Grade 3 Triple Negative
Angiebloom
Member Posts: 3 ✭
hi!!
I just wanted to say my first hello and what an amazing place this is to come for loads of wonderful advice and info!! I was diagnosed on 6th Nov with Grade 3 Triple Negative IDC and am having a double mastectomy with reconstruction next wed 4th Dec. I’m a mum of 3 (19,16 & 7) and had only just turned 40 when I experienced a sharp pain in my breast and went to have it checked. No staging as of yet, I had one swollen lymph node biopsied which came back clear and CT was clear apart from pre existing liver hemangiomas (just something else to add to the mix) but still waiting on bone scan results.........if that isn’t the most anxiety endusing thing on the planet I don’t know what is, Ive been hyper sensitive to every ache and pain I get!! Chemo is planned for the new year. Anxious but eager to get into it, all the waiting is the worst 😣
I just wanted to say my first hello and what an amazing place this is to come for loads of wonderful advice and info!! I was diagnosed on 6th Nov with Grade 3 Triple Negative IDC and am having a double mastectomy with reconstruction next wed 4th Dec. I’m a mum of 3 (19,16 & 7) and had only just turned 40 when I experienced a sharp pain in my breast and went to have it checked. No staging as of yet, I had one swollen lymph node biopsied which came back clear and CT was clear apart from pre existing liver hemangiomas (just something else to add to the mix) but still waiting on bone scan results.........if that isn’t the most anxiety endusing thing on the planet I don’t know what is, Ive been hyper sensitive to every ache and pain I get!! Chemo is planned for the new year. Anxious but eager to get into it, all the waiting is the worst 😣
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Comments
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Hi @Angiebloom
I just wanted to say welcome to this forum where we all understand the fear, the highs and lows,and of course 'the waiting'!
We each have our own story and journey, but we share the emotions that go with it all. I wish you all the very best for your op on the 4 December.
Following your pathology you will have a treatment plan, which in a weird way allows you a degree of control back on your life. Keep letting us know how you are going, and if you have any questions.
We all care, even though we don't know each other personally!
Best wishes, xx4 -
Hi @Angiebloom and welcome to the club none of us ever wanted to join. We are sorry you had to find us, but we are glad you have found us.
It's not the news anyone wants to hear. We have all heard it. You may have noticed I'm from the heterogametic sex. My wife was diagnosed with tnbc some months ago.
Please know that you are loved, and please allow your loved ones to help you over the next couple of years. When they offer you help they really mean it, so take up their offers.
There are dark days ahead and in some ways the waiting is the hardest part. Please don't ever lose hope. You have every chance of beating this thing. Look after yourself and don't hesitate to lean on the great members of this community.
Sending you hope and virtual Roses
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@Angiebloom Welcome to the forum. I'm sorry that you're here, but now that you are I hope you find it as warm and supportive place as I have.
The waiting is hands down the absolute pits. Keep yourself as distracted as possible between now and then. TV, friends, exercise, hobbies, meditation, go for it. You have to feel the pain but there's time enough for that process later, when you know where you are. And once you have a treatment plan and get underway with it, you'll feel better.
Accept all the help you're offered (I found that very hard, especially at the start), be kind to yourself, and stay away from Dr Google...
The day you're having your op is the second anniversary of my diagnosis. As a fellow BMXer, I'll keep you in my thoughts. Big hug, K xox5 -
@Angiebloom Welcome aboard for the wildest ride ever!! Glad you have found us & that this forum has helped you already. All questions will be answered & everything you will experience, would have been by many of us here. THE best place for first hand advice & support.
Although waiting for results is always going to be one of the hardest things to wait out, your surgery/treatment will go ahead quite quickly & it is good that your plan is laid out for you.
Focus on the now & not what may be as things change all the time so no use worrying over things that may not happen. Stress fuels cancer so try to stay as calm & positive as you can. I hope your family & friends are surrounding you with love & support. Get as much help as you can & let those around you help out with school drop offs/meals etc. People love to help. Get some frozen meals in the freezer ready too.
I found a McGrath nurse great help to answer all your questions. I found her on their website & just emailed her. We speak for ages on the phone & they also counsel your family if needed. If your kids need special guidance, I know that CanTeen Australia offer great services for kids who are effected by cancer in their family.
