Support for people with disabilities affected by breast cancer

Hi Grace,

I would really be interested in being a participant in helping you learn about the challenges I have experienced thus far in my breast cancer journey as a person with a physical disability (as well as other health issues, ie. an S.P.C.), I would also appreciate being put in touch with other people who have cerebral palsy to discuss their experiences.  I received my breast cancer diagnosis last month and thus far have not found a support group yet that fits my specific support needs.

Regards,

Marnie

Thanks Christine, we are very excited about exploring this and learning more about the experiences of people with disabilities.

Your message made me giggle too. But you have highlighted the need for us to make sure we communicate clearly and that it's easy to read.

Regards, Grace

Hi Karen

Thank you for your feedback. You are absolutely right, not all disabilities are visible, people have a range of disabilities and impairments. Similarly not everyone needs support or carers to help them access information and support. We will be talking to a range of people with a range of disabilities. We will also be speaking separately to carers to make sure we capture the experience of people who are carers to understand their needs and the challenges they face.

Regards, Grace

Grace what a good initiative Just a giggle I obviously didn't have the right glasses on as I thought your heading said diabetes. As I started to read the post it became clearer. I call it breast brain. 

Christine 

Hi Grace

I read your post with great interest. One thing I would like to point out that,like breast cancer, some disabilities can not been seen and that not all people with disabilities require a carer. I suffer another chronic illness which Brest cancer certainly impacted on in a number of ways. If you would like to discuss any of this with me, please send me a message.

Regards, Karen