Triple negative and menopause
Hi all, it’s been a while since I’ve visited this site, I have my 3rd year post treatment check up coming up in a few weeks, so far all clear 😁 I was wondering if any of you chemo induced menopausal women have any advice on skin care. I feel like my skin is ageing at a rapid rate. I’ve been taking silica, tried many lotions but nothing is helping. I’ve been told to be weary of taking collagen due to the lack of studies of its affect on TNBC. Any advice will be appreciated xxx111Views1like4Commentsstomach always upset
Hi, I was recently diagosed with a triple neg stage 3 cancer. Successfully removed with clear margins, but pathology showed, particularly aggressive. Just had first 2 chemo treatments of doxyrubicin/cyclophosphamide, having 4 fortnightly sessions, followed by 12 weekly sessions of paclitaxel. Then 3 months of radiation therapy. Finding that I have a multitude of side effects, but the one that is causing me the most trouble is my stomach. I take a daily pantoproprazole tab for reflux, and often an anti nausea tab as well. I find that I either have no appetite because my stomach just feels gross all the time, or I am then starving, and feel like my stomach is eating itself. I try to eat small amounts frequently, but the symptoms never let up. I've tried various foods, but wondering if anyone has found anything in particular to ease that "unwell" feeling. I have read so much contradicting information about what to eat and what to avoid, that my head is in a spin.372Views0likes11CommentsDiet changes for tnbc
Evening! I have been doing some research into changes in diet to help keep tnbc at bay, but would love to know what you guys have implemented. I know karma/fate may ultimately have other ideas but I am in a good head space and want to kick this f***** to touch if I can and get a lot healthier. Thanks to taxol and steroids I am also quite a bit overweight and currently partway through rads with Capecitabine to follow, so I know medically I am doing all I can. thanks x211Views1like10CommentsAnother year done!
Hi All, This week I got the results of my second year mammogram n ultrasound after triple negative BC. It's all good so on with the next 6months and MRI in December. It was such a relief to hear the words that all was ok. Hubby and I then went out for a nice lunch to celebrate. Just thought I would share the good news with you all as you have always given me loads of support. Another piece of good news is I have got myself a new job horrary!! It's casual but that's fine with me and the hours are a lot better than the last one defiantly only 6 hours a day. So this week has been a good one all round for me. Thanks for listening and hope you all have a good weekend. Take care 🤗💕191Views0likes6CommentsTNBC reducing risk through removal of ovaries, fallopian tubes and uterus-anyone else advised this?
TNBC July 2017-partial mastectomy, chemo & rads. I spoke with the oncologist and surgeon about having a bilateral mastectomy to reduce my risk of recurrence. I trust both of these medical specialists but I am trying to work out whats best to do. I know of women who have chosen to have bilateral mastectomy but only a few who have had ovaries etc removed. They both stated that removal of ovaries and fallopian tubes was more advisable to reduce risk of recurrence. Has anyone else been advised this and gone through with this? My dilemma is should I do the lot-removal of ovaries, fallopian tubes, uterus and bilateral mastectomy (I had partial mastectomy). The thought of it is overwhelming to say the least. I am really interested to hear what others have been advised or where to go for the most current treatment options following TNBC and reducing the risk of recurrence.71Views0likes3CommentsTreatment, hysterectomy, mastectomy, and now an emotional mess!
Hi everyone, I had had my last chemo on Jan 11th for triple neg BC. I have BRCA1 and in the last 6 weeks since finishing treatment I have had a full hysterectomy with uterus & ovaries removed 3 weeks after chemo and then a double mastectomy 3 weeks after the hysterectomy. I have been doing pretty well throughout my journey with the odd day here and there where I’m teary but now I feel down & flat every day and I keep crying but for no reason. I’m not normally a cryer in normal circumstances so it’s hard. I am still in a bit of pain and very uncomfortable with the expanders and am not allowed to drive or exercise so I am housebound by myself all day and I feel like I need a purpose but at the same time I feel so flat and unmotivated I don’t want to do much anyway. I just cry on and off and have bloody hot flashes! Last week I had a panic attack thinking about recurrence. Sitting around with my mind is obviously not a good thing. Throughout treatment I couldn’t wait to get back to normal and “live every moment” etc and now I feel like this. What is wrong with me??? I had another lump prior to mastectomy which ended up being benign so all my pathology was clear. I should be celebrating that all is good and I’m cancer free and sometimes I am feeling really up beat but then other times I’m a mess or just flat. Has anyone ever felt like this and if so do you have any suggestions? Sorry for the novel. Thankyou x331Views0likes21CommentsStarting Chemo in two weeks
Hi Everyone, I go into hospital tomorrow to remove a triple negative tumor and lymph nodes in my right breast. Very devastated as I thought I had this. In Feb 2015 I had a double Mastectomy due to large amount of DCIS on right side. At that time I thought I was being a bit drastic but I just wanted it gone. After 2 weeks in hospital I ended up with a blood clot in my right calf and the next 6 months were stockings and tablets, lucky it was during winter. In July 15 I had my spacers out and implants in . 4 weeks later I got an infection in my left breast and had to have the implant removed on a Monday night and a new implant back in 4 days later. March 2016 i found a lump in my right breast at 6 o'clock. I had it removed and it turned out to be Estogen + and since then I have been on Anastrozole. Because of my paranoia, I scheduled regular 3 monthly ultrasounds. In June the report came back that one of my lymph nodes was a little enlarged and to monitor it. 3 months later in September I had another ultrasound and another lump was found , this time triple negative! I am having surgery tomorrow and then onto chemo in a couple of weeks and probably radiation after that. I think it depends on the results of the pathology after surgery. I think my Chemo start off with 1 treatment every 3 weeks for 6 to 8 treatments then I don't know what from there. I cannot believe all this has happened. i have been a member since 2015 but I never really went on the site, I have been busy getting fit, trying to counteract my bones getting weaker from the drugs i'm taking and trying very hard to be good and maybe wanting to forget everything, but from now on I'm in and I will be a regular viewer as i really do need information and support now. I have read some stories tonight and have been enlightened to what is ahead of me. thank you121Views1like8Comments