ER/PR+ HER2- invasive lobular
I’m a 47 yr old mum of one 6 yr old. I received my ER/PR+ HER2- invasive lobular cancer diagnosis this week. Due to strong family history (mum passed away at 62 in 2012 with triple negative BC- and her mother also passed away at similar age from BC type unknown as it was late 1970s) - my sister and I had started the process of having additional screening etc. My mammogram and Ultrasound in Jan this year was clear - MRI last month showed something- which following a core biopsy has revealed 3mm ER/PR+ HER2- invasive lobular cancer. As I was already under care of private breast surgeon due to wanting extra screening etc- I feel grateful to have already talked to her about surgery options and possible surgery week of 12th January. I went for genetic testing this week and now wait to see results. Am weighing up option of double mastectomy(and reconstruction) - though surgeon has advised its very early and very small so lumpectomy and sentinel node surgery is a very feasible option too. Followed by radiation therapy and tamoxifen. If I chose a mastectomy it may reduce my need for radiation and tamoxifen.
DCIS, DMX reconstruction new diagnosis
Recently diagnosed DCIS Stage 0. Opting for DMX and reconstruction using my tummy fat same day…. Videos and some social media groups are TBH quite confronting and disturbing. I would rather know but….. Reading and hearing how awful the recovery is, pain, discomfort, loss of movement and after some helpful tips to prepare please: particularly diet, did you change your diet pre surgery? High protein to help with recovery? Can you recommend a website or recipe site? Things post surgery: hire a recliner to rest in, did you hire a wedge or breast pillow as well? Button up shirts and pjs, anything else that you found useful please? I’ve heard about the drains which sound daunting… what do i need to do with them? Toileting and cleaning myself… I hear you can’t put your arm around your back to wipe? I’ve got wet wipes but …. Don’t want to ask my partner to wipe my bum? Diet after surgery to avoid constipation. Any tips would be greatly appreciated thank you so so much.
Post surgery Rehab options
Hi all, hope you all are doing fine. I wanted to share my experience in y BC journey and also want to get some expert advice/ help if you have been thru this already. I was diagnosed with a stage 3 Triple positive BC last July. Since then I have been going through Chemotherapy and targeted therapy as advised my Breat surgeon and Oncologist. I recently completed my 6th cycle of Chemo and have my surgery scheduled this Saturday on. 6Dec. I will need to undergo full Mastectomy on my left. This will be followed by immediate reconstruction- will be a lengthy process I have been told. While understandably we are all nervous , I am also hopeful that I have been thru half of my battle. I am also a mother of two, and younger one is only 2.5 years old. I am also really anxious about the post surgery situation. My Doctor has told that I should not be taking stairs post surgery after I go back home. Given that I have little kids at home and none of our bedrooms are at downstairs, I am really keen to see if I can stay at a Rehab after I am released from the hospital. This would allow me to heal for few more days and would not endanger myself with the little one ( she jumps on to my lap anytime she wants). That would also help my husband who is my only carer at this stage. Love to get some ideas and advice how can I avail the Rehab facilities. I was also told by my Insurance provider that I have restrictive coverage for Rehab. I am in a tricky situation ( and am sure many of you are ) and wanting see what support can I get at this very difficult time. Many thanks and wish me luck!DCIS - Mastectomy - Recon - clear for two years....now potentially something else
My situation in a brief paragraph: At 50 years of age, I was diagnosed with DCIS in my left breast. I opted for a bilateral mastectomy and recon. Sentinel nodes were clear. No radio or chemo required. That was almost two years ago. Apart from now suffering all the typical effects and symptoms of menopause due to no HRT, I've been blessed with a dream run and fantastic road to full recovery from BC. Completely grateful and thankful for the team and support I've had around me. The latest situation is that I've just been for my second annual post BC ultrasound with a view to reducing visits with my surgeon from three monthly to annually. I was looking forward to kissing cancer goodbye!! However, the sonographer has found an inflamed and vascular looking lymph node in my right armpit (opposite side to original BC diagnosis). It was explained to me that this can be due to a number of reasons: fighting off an infection, breathing in smoke, recent flu vaccinations or, at worst, something more sinister like cancer. My surgeon reviewed this and wants another ultrasound in three months to check on it and if need be, will biopsy then....I have a sick feeling about this. Since I don't feel like I'm fighting an infection, I haven't breathed in smoke lately & my flu vax was done 10 weeks ago in the opposite arm .... I am feeling extremely anxious that cancer has returned and that it's found a spot in my right armpit to grow and spread. A three month wait to see if this is or isn't the case seems like absolute torture and a return to 'the waiting game' that only cancer sufferers know. I'm sure that most of you reading this post can relate to the worry of 'the wait' when you have that initial cancer diagnosis. The awful feeling of being out of control and the unknown picture of what's up ahead. Sleeplessness has returned. Constantly thinking about it has returned. The worry has returned. I have back and neck pain that I'm sure is due to the stress, but am naturally concerned it's cancer returned. Since my mastectomy and recon, I've been able to put all of that aside - until now. Has anyone here experienced a vascular anomaly with their lymph nodes post having BC and recon? If so, what was it attributed to? How was it handled by your team? Should I be asking for a lymph biopsy or intervention earlier than waiting three months or am I worrying unnecessarily? I'd be grateful for any thoughts, honest advice or similar experiences & decisions that anyone can offer.Private or Public?
