Support for people with disabilities affected by breast cancer

Graceda
Graceda Member Posts: 9
edited December 2015 in Community news and events

Today is International Day of People with Disability and we are excited to start the development of a strategy to support people with disabilities affected by breast cancer.

In 2016, BCNA will speak with people with disabilities affected by breast cancer and their carers to better understand their experiences. We want to learn more about the barriers and challenges people with disabilities face, as well as the things that improve access to information and support . This will help BCNA to better support, inform, represent and connect people with disabilities affected by breast cancer.

These conversations with our members, our research and discussions with other organisations will help us develop the strategy.

We want to hear from people with disabilities and carers.  If you would like to be involved in our consultation or provide feedback, please post here or contact Grace at gdaley@bcna.org.au or on 1800 500 258.

Grace Daley
Equity and Diversity Team

Comments

  • Cook65
    Cook65 Member Posts: 733 ✭
    edited December 2015

    Hi Grace

    I read your post with great interest. One thing I would like to point out that,like breast cancer, some disabilities can not been seen and that not all people with disabilities require a carer. I suffer another chronic illness which Brest cancer certainly impacted on in a number of ways. If you would like to discuss any of this with me, please send me a message.

    Regards, Karen 

  • iserbrown
    iserbrown Member Posts: 5,731 ✭
    edited December 2015

    Grace what a good initiative Just a giggle I obviously didn't have the right glasses on as I thought your heading said diabetes. As I started to read the post it became clearer. I call it breast brain. 

    Christine 

  • Graceda
    Graceda Member Posts: 9
    edited December 2015

    Hi Karen

    Thank you for your feedback. You are absolutely right, not all disabilities are visible, people have a range of disabilities and impairments. Similarly not everyone needs support or carers to help them access information and support. We will be talking to a range of people with a range of disabilities. We will also be speaking separately to carers to make sure we capture the experience of people who are carers to understand their needs and the challenges they face.

    Regards, Grace

  • Graceda
    Graceda Member Posts: 9
    edited December 2015

    Thanks Christine, we are very excited about exploring this and learning more about the experiences of people with disabilities.

    Your message made me giggle too. But you have highlighted the need for us to make sure we communicate clearly and that it's easy to read.

    Regards, Grace

  • Marnie28
    Marnie28 Member Posts: 2
    edited March 2016

    Hi Grace,

    I would really be interested in being a participant in helping you learn about the challenges I have experienced thus far in my breast cancer journey as a person with a physical disability (as well as other health issues, ie. an S.P.C.), I would also appreciate being put in touch with other people who have cerebral palsy to discuss their experiences.  I received my breast cancer diagnosis last month and thus far have not found a support group yet that fits my specific support needs.

    Regards,

    Marnie

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