Any suggestions /tips for preparing for surgery and heading home
Hi there, I will be having surgery in a week - lumpectomy and breast reduction in the other breast. I am trying to prepare what I can for not only the surgery but my return home. I have 2 primary age kids who are full of beans and 2 big dogs who love to be lap dogs. I am thinking maybe I need to create a quiet space in my bedroom and get an arm chair? Any other tips would be very much appreciated. I am also in the process of about to apply for income protection - it is a 90 day wait. Any suggestions with this would also be helpful.209ViewsSign in to react to this post2CommentsClothing
I’m having a double mastectomy in 2 weeks I live 4 hrs from the hospital so was wondering what other Ladies did as far as day wear. Did you just stay in pyjamas or get dressed each day. I will be there for about 5/7 days. Any tips as what to take or not take would b appreciated. I am going to Epworth freemasons in east Melbourne.381ViewsSign in to react to this post8Comments
"Can Assist" - Cancer Assistance Network, NSW - re accommodation, advocacy, assistance & resources
Can Assist has numerous branches around rural NSW and have a great list of resources that are available to Cancer Patients in NSW ..... over and above the ones that you already know about! https://canassist.org.au/cancer-assistance/#community They can also provide practical financial assistance too - and helped us out last year when my husband was diagnosed as Stage 4 - even paying a Council Rates bill on our behalf and giving us a Petrol Voucher and Grocery Voucher. https://canassist.org.au/cancer-assistance/ They are always canvassing the NSW Gov to improve (by reducing) the amount of paperwork required with completing & returning the IPTAAS forms (Isolated Patients Transport & Accommodation Assistance Scheme) whereby travel and accommodation can be partially reimbursed - if you've been knocked back on transport or accommodation reimbursement for any reason - they'd like to hear from you. They are advocating for more support for rural cancer patients in many submissions to the Govt ... with increased reimbursement rates and decreased paperwork ie, that IPTAAS referral should last as long as the illness (not requiring new IPTAAS referrals every 2 years) and reducing the number of signatures for a single appointment (sometimes up to 6!). eg there is NO NEED for a GP to sign off on a referral from your Cancer Specialist ..... as, apart from anything else - it is throwing money away (yours and/or the Gov if bulk billed) and it effectively reduces the amount you receive from IPTAAS, as you've had to 'pay out' to get it! RIDICULOUS! https://canassist.org.au/about-us/advocacy/ Jump onto these links above & see just what they are all about .... and what resources are available to us, here in NSW.333ViewsSign in to react to this post8Comments
Finding ways to support my Indonesian fiancé - I’m a fast learner.
Hello everyone, I’m looking for some guidance and help. I’m still learning the terms. My fiancé and I met earlier this year online. We were planning on an engagement and first time to meet in person mid-May in Indonesia where she lives. I am in Australia, a citizen by birth. we’re both in our mid-30s. Three days ago we were diagnosed with breast cancer, after urging her to get a mammogram for ongoing breast pain and a reduction in size in one breast. The doctor didn’t perform a biopsy to send a sample of her lump to pathology, they just told her she has it. Her church community have told her to fly to Singapore to get an accurate diagnosis and treatment. I don’t know where to start; I’ve been following the literature from BCNA on taking it one day at a time, not to use ‘Dr. Google’,and to let her take the lead in the kind of help she wants from me, but also to educate her on medical truths that are simply not taught to people there. I wish I could fly her to Australia to receive the help we have access to here, perhaps I can but I don’t know where to start looking. Can anyone relate?209ViewsSign in to react to this post2Comments
COV-19 and shopping
Hello! I have stage 4 breast cancer with spinal mets. I am on Ribociclib (600mg)/Letrozole/Denosumab. I am currently self isolating as the medication means I am at risk. I just found out you can register for home deliveries from Woolworths as an at risk person. Here is the link to register: https://www.woolworths.com.au/shop/discover/priorityassistance? It says it will take 48 hours for them to contact me but I thought it might be handy if you are in a similar position to register early. Stay safe everyone! 😃604ViewsSign in to react to this post13Comments
What little nice surprises have you had along the way?
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