Any Oncology or Haematology or Palliative care nurses out there?

@iserbrown currently in the chair and no known faces today but always lots of friendly smiles x

@Maggienbub Thankyou for your kind words, I think we do a pretty good job here. If your in the Holman Clinic for Radiation feel free to ask for Jo and I’ll pop round to say hello x

@joeyliz Oh wow!  What a weird sensation that would be - a bit like you're ambidextrous!  At least as you sit in the chair next to known patients you can give them encouragement and no doubt vice versa!  It's such a reality isn't it!  Your work doesn't make you exempt from this wretched thing called Breast Cancer! 
Wishing you wellness with treatment and eventual NED!  Take care x

I thought radiation would be a walk in the park and probably compared to chemo it is! The fatigue! When they said fatigue a side effect they weren’t joking! Probably continuing to work 4 days a week didn’t help, but as radiotherapy has a cumulative apeffectprobably the first week after treatment the worst so then I took a week off! For the burns I lathered myself in Q.V. dry skin then when it got worse dermeze (like moo goo I think)! My boob ok....quite tanned now compared to her poor white sister! Think my underarm (where they removed my sentinel node) wore the brunt of it....only just healed after surgery! A few zaps from radiation and it went to crap! All good now tho! Salty ocean water helped.....even with rashly on! It’s a purple raspy tho so I’m all good with that lol!
Only had bone density post radiation so been on the Letrozole a week! Pharmacist tells me will take a few weeks before side effects so will let you know!! 

buster said:

Hi @My3sons I too feel like I am luckier than most. Same as you lumpectomy only 3 weeks ago been to Onc who said I will need Letrozole after radiation. I go to my initial  consultation with radio onc tomorrow so dont know yet how long I will need radiation for. How did you find it? My daughter bought me moo goo today as everyone said it was so good. How are you finding the letrozole? 

I don't know how I would be without the fabulous, kind & yes funny, caring stsff from your unit. You are all the benchmark of how oncology SHOULD be in Hobart. I can only wish you the very best as you have given so many. I hope if we are in neighbouring chairs you won't be  a stranger. Thinking of you.

JoeyLiz said:

I'm a Radiation Therapist and when I've mentioned that to the other medical professionals I've met in my journey so far they either give me a look of pity,  say "oh so you know all about this then" or "oh that must be awkward". I must admit I'm finding it all very fascinating, I usually meet my breast patients a month or more after chemo so don't know a lot about the different regimes and all the her2 and E/R receptors etc (except for seeing it on the referral it doesn't impact the radiation side of things), so I'm taking it all in from a learning point of view. 
Being in Hobart with only 1 centre it is a bit weird sitting at chemo in the chair next to a patient who the week before I was designing his radiation treatment or across from a lady at LGFB who I met during her radiation planning session....

Hi @My3sons I too feel like I am luckier than most. Same as you lumpectomy only 3 weeks ago been to Onc who said I will need Letrozole after radiation. I go to my initial  consultation with radio onc tomorrow so dont know yet how long I will need radiation for. How did you find it? My daughter bought me moo goo today as everyone said it was so good. How are you finding the letrozole? 

I'm a Radiation Therapist and when I've mentioned that to the other medical professionals I've met in my journey so far they either give me a look of pity,  say "oh so you know all about this then" or "oh that must be awkward". I must admit I'm finding it all very fascinating, I usually meet my breast patients a month or more after chemo so don't know a lot about the different regimes and all the her2 and E/R receptors etc (except for seeing it on the referral it doesn't impact the radiation side of things), so I'm taking it all in from a learning point of view. 
Being in Hobart with only 1 centre it is a bit weird sitting at chemo in the chair next to a patient who the week before I was designing his radiation treatment or across from a lady at LGFB who I met during her radiation planning session....

I've worked in oncology and palliative care as well as nursing my own father at home with lung cancer and provided support to my brothers family as they nursed his wife who had endometrial cancer. It can help but it can also make us a bit pessimistic as we don't work with the ones that do make it.

When undergoing my chemo and seeing how short staff they were I considered returning to the field. However once in the middle of treatment  I realised once my journey is through I well might want to just forget all about it. So I have scrapped that idea. It's all a bit raw. I'm back working in my current field of mental health and feel working with people trying to find happiness in adversity truly helps me.

No matter what our experience, positive or negative, we all have days where we think we'll die from this disease and days when we are sure we will beat it. It's all normal. I say let the emotions roll. Acknowledge that we do have fear and doubts...and that's okay. It's only when we get caught in the fear and when we can only feel frightened or sad constantly that we need assistance. Then talking with somebody outside the family can help. We often feel we can't let our loved ones know how scared we are, putting on the brave face doesn't change how we feel inside. It just makes others feel comfortable. So yes have a cry. Rest and retreat as needed and positivity hopefully will return. Kath x