Hi everyone, I'm a newly diagnosed in my late 30's. my cancer is invasive grade 1 in one breast. I have private health insurance but the out of pocket costs of the plastic surgeon and aneastetic would be around 14k which is a big figure for me. I'm told if I go private, I can have the surgery as soon as 2 weeks but the puclic system may take upto 6 week. my question is how urgent is the surgery, will a month difference matter? Also I'm choosing to do a double mastectomy to reduce the risk of cancer in my other breast. I'm slim and don't have much fat for reconstruction, implant would be the best solution forward for me. Has people who have gone with implant reconstruction in public system been happy with the result? how does the after treatments look for them? Any public hospital that you recommend in Victoria for the surgery and reconstruction? will the result of the reconstruction be any different if I'm in public vs private? I will be staying upto 3 days in the hospital due to implant reconstruction so really having a shared or private room is not a big factor here. Can anyone who has gone through this privately or publically contact me please?
Gah. Back again.
Almost seven years ago I roller-skated through Olivia Newton John hospital to Xanadu for my last radiotherapy session, post lumpectomy. Here I am again... another oestrogen positive cancer, same stoopid dense breast. It was picked up on MRI as it couldn't be seen through my milky dense breast tissue and after an MRI biopsy (such fun!!!) I was diagnosed last week. So now I'm up for a double mastectomy and trying to make reconstruction decisions. I'm thinking I may need to go the Johnny Diep Flap. Seeing the plastic surgeon tomorrow. Really glad you're here....
First anniversary
I am new to this group... can't beleive it has taken me 12months to find this platform. Possibly wasn't really looking. I was diagnosed with Invasive Duct Carcinoma (no special type) Grade 3, Hormone + HER2 - on the 1st of Nov 2022. I have had a lumpectomy, chemo, radiation, currently taking anastozole 1mg & a hystorectomy. No breast cancer or any cancer (except my sister) on either side of my family. I chose to do a gene test to see if there was genetic link between my younger sister's sarcoma diagnosis 8 years ago & my BC. Curiosity killed the cat and I have the BRCA 2 gene mutation. Unfortunately so does my sister. They are suggesting a bilateral mastectomy. I am unsure whether I should go flat or have reconstruction. I would love to hear how people have made this decision and how their surgeries went. Thank you for reading.
Bilateral Breast Cancer
I was diagnosed with bilateral breast cancer in late September and am scheduled to have a double mastectomy and reconstruction in mid November. Still trying to get my head around it all - it is becoming more real. I have been trying to hold onto my normal for the last few weeks - work and life in general - this is proving more challenging as the days go by. I went to give blood on the weekend - I guess I am not too surprised that I was not able to - in addition to learning that I wont be able to this again until 5 years post the end of treatment. My most recent mammogram (18 months ago) was clear and I was doing doing all the recommended things - go to drs if you notice any change in your breasts. I went to the Drs with what I thought was a breast cyst - having previously had these - and got a referral for an ultrasound. Went to ultrasound appt on the Friday - for what I thought would be 30 mins at most with a possible drainage of the cyst. Not so - 2 hours and 3 biopsies later I left the clinic. Tried not to focus too much on it all over the weekend - however first thing Monday morning I have a call from my GP - and an appt made for the afternoon....it has been a whirlwind for sure.
Unexpected new adventure
This so wasn't what I was expecting at 58. This year has been full of health issues. Thought I was done. Then my boobs go "hold my beer"! Process to diagnosis full of snafus. Up to and including finding out during a phone consult :( Early stage BC. Lump I found in one, became cancer in both. PET scan clear elsewhere. HER2+ in one - in the other. Only relatively small, but seems big to me. That was 2 weeks ago. Glad the initial shock has passed, and the denial. Still doesn't always feel real though. I now have a surgeon and a date - Oct 5. Feels good to have an expert to leave the first big step with. Still lots to learn and digest. I know I want reconstruction, but not totally sure on what kind. Already appreciating the people and resources here 💜 Thank you (the 'adventure' reference is how my husband and I label events in our life/relationship)