I will be thinking of you next Wednesday for your op & the day a BIG box will be ticked off. It is the day before I was diagnosed 2 years ago. Wishing you prayers, love & strength. xx4 -
@Angiebloom
Welcome to the forum, I know you will find it a positive and caring place as I have.
Over the last year, in the midst of lots of anxious waiting and fear of the unknown, it was the only place where I felt truly understood.
I asked lots of silly questions and got tons of support and advice from everyone. Don't hesitate to do the same, we all get it
I am just at the end of my treatment and yes it has been an absolute rollercoaster but once you get started you will feel that you are at least moving forward. I will be thinking of you next Wednesday
@kmakm, we share the same diagnosis date, so next Wednesday Dec 4th will mark my one year anniversary. Fortunately it is also a friends birthday, so I plan to celebrate and breathe out!
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@Nefertari I will add you to my thinking list my diagnosis sister. It was a truly horrible day for me, as I imagine it was for all of us. I wonder if it will ever come round unnoticed? Oh how I wish it had never happened. Hope your day goes well and your friend's party is fun. K xox2
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@Nefertari
In my experience the day of diagnosis hasn't stayed with me as time has moved on. My thoughts are more about the countdown to the end of all treatment. At this stage, if I have to do the full 10 years bit that I was told originally, it is coming up 5 and half years to go! Goodness I shouldn't reflect on the count...….how old will I be then! Shudder, shudder!
Take care...…..it does get better and a new normal comes along! Let's face it we are evolving always regardless
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Gremlin in the system - that should read @Nefertari0
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@kmakm, I like that my "diagnosis sister" I will be thinking of you too. My sister's date is in March and she is 15 years NED, she said it does lessen but she still has scanxiety around March for her annual mammogram / ultrasound.
I always hold my breath until after she gets results and so far we have been celebrating every March since, she is my idol 1 -
@Nefertari That's wonderful to hear! My sister died three years after she was diagnosed, but my mother is 33 years NED. Obviously I hope I fall into the latter category. I've certainly done everything I can to make that happen. K xox1
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@kmakm - I certainly hope you fall into that category too and hope I can squeeze in there too lol. Iwish that for everyone here.
@iserbrown, thanks for your thoughts and wonderful to hear that you are 5 and a half years in! . I guess the "one year anniversary" of diagnosis is the scariest, this year has been pretty intense.1 -
Wishing you a successful operation on the 4th and a speedy recovery @Angiebloom! Of course no time is a great time to get the BC diagnosis but this time of year sucks
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I was diagnosed also in November and had my op in December , 3 years ago. Christmas dinner was switched from my house to my brother's which took the pressure off and helped me in my recovery so do what ever you can to let your relatives/friends take the load off you this Christmas.....and into the New Year when your treatment starts. If you look through the threads there are discussions on how to get your kids to help out too. All the best , J x0 -
Welcome Angiebloom to this forum that’s full of emotional support and knowledge.
I also was diagnosed with TNBC in October 2018.
After surgery, Chemotherapy and radiation, I have just had my yearly mammogram and given the all clear in both breasts.
You can also beat this horrid disease.
Take one day at a time, I described it as a roller coaster ride ( I never did like them lol..) in all honesty you will have good and bad days, and that’s ok as this is normal.
Go with the flow and listen to your body, rest when it tells you to, my best advice is stay hydrated, rest when need,gentle exercise when able to , and accept help when offered.
Also stay positive is the key, there will be days when you don’t feel as good as others and that’s ok, as long as you pick yourself up again.
If you ever need to talk we are all here, you can privately pm me if you need to talk further about Triple negative .
Sending hugs xx
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@Angiebloom. I was diagnosed TNBC May 2016 aged 43. Stage 2a grade 3 no family history scans all clear and no lymph node involvement. I had a double mastectomy, no recon (my choice) I had 8 rounds of chemo. 4 AC fortnightly then 4 paclitaxol fortnightly. Do you want any head scarves and bandanas ? I have a big bag. They started with me in QLD then went to NSW VIC then back to NSW and the girls have added to them along the way. Let me know if you’d like some I’ve also offered them to @Begonia10 too and am waiting to hear back from her. Can easily split them as I have heaps. Happy to post to you, I get back from hols jan 3rd. Biggest hug and so sorry to hear you’ve joined our club. The whole thing is shitty but doable that’s how I explain it anyway. Feel free to PM me anytime f you have any questions. Big hugs. Margie xx2
