Evening beautiful people!After some advice please...I've been on 3 weekly perjeta and herceptin for almost 3 years after diagnosis with mets in 2016, and everything has been going great. Unfortunately, recent scans showed some enlarged lymph nodes, and my onc is keen to attack swiftly. She has recommended that I change to Kadcyla as soon as possible. My concern is that I live 2 hours drive from my treatment centre, work full time and raise my daughter (8) on my own. At present I drop her at school and drive over for treatment, then drive myself home after. How do others on Kadcyla find the treatment? It contains chemo drugs, so will I be able to drive myself home? This treatment will continue indefinitely, so will working full time be sustainable?All thoughts and opinions greatly appreciated!ThanksJen xx

It is really wonderful news @wendy55 to hear that you have more energy and vitality with new drug regime. Long may it continue. Hoping you really spoilt yourself on your shopping venture too and so great to hear the hands and feet are recovering.

Wendy55 just read this post caught up on your news ... thought this would give you something else to smile at ... wonderful to hear the positive changes this med is having for you.

Hi @primek, sorry I cannot think of anyonewho is on Kadclya at the moment, I havent been around the last few days, started my chemo regime on Friday and its knocked the socks off me for the time being, its my body just getting used to it I do hope someone else can help, at the moment all I want to do is lay on my bed!!! give me a few days and I will be up and running again.wendy55

Thanks @arpie,I just went and for the first time since we got our beautiful rescue dog 10 months ago I was able to sit and brush her coat and actually feel my hands working!!! I am so grateful, I know xeloda was tough, but I am tougher!! so take that cancer and put it where the sun dont shine, I am pretty happy cant you tell!!!wendy55

What wonderful news. You're an inspiration to all of us living with mets. I've been procrastinating about buying a new camera and lenses - the old "will I be around long enough to get the use/justify the expense" routine. And having read your post, I've made up my mind. Carpe diem - seize the day!

Kadcyla | BCNA Online Network

17 Replies

SoldierCrab
Member
7 years ago

Wendy55 just read this post caught up on your news ... thought this would give you something else to smile at ... wonderful to hear the positive changes this med is having for you.
Riki_BCNA
Member
7 years ago
It is really wonderful news @wendy55 to hear that you have more energy and vitality with new drug regime. Long may it continue. Hoping you really spoilt yourself on your shopping venture too and so great to hear the hands and feet are recovering.
Afraser
Member
7 years ago
That's wonderful news - enjoy every single moment, they have been hard won and all the more precious.
Merv
Member
7 years ago
What wonderful news. You're an inspiration to all of us living with mets. I've been procrastinating about buying a new camera and lenses - the old "will I be around long enough to get the use/justify the expense" routine. And having read your post, I've made up my mind. Carpe diem - seize the day!
kmakm
Member
7 years ago
Glorious glorious post @Wendy55! Highlight of my day (that and my son getting a uni offer). The biggest of hugs you champion! K xox
Sister
Member
7 years ago
I can hear your excitement in the words @wendy55 Go, girl!
kitkatb
Member
7 years ago
Hey @wendy55 you've just put a big smile on my face reading your post. <3
wendy55
Member
7 years ago
Thanks @arpie,
I just went and for the first time since we got our beautiful rescue dog 10 months ago I was able to sit and brush her coat and actually feel my hands working!!! I am so grateful, I know xeloda was tough, but I am tougher!! so take that cancer and put it where the sun dont shine, I am pretty happy cant you tell!!!
wendy55
iserbrown
Member
7 years ago
Lovely to read!
arpie
Member
7 years ago

WOOHOO! That is wonderful @wendy55 - I can feel your joy & 'viva la vie' returning!! I think just the cooling of the weather has helped big time just now too - it has been cooler here for a few days (but picked up again a bit yesterday!)

It sounds like you have your regime all worked out ..... AWESOME! Go Girl!! xxx