Forum Discussion
Sister
8 years agoMember
Chemo still sucks on taxol
I'm almost halfway through my taxol cycle and so OVER it. Day 4, yesterday...I borrowed my SILs hedge trimmer and pruned some of the overgrowth from around the house - had a break halfway so didn't push myself hard. Went for a walk in the forest with the family - 3km but over 15 minutes per km so a gentle stroll, really. Came back and had lunch, then spent about 15 minutes raking the morning's prunings into rough piles, making sure I didn't push myself too much. Spent most of the rest of the day laying down because sitting or standing was just too hard and made me feel so crook. I ended up going to bed (as opposed to draping myself decoratively over the couch) at 8:30pm! Bah Humbug!
45 Replies
- kezmuscMemberHe @Sister,
I haven't read the full post but it sounds like you are having a really tough time. Keep your eye on that goal post. You're nearly there lovely. I kept a calendar in my car so as soon as I walked out I could put a big red cross through another week, It's hard to believe when you are going through all this, but time flies and before you know it you'll be a year down the track. xoxo
Wholly shit @melclarity that certainly a rough trot to say the least. So glad you are feeling good now. What a lot of hard work to you had get back there though. xoxox
@Matt It's just another one of those things nobody knows. You might get through without too much trouble.
It's so strange how differently everyone responds to different treatments. I had next to no problems with Paclitaxel, but am getting an absolute flogging on the HT. Fingers crossed for you. - SisterMember@Matt Sorry to have alarmed you. You will get there - it's just a real drag. I actually feel better (mentally) for knowing what is going on with my body. The onc telling me that what I'm feeling is par for the course because I'm not having a chance to repair before the next dose and that the extreme fatigue is because I'm so low on red blood cells (and it will be treated if it gets too bad) makes me think that I can get through it. I'm still emotionally low, but this is halfway through so next treatment I'll be on the other side of the hump.
- kmakmMemberHang in there @Matt, some people do better than others, on pretty much all the drugs it seems. You might be lucky. I hope so! K xox
- melclarityMember@Matt just make sure you convey absolutely everything to your Team each week you go in, as they keep a record of everything. If you handled AC pretty well, you may just be ok with Taxol, you'll only know as you go along. Fingers crossed for you. M
- MattMemberwow I wish I didn't read this post @Sister :-) I start my first T tomorrow, weekly for 12 weeks after seeing the onc today she warned me it will be different from the ac which I handled well, but what bugs me at the moment, I have to give blood on a weekly basis, I think i'm running out of the red stuff
- SisterMemberI'm sure that won't be "necessary" @Eastmum!
- EastmumMemberWell @sister I just googled mecassarn - I wanted to know what that was, in case I get it too! hahahahahahaha
- SisterMemberI'm sure my phone does the opposite of autocorrect after I've hit post comment.
- kmakmMemberGood. I hate being 'handled'. I much prefer the straightforward telling it like it is approach.
- SisterMemberJust saw my oncology and he said that how I'm geefeel is very normal but that I'm doing well. Extreme tiredness is due to suppression of bone marrow and if bloods show it's mecessarn down the track, I will have a transfusion. He also said that I can expect it to get worse as I go along. Really happy with the honesty even if it doesn't change the outcome.