Lymphoedema Information Day
Registration has just been extended until 13th March Come along to Tamworth for the Regional Lymphoedema Information Day on Saturday 21st March. To attend this wonderful day of learning about lymphoedema, the best practice to treat and manage this condition, latest research, and opportunity to see and talk to our sponsors about their lymphoedema products! 7.30-10 am Session for medical and health care professionals only 10am -4.30 pm Sessions for public-everyone consumers ,medical and health care professionals https://www.lymphoedemasupport.com/upcoming-events/information-day-2020 Send your registration form in by 13th March Go to www.lymphoedemasupport.com and follow the links to register. Don't miss out! Please go to the Lymphoedema Support Group of NSW Facebook page and like and share their posts. This conference is priceless opportunity for anyone who has had breast cancer surgery, or who cares for people who have had bc surgery . (family or service industry) or other cancers especially head and neck, genital /urinary/gynaecological , melanoma,. Gp's,physios, occupational therapists, massage therapists, podiatrists,- lots of people who could benefit from top notch advice to be able to help the estimated 40,000+ people living with lymphoedemea in Australia & New Zealand You can also be born with lymphoedema or a predispostion to it , or it can result from an injury, can be a side effects from many other diseases also . Not restricted to breast cancer . Up to 20% of all breast,ovarian and prostrate cancer survivors develop lymphoedema. Early treatment leads to better outcomes. It is essential for patients to have education and adequate support to ensure compliance and self care to reduce the impact of this chronic condition and reduce associated complications due to inadequate self management of lymphoedema.401Views0likes41Comments'Understanding and Managing Pain with Metastatic Breast Cancer' Interactive Digital Event
Have you registered for tomorrow night's 'Ask the Expert' online event? Living with a metastatic breast cancer diagnosis can mean needing to manage pain. This can have both a physical and emotional impact. Through discussion with your treating team, there may be ways pain can be managed to help maintain quality of life. BCNA is hosting a webcast: Ask the Expert: Understanding and managing pain with metastatic breast cancer on Thursday 13 July 2023. You will hear from Dr. Belinda Yeo, Medical Oncologist. Dr. Yeo is jointly appointed to the Austin Hospital as a medical oncologist and Olivia Newtown-John Cancer Research Institute as a clinician scientist, located in Melbourne. She is also co-lead of the VCCC Research and Education Stream for breast cancer. This webcast will aim to increase knowledge about different types of pain and tips to assist in explaining your type of pain to your treating team. It will also include information about current therapies, and strategies to help maintain quality of life when living with pain associated with metastatic breast cancer. REGISTER VIA LINK https://kapara.rdbk.com.au/landers/bc22ce.html101Views0likes7CommentsUpcoming event: Warrnambool Information Forum, 28 March
Breast Cancer Network Australia is holding an Information Forum for people living with breast cancer and their supporters. The forum will cover a range of topics including the latest in breast cancer treatment, strategies to enhance physical and emotional wellbeing, lymphoedema, and how you can live well during treatment and beyond. It will also be an opportunity to hear about what BCNA does and the services and resources we have available, alongside hearing from the local community groups and BCNA members who will share their experiences on a panel. Guest speakers will include Oncology Social Worker Carrie Lethborg, Breast Care Nurse Rebecca Hay, BCNA member Katie Monigatti, Specialised Lymphoedema Physiotherapist Alicia Boyd and a virtual presentation from Lymphologist Professor Neil Piller. For more information about the day and to register, please visit the BCNA website: https://www.bcna.org.au/news-events/events/information-forums/warrnambool-information-forum/41Views0likes1CommentAnnabel Crabb and Side effects of Treatment (Online Q&A) Feb 23rd 5-6pm
Click on the link at the bottom, to 'sign up' for the Q&A event ..... Everyone’s breast cancer experience is different, including the impact of treatment. Some people may experience few or mild side effects, while others may have long-lasting issues that continue after treatment has finished. Breast cancer treatments aim to destroy cancer cells and treatments may include chemotherapy, radiation, hormone therapy, surgery, immunotherapy and targeted therapies. While there are many benefits to having treatment – namely saving lives – some treatments don’t just affect cancer cells but may also affect healthy cells too. Side effects from treatment can vary greatly and can be influenced by type of breast cancer, the location of the disease, age and different types of treatment. Common side effects may include: fatigue, hair loss, joint pain, skin and nail problems, menopausal symptoms, lymphedema, weight loss or gain, poor appetite and diarrhoea. In addition, breast cancer treatment can also affect a patient’s mental health, their relationships, their ability to work, to look after children and to function in their day-to-day life. It’s unlikely that those diagnosed with breast cancer will experience many or all of these side effects. But quality of life, support and survivorship care are important areas of discussion in the treatment of this disease. In our next free and online Q&A, we explore research that’s aimed at improving treatments that have less side effects, strategies to manage side effects both during and after treatment, and we’ll hear personal stories and advice from those who have a breast cancer experience. https://www.breastcancertrials.org.au/news/qa-events/qa-the-side-effects-of-treatment/652Views1like8CommentsLived Experience Panel: Rockhampton Information Forum
Hi All, We recently created a video snippet of our lived experience panel from BCNA's Rockhampton forum for the Online Network. The video captures key discussion topics: 'Side Effects, 'Communication', 'Sexual health' and 'What I learnt'. Hope you enjoy hearing from BCNA members Michelle Peters and Tracey Barlett. https://www.youtube.com/watch?v=ETf1voZymcc71Views1like0CommentsDid you miss the Webcast: Managing long-term side effects of breast cancer treatment?
