I understand exactly where you are coming from. I just posted on my blog about my sadness at all the young lovelies with this terrible disease and wouldn't it be great if all the millions spent in the world on sports prizes and movie stars and millionaires gold plated bathrooms could instead be put into research (and free treatment for that matter to save lives) to find a cure - wouldn't that be something ?
I have no idea where we are going to be in a year's time financially. We'll just have to see. We'll do what we have to do to get me well again. We are luckier than some.
I will continue to contribute in whatever way I can to help with research and support for others struggling with this monster.
love and good wishes
Keitha