth to get a second oncology opinion in the meantime whilst “brewing” your eggs. 

If you have an unsuccessful harvest you do have Zoladex to protect your ovaries as I mentioned above. I’ve not met/discussed one young cancer patient who hasn’t been offered that by oncology, one needle once a month for duration of chemo... 

Merry Xmas :) 

Wow! Thank you everyone so much, this has been incredibly helpful!  @kmakm @primek
@JJ70 @CRM @Tip_Top1 @suburbangirl @jennyss


@youngdogmum Thank you for sharing your advice and the video! 

So I have everything lined up for the fertility, they are just waiting for me to make the call on if I am doing chemo. The more I research the more Im finding chemo for my age is very common. The reason I need to make a quick decision is because my cycle should be starting sometime next week and I would prefer to get the ball rolling with treatment as soon as possible. My oncologist did say that my chemo treatment will only be 4 every three weeks. Im also thinking if I need did the  Oncotype DX test and it came back high risk or inconclusive I would still do chemo. So is it really worth paying $5000 for a 30% chance that I wont have to do it? For this reason Im kind of leaning towards Chemo.

Again, thank you so much for everyones advice and direction I really appreciate it  sending love and healing to all on this crazy journey xx 

I heartily concur with what @JJ70 and @youngdogmum have said.

No matter what your diagnosis, in the breast cancer world you have to advocate for yourself. Sometimes harder than should be necessary. Enlist a partner or sibling or bestie to do it for/with you if you're not feeling up to it. Take care, K xox

Hello...I'm 27 in Qld and finished treatment in September this year, ER/PR+ HER2- lobular not ductal...

Very scary time and I feel for you being left in the dark...my hardest time was between surgery and chemo deciding whether I should do fertility preservation. I personally was all for chemo and it was difficult, not going to lie, but I was very okay with going through it. 

My tumour was bigger and I had one micromet in one node...however I discussed the Oncotyope/Mammaprint tests with my team at a tertiary hospital and they said they really didn't think it was worth me spending the money and that they would generally offer most young women chemotherapy still. They explained this is due to the younger at diagnosis generally there is higher risk of recurrence. This data is supported worldwide and I have read a lot to studies this year about this.
I feel you will benefit from a second opinion to see if multiple teams agree no chemo. The vast majority of young women under 35 I have made contact with around the world this year all had chemotherapy. 
Definitely not trying to convince you to do something, as someone above said chemo can cause side effects, I myself have some feet neuropathy. Just trying to show you that there are alot of us out there under 30 who have had chemotherapy, even with smaller tumours like yourself. That being said...in the older women population ER/PR+ HER2-ve disease is definitely moving towards no chemo if it is early with no node involvement. 

I have a doctor pal who was diagnosed same as you aged 25, she only did 4 rounds of chemo versus my 8. Perhaps you could do something like that... ?

Fertility - agree with the statement from the fertility specialist about no need to preserve eggs if no chemo, tamoxifen in theory shouldn't damage your ovaries. Chemotherapy is known to, about 1 in 3 young women will not get their period back after chemo. In saying that, my girlfriend who was diagnosed at 29 same time as me this year in February has had two periods already since we finished chemo in July. 

There is a drug called Zoladex which you can take via monthly injection; this is done for two reasons. It turns off your ovaries so the theory is it will help preserve ovarian function during chemo if they aren't fully functioning during it. You have this option if you want to proceed with chemo but don't want to or don't have time to go through egg preservation.
The second is that it lowers oestrogen circulating in your body which for some higher risk hormone positive BC patients this is recommended to do as part of ongoing therapy with tamoxifen or another drug class called aromatase inhibitors.

I was a part of a video to assist young women who have just been diagnosed with BC around fertility treatment and it came out a few weeks ago..here is the link https://www.youtube.com/watch?v=MVmF0kNUv5g&feature=youtu.be 

My advice regarding needing advice at this time of year is to phone the larger hospitals in Perth and ask to be put through to the breast cancer nurses. You need help making decisions right now and I would just see where that gets you. However from personal experience being a nurse myself, alot of those positions do take annual leave right now and I wouldn't expect most to be there until the 6/1/20. Which sucks and is cruel. 

I hope some of this stuff helps. 

Hi @Tamlyn. I've just had a friend diagnosed with triple positive BC - her tumor 1.8cm. She is doing chemo because the chemo helps the body use herceptin - the drug used for the her2 protein. You don't have this so, your recommendation for chemo is curious to me. I was told that chemo is necessary if tumor size is 3cm or over. 
I was diagnosed with er+ BC. I read in one study ( a good one from Canada) chances of recurrence for the majority of er+ and pr+ breast cancers are MOST likely for 5-20 years down the track (apparently in more than 50% of cases), rather than peaking at 2 years and relatively uncommon after the first 5 for triple pos/neg breast cancers, so perhaps your young age has something to do with it. 
What grade was your tumor? Grade 3 tumors are more likely to recur than Grade 1 for example - so this would be something to consider too.

In my opinion, chemo is not to be taken on lightly. It has caused irreversible damage to my feet that has dramatically affected the quality of my life. Having said that, I would have still done chemo, as my tumor was 3cm, but like you, no node involvement. I didn't want to be 10 years down the track with a recurrence thinking 'why didn't it do that? I should have done that!'
I think Tamoxifen - although a shit drug to take in many respects will be important. From what I've read er/pr BC - Tamoxifen therapy is important for up to 15 years post diagnosis, with extension to 10 years reducing the risk of late recurrence.. Find out if you have a 'Luminal A or B' tumor - Luminal A responds better to Tamoxifen.
I read you are in Busselton. I have a couple of friends down that way all diagnosed within the last couple of years. Would you like me to organise a connection - perhaps phone numbers and email addresses? I think @Shellbelle_75 is your tag here on BCNA Shel....been so long since I've used it!

These are all my thoughts.........from reading, from taking to my oncologist, from friends....

I wish the medical team you are seeking were clearer with their advice to you....perhaps ask more questions. Get a list of questions together from this thread and other sources and get an appointment with an oncologist (or even two different ones!) as soon as you can after the silly season. I recommend you grill them for some proper answers. This is your life and you need proper medical advice.

Dear @Tamlyn,

from jennyss in Western NSW

Hi @Tamlyn how awful that you have to make this decision alone. My opinion is obviously not professional but for reference I was diagnosed this year 15mm grade 2 er+ pr+ and did not have chemo. I am interested why you are considered stage 2 with a tumor smaller than 2cm and no nodes positive, it might be worth asking your surgeon. In any case, take the time you need to investigate all options before deciding xxx