Hi all, If you missed the webcast on Tuesday night, you can now watch on-demand via the following link https://kapara.rdbk.com.au/landers/73f44c.html The webcast was well received and a topic that is relevant to many people navigating the side effects of breast. This webcast addressed common long-term side effects of breast cancer treatment and how you can manage them, explain why ongoing support and follow-up care is important, explore the role of survivorship care plans and why you might need one, and let you know about support and resources available to you. Registrations exceeded 3,000 and more than 1,000 people watched the webcast live. We welcome feedback from those who have already watched the session.231Views1like6Comments3rd generation chemotherapy drugs
Hi everybody Well this is my very first post now that I have come to terms with my diagnosis. Even though it seems like such a long time ago it was only 4 weeks ago that I was diagnosed with a grade 3 invasive ductal carcinoma after finding a lump in my breast. I am 44yrs old so right up until the pathology results I kept believing it would just be a 3.5cm benign lump. No such luck. I had my first meeting with oncologist last Wednesday and she has recommend I commence on 3rd generation chemotherapy drugs (docetaxel, doxorubicin, cyclophosphamide) on the 1st day and pegfilgrastim on the 2nd day. I am to have 6 courses of this every 3 weeks and then have 6 weeks of radiation. Has anyone else been on these 3rd generation drugs as I woud appreciate your input on how you found these drugs. My oncologist has told me these are the drugs I most likely to get most side effects from. I wasn't worried about surgery or pain but the idea of what chemotherapy will do to my body scares me. I do plan to keep working even though I've been told this will be unrealistic. Anyway its great that a group exists for this breast cancer and I look forward to being a part of it. Theresa892Views0likes6CommentsHome At Last
Hi Girlies, finally home after being in hospital all week with neutrpenia. Felt like a bit of a fraud to be honest as I physically felt fine but my neutrophil levels were very low. I intially went to my gp last Saturday with sore a throat & was prescribed antibiotics for tonsillitis. Went back on the Monday for a follow up and my throat really wasn't improving.My gp rang me that evening & advised me to go to hospital. Iv been there all week but im now home. Meant to have my 2nd chemo on wed but may have to postpone it a week if my levels are too low. I just want it all over and done with, the sooner the better. My hair is also coming out in large clumps now my scalp is so frigging itchy but tomorrow is operation GI Gillian and meet my new friend Amanda (my wig :) ). I'll be sure to introduce you all to her soon :) xxxx2Views0likes3CommentsThinking of you all
Hi girls I'm really sorry I couldn't be there for the Summit but as most of you know - Dad passed and I'm organising the funeral presently. I really hope you had a great time getting together...I'm totally spewing I couldn't be there but even without this sadness my health wasn't good enough to go. I have been to St Vincent's again about this Sweets Condition and now I'm on yet another different tablet (and taken off another), given steriod injections/cream and have to go back in two weeks to see if it's improved. I'm literally covered in a pimply type rash that becomes blisters after a couple of days, then gets infected and bleeds...it's terrible and will look terrible for the funeral. However the steriod cream is clearing it a bit so I should be able to wear thick tights and a dress without ppl seeing the terrible marks all over my legs atm.... Its funny you know but I haven't cried for my Dad yet....I just don't understand why. Perhaps it's because of all the organising, or perhaps because a few weeks earlier I cried buckets loads at my god-sons funeral (the one that died in the car accident - there's only about 9 weeks between the two funerals) I don't know but I do wonder when this will really hit me as I simply adored my dad. I want to cry but it's just not happening....has anyone had that happen to them? Anyway I'm going off subject here....mainly wanted to send a message to you all saying despite being so busy I have been thinking of you all and wishing I was with you. Apparently this is a bi-annual event so I hope I will be at the next one in 2015 and I hope all of you will be too so we can finally see each other again. Anyway must go but all the best to everyone and take care. Luv H1View0likes3CommentsOnline group
Hi Daina, I am so pleased that I was approached to join such a wonderful group. My journey like a lot of others has been 12mths in duration. I was diagnosed last March, had a lumpectomy in April followed by Chemo & Radiation therapy which ended 28 November. Unfortunately my treatment did not go smoothly after having a reaction to the Chemo I developed 'Sweets Syndrome' - it took 5 days for Dr's to guess what it was & then receiving confirmation another 5 days on - only treatment was steroids, was hospitalised for 2 weeks to be discharged on oral steroids only to have another reaction (at this stage was so over it) but as ever everyone around me keep my spirits up but was extremely hard at times especially when your husband of 34 years walked past me as he did not recognise me (that was really hard to take). Never mind that is all in the past now - I need to have an aspiration procedure next week to alleviate pain that I am still experiencing. All the literature that you receive seems so overwhelming in the beginning but was a massive comfort when something happened. I am not a vain person but I lost my hair 2 weeks into treatment & it is one thing to be told it will happen but the reality of it actually happening was hard to deal with - now have a full head of 'wavy' hair which I did not have before.1View0likes2Comments