BCNA
and the Parliamentary Friends of Women's Health
are holding a panel discussion – Making Metastatic Breast Cancer Count – at
Parliament House, Canberra, 8-9am Thursday 3 August.
It’s...
Published 3 years ago
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Making Metastatic Breast Cancer Count - Parliamentary Friends of Women's Health panel discussion
A couple of ABC discussions (31/7/23) that those with Advanced Cancer may like to listen to ..... with the chance of free gene testing and clinical trials ...
What I would like to see happen as 'the norm':
I would like to see that ANYONE diagnosed with Stage 4 has the 'current' biopsy compared with the 'ORIGINAL' biopsy as an automatic process (if not diagnosed straight up as Stage 4) and it be made available to researchers to do comparisons to see EXACTLY what has changed in those 2 samples - to try & help determine WHY that person went on to Stage 4 - which may then help predict others in the future - those who are more likely to go Stage 4. If it is a gene thing, maybe they could be manipulated, to prevent that progression?
Currently, up to 30% of ALL of us diagnosed with BC, may go on to develop Stage 4 .... they still just don't know 'who', 'why' or 'when'. This research may assist in understanding the 'who', 'why' and 'when' .... and even possibly prevent it.
But, if there isn't a 'list' of those with Advanced Cancers ..... how do these gene tests/trials get to the people who NEED THEM?
https://www.abc.net.au/radionational/programs/healthreport/free-gene-analysis-for-advanced-or-rare-cancers/102668854
and
https://www.abc.net.au/radionational/programs/healthreport/metastatic-cancer-gene-analysis-initiative-isometric-exercise/102590088
Check out these recordings - and contact your Onc if you want to discuss the options xx
What I would like to see happen as 'the norm':
I would like to see that ANYONE diagnosed with Stage 4 has the 'current' biopsy compared with the 'ORIGINAL' biopsy as an automatic process (if not diagnosed straight up as Stage 4) and it be made available to researchers to do comparisons to see EXACTLY what has changed in those 2 samples - to try & help determine WHY that person went on to Stage 4 - which may then help predict others in the future - those who are more likely to go Stage 4. If it is a gene thing, maybe they could be manipulated, to prevent that progression?
Currently, up to 30% of ALL of us diagnosed with BC, may go on to develop Stage 4 .... they still just don't know 'who', 'why' or 'when'. This research may assist in understanding the 'who', 'why' and 'when' .... and even possibly prevent it.
But, if there isn't a 'list' of those with Advanced Cancers ..... how do these gene tests/trials get to the people who NEED THEM?
https://www.abc.net.au/radionational/programs/healthreport/free-gene-analysis-for-advanced-or-rare-cancers/102668854
and
https://www.abc.net.au/radionational/programs/healthreport/metastatic-cancer-gene-analysis-initiative-isometric-exercise/102590088
Check out these recordings - and contact your Onc if you want to discuss the options xx
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