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Australian women denied knowledge of their increased breast cancer risk

Mez_BCNA's avatar
Mez_BCNA
Community Manager
4 months ago
Approximately 10% of women have high breast density. At this point in time, thousands of Australian women are being denied important information about their breast health which could empower them to better understand and manage their risk of breast cancer.

BCNA’s Director of Policy, Advocacy and Support Services, Vicki Durston, says Australia’s approach to population-based screening is not keeping pace with growing evidence that supports routine reporting of breast density. This due to the absence of national reporting standards and a lack of software in publicly funded screening services that can effectively measure breast density.

“Every woman has the right to know and understand her breast cancer risk through standardised breast density reporting,” she says. “For those identified as high-risk or with high breast density, it is essential that clear options and pathways are available to support early detection and proactive risk management.”

Breast Cancer Network Australia (BCNA) is currently advocating for a unified national approach to reporting breast density through Australia's national population-based breast screening program – BreastScreen.

Mammography images showing the difference between spotting cancer in a fatty breast (top) vs dense breast (bottom). It's like "spotting a snowman in a snow storm".

You can read BCNA's media release via the link Australian women denied knowledge of their increased breast cancer risk

Read ABC's feature piece on our advocacy efforts: Mandatory breast density reporting

 
Published 4 months ago
Version 1.0

19 Comments

  • Wouldn't it be amazing if there was a blood test that provided early detection of breast cancer? That could drastically solve the breast density problem. Is there anyone close to developing something like this? 
  • The way I see it, @Afraser  is that most women aren't even aware of their breast density at all, let alone the added risks of having dense breast tissue, until after they've already been diagnosed & had surgery.   

    I was one of them - a passing comment by my surgeon made me aware of it, post op - but I was never aware of any added risk.  I found out about that info here, on the forum.

    This advocacy, if it reaches enough younger women (or the older women make sure they are aware of it) will hopefully (if BSNSW doesn't start advising their clients soon) then know to ask about it.

    Maybe we should do a poll to ask members with/without dense breast tissue

    1) Did you know you had dense breast tissue prior to diagnosis/surgery but not told of the risks it entailed?

    2) Did you know you had dense breast tissue prior to diagnosis/surgery and was told of the risks it entailed?

    3) Did you NOT know you had dense breast tissue prior to diagnosis/surgery & unaware of any risk.

    4) You were diagnosed with ILC and your mammogram missed it due to dense breast tissue.

    5) You know that you don't have dense breast tissue.
    • Minka's avatar
      Minka
      Member

      1) Did you know you had dense breast tissue prior to diagnosis/surgery but not told of the risks it entailed? Not told despite prior mammogram.

      2) Did you know you had dense breast tissue prior to diagnosis/surgery and wastold of the risks it entailed? No

      3) Did you NOT know you had dense breast tissue prior to diagnosis/surgery & unaware of any risk. Yes

      4) You were diagnosed with ILC and your mammogram missed it due to dense breast tissue. Yes ILC - missed in first mammogram.

      5) You know that you don't have dense breast tissue. N/A

  • I am all for the advocacy but isn’t this also a major communication issue? Dense breasts and difficulties in detection have been known for a long time now, so perhaps it needs a more overt awareness campaign. It’s still possible to read stories of women with unusual breast issues who nevertheless wait for months before seeking medical
    help. COVID hasn’t helped, we know, but neither does the anti vaccine/ anti radiation/anti science wave we are dealing with, especially for younger women getting their information from social media. 
    • Minka's avatar
      Minka
      Member

      I’d had a mammogram at 50 and not been told I had dense breasts or had extra screening recommended after. From my perspective you can’t advocate for yourself unless you know this information so this action is critical.

  • Thanks for advocating. I was fortunate to have a gp who sent me for a mammogram at 40. She told me I needed a mammogram and ultrasound every year because I had dense breasts. It was because of this yearly mammogram and ultrasound my early breast cancer was diagnosed. Keep pushing BCNA
  • @BCNA Thanks for advocating! I had known for some time I had dense breast tissue but didn't understand anything about it until after my bilateral mastectomy when pathology tests showed a second lot of cancer that wasn't picked up in the screening due to the extent of dense tissue. I've since been trying to learn more about dense breasts & if it's hereditary etc. BCNA, thanks for bringing this to our attention 
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