Chemo
Marketta
Member Posts: 34 ✭
Did anyone have AC and be fine? I had side effects the first day, really sick and neausea but then last few days have been good ( better than I thought-functional I’d probably say as a better word) apart from a shocking tension headache and slight fatigue but I’m just thinking this is only day 5 of a long road! Everyone wants me to rest, but I’m worried these are my good days and I’m wasting them in bed if I have energy to get up! If I stay in bed I feel lazy but is it helping me because I’m giving my body rest? I’m so confused! Is this as good as I’ll feel and I’ll progressively get worse and worse as I go along to my 2nd, 3rd, 4th treAtment? I’m looking for positive feedback with little side effects from chemo? In aim to be hopeful I’m only 36 I have 2 small kids I feel so lost
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Dear Marketta
Everything about diagnosis and treatment tends to confuse and disorient! You have both yourself and your family to think about so the temptation to look ahead and worry about how you will manage is very great. As far as possible, try and deal with each day as it comes. And you are the best judge of how you feel. People mean well but often really don't understand. Do things if you can and it makes you feel better. Stop when you can't. I had a comparatively easy time on A/C - no fatigue, no nausea. I did get a possible side effect later but it was almost certainly compounded by age (I was 67) so not a concern for you. The pattern of feeling unwell week one and much better weeks 2 and 3 is fairly common. You will find out what your pattern is and that's likely to continue for each treatment. It's a bit easier to handle when you know better what to expect and unfortunately that's very individual. Hang in there, one more treatment and you are half way through this bit! Best wishes.
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@Marketta Only you know how your body is feeling. If your body (and mind) says rest, rest. If they say do the laundry, do the laundry! Be mindful to pace yourself, but sometimes doing 'normal' things help you to feel much better. Chemo side effects can be cumulative in your body so your routines may change as treatment goes on, but only you can say. We're all different. I struggle with this but all the wonderful people here say try to take things one day at a time. Chemo is no walk in the park... you are not being lazy by lying in bed! Be kind to yourself. Hang in there. K xoc1
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Do what your body says to but don't do more. In fact, the current thinking is that if you can do some exercise (walking or the like) you will get over the effects better. Also, that when you're up for it (for me it was Day 10, first AC, then Day 7, second AC) you'll do yourself major good long-term by moderate-high intensity cardio - so, walking at a pace where you can talk but not sing.0
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Thank you everyone ❤️0
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Hang in there Makeerta lm on day 1 of Ac it has been hell . We can climb this hill . TLC to your body and mind . Look at those precious kids. I have a toddler full of energy. Well tired now but stay strong0
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Hi @Marketta ,
I had 4 x 3 weekly AC. 12 weekly taxol I just did as much as I felt capable. It's all up to you.
Day 1 sucked. Day two and three were great, heaps of energy from the steroids, crash day was day 4 then got better. You'll work out the routine for you. My biggest problem was incredible hot flushes. I will say though the 4th round took longer to recover from.
Doing normal things as much as I could kept me sane, so did planning jobs to do. I renovated my dining room, rode my horse, mowed, fenced, went camping, worked, tagged along with my husband to campdrafts and partied with the cowboys in the bar! If I wanted to go out and have a good time, I planned it in line with the steroid rush LOL
There are no rules. Do whatever gets you through. For me that was staying busy and as normal as possible. Took my mind off it a bit. Some days were crap, but there were a lot that weren't.
All the best.
XOXOXOX1 -
Hi @Marketta, I did quite well on both chemo combos. I was never nauseous, but it did take all my energy. Food also tasted like Crap. I remember my first Ac and going home and feeling scared about what hideous side effects were to come . I waited and waited but mostly I was very fatigued the first week and gradually felt a bit better. Constipation was an issue on Ac for me so I took coloxyl regularly.
Hope it's smooth sailing for you .2
