Have your say - Survey on BreastScreen Australia’s Position Statement on Breast Density
The Australian Department of Health is considering whether BreastScreen Australia’s Position Statement on Breast Density needs to be changed. The Department has commissioned Allen + Clarke, a consulting company, to undertake a short, online survey to get the views of researchers, clinicians and women who use BreastScreen services.
Currently, women who participate in BreastScreen are NOT routinely told about their breast density. The exception is the WA BreastScreen Program, which sends a letter to the woman and her GP if the woman is assessed as having very dense breasts.
It can be harder to detect cancers on mammograms of women with very dense breasts as breast density can hide or 'mask' breast cancers. Research has shown that having very dense breasts is also a risk factor for breast cancer.
This survey is an important chance to share your views about whether or not BreastScreen Australia should talk to women about breast density.
While more scientific research is needed to help health professionals understand how women with very dense breasts can best be screened and/or manage their breast cancer risk, many women argue that they want to be told.
The survey will close on 27 June 2018. Your
responses are anonymous.
Tips on taking the survey
Some of the survey questions have been written in a complicated way. We have developed the following tips to help you have your say.
- Please read BreastScreen Australia’s
Position Statement on Breast Density before you take
the survey. The survey asks if you have read the Statement and you cannot
proceed with the survey if you answer ‘no’.
If it's easier, you can read a summary of the Position Statement on the Information Forum on Mammographic Density (INFORMD) website.
- Please read BCNA’s webpage about breast density
before you take the survey.
- BCNA member Kate has shared her story about breast
density, which you can read here.
- Question 6 of the survey asks what ‘evidence-based’
changes you would like to see to the position statement and asks you to
provide ‘citations’ (e.g. journal articles). Please don't be put off
by the language in this question. BCNA has provided feedback to Allen +
Clarke that women’s views are important and should not need to be
We encourage you to share your views about breast density in the open-text boxes at either question 6 or question 7 and not to be concerned with the way question 6 has been asked.
- You can skip questions (i.e. leave them blank), but
please make sure that you click through to the end of the survey and click
How to participate?
You can take the survey here: https://www.surveymonkey.com/r/BSApositionstatementonbreastdensity.
Please also don’t hesitate to email the BCNA Policy Team on [email protected] if you have questions.