Friday Update - 10th March 2023

Thanks. I can vouch it is good quality info and organisation suitable to share. As a 12+ yr lymphie myself  and 16 yr breast cancer survivor who runs a support group with the local breast care nurses ever since my own expereinces. I was wondering where to put it to try and reach people. I started going to these annual info days many years ago as the st george public hospital  physio who i used to see was one of the main committee members who organised it.Best  thing i ever did to motivate me to look after my lymphoedema better.The Lymphoedmea Aust  Association  have no big budget for marketing,its all volunteers. It is such a struggle reach people with lyphoedema,so many don't even know they have it ,let alone make them realise  they need to learn more for their own sake to slow the progression of the disease, not just put on a sleeve and ignore it.They only had less than 100  sign up online last year, such a shame, it cost a lot to hire a company to live stream it.They are also trying to aim at doctors too- we really need them to upskill. I have tried to contact associations like nursing,physios, massage therapists as well. I know the BCNA ask the expert webinar on lymphoedea had huge numbers register ( that was a great one , as all all the others i often recommend to my support group ladies,so good having the pre lymphie one too as a resource ) .I really appreciate anything for a last push before the even ton saturday .I sadly don't know when registrations close as i am not involved it in.Just trying to help spread the word for them. But hopefully open up until it starts.Thanks again.