First of all, thank you to all the women who have posted. This has been very helpful in understanding what is going on as general research has been scary so I am constantly uplifted by the stories I ...
Published 13 years ago
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Hey Deb
Thanks for reaching out, you are not alone through this cause we are here for you. I am not in Qld at all so I am no help in that department but i am here for a chat if you need.
I was like you in that I suffered a lot of pain and fatigue with little nausea. I was on very strong pain killers and pain patches to try and keep pain under control. I also suffered nerve pain. I had no choice but to rely on the pain medications to get me through at that time. I found I didn't go far from my bed or the couch through my whole chemo treatment, not cause I didn't want to but I just wasn't up for it. I used to get really frustrated and mentally beat myself up over it where as now I look back and wish I just accepted it and went with it. There is plenty of time for getting back to everything when you are well again.
It is such a shame you have had to move closer to hospitals. I also live 400klms north of Perth so I spent my time commuting either by car, transwa bus or plane to Perth for my treatments and then spent 7 weeks in accomodation in Perth for my radiotherapy. Hubby worked away so I did the majority of my treatment on my own. It is doable but it was tough so I do understand what you are going through.
Do you have family and friends close to you who can support you?, I certainly hope so. I am also hoping you are able to connect with further support now you are in Qld. Cancer Council should be able to put you in contact with someone but i hope there are girls on line here who can help.
Thinking of you and wishing you all the best of care and attention, I am here for a chat if you need me.
Lots of love, Mich xoxo