6 weeks after surgery
Hello everyone its been awhile since I was active here . I’ve had a lot happen in the past few months after my diagnosis. Lumpectomy at end of August. During the operation the nipple lost blood supply. Over the next two weeks, the Drs tried to save it but couldn’t. So I had another operation on 18th Sept to remove nipple. Then, this past weekend, yet another operation because there was necrotic tissue preventing healing. So I’ve had the tissue removed & lots of stitches. Today a checkup & my surgeon said there was a lot of dead tissue when they sewed me up & has suggested a mastectomy of left breast. To stop further degradation of breast tissue. I’m actually ok with that decision. What I’m confused about are all the options. Reconstruction of the breast using tissue/skin from my tummy or back or to stay flat. But not sure about having one breast. I’m not a candidate for implants. (I’m 68) I have decided that I won’t take aromatase inhibitors nor do radiation (that’s my personal choice) Thanks it’s been quite the journey!Predict - Breast Cancer app
I’ve just discovered an app called ‘Predict - Breast Cancer’. I may be late to the party on this one and you might all know about it but I’d like to know your opinions if you’ve used it and if you’ve discussed it with your oncologists. It strongly recommends that patients use this tool in consultation with their doctor. The app’s blurb says: “This tool applies to women who have had surgery for early invasive breast cancer and are deciding which other treatments to have.” ”Predict is a tool that helps show how breast cancer treatments after surgery might improve survival rates. Once details about the patient and their cancer have been entered, the tool will show how different treatments would be expected to improve survival rates up to 15 years after diagnosis. This is based on data from similar women in the past. It is important to note that these treatments have side effects which should also be considered when deciding on a treatment.” It claims: ”Development of the model was a collaborative project between the Cambridge Breast Unit, University of Cambridge Department of Oncology and the UK's Eastern Cancer Information and Registration Centre (ECRIC) (now part of the National Cancer Registration and Analysis Service) and was supported by an unrestricted educational grant from Pfizer Limited (the company had no input into the model at all). The website has been built by the Winton Centre for Risk & Evidence Communication at the University of Cambridge who are funded by a generous donation from the David and Claudia Harding Foundation and the Winton Charitable Foundation. Predict has been endorsed by the American Joint Committee on Cancer.” This is a link to the app: https://breast.v3.predict.cam/tool
Best Bra's post surgery
Hi. So I had a Left Mastectomy 3 weeks ago now. My breasts are DD. So it's hard to not wear a bra as my remaining boob is too big. So I have to wear something. It's been difficult as under my arm is SO sore. I didn't have lymph nodes removed. But it's just really sore right around to my back. So I've been experimenting with all the different bra's I have to see what's most comfortable. The Berlei Post mastectomy bra is okay with the pad in it...but I don't actually like wearing the pad. It feels weird and is different shape to my ordinary boob anyway. I feel self conscious. The bra without the pad in it rides up all the time on the operation side. Really annoying. And the sides are NOT wide enough. Too narrow and it cuts into where my wound is. So hurts. It probably will be better in a few months. Then I have the Amoena Frances bra. It's pretty good. But it's not really good fit. Too big on the actual boob size, but I'm sure the size smaller would be too small. But it is okay. The best seems to be plain ole Bonds Seamless Crop top. Looks similar to Amoena Becky bra. I like the the sides are wide. Cause I need to be able to pull it down and have it cover the entire scar area - not cut me on my wound line. So it's funny cause I have half a dozen Bonds Seamless crop tops anyway! I've worn them around home for years. Comfy. So this is what I have found. Anyone else found different bras that are good?Looking for suggestions after double Mastectomy
Hi everyone. How good is this website? I have learnt so much. I have been recently diagnosed with Breast Cancer 😒 and will be having a double mastectomy in the coming weeks. I am looking for suggestions/ideas for post surgery. For example clothes to wear, pillows, chairs, sleeping positions and the like. Looking forward to your ideas. Thank You
Radiation tips?
Hi, I have no idea how to negotiate this platform so forgive me if this turns up in the wrong place… I’ve lobular invasive -had lumpectomy & 10 lymph nodes removed. Hellish pain with seromas after the latest op.. anyways .. radiotherapy starting next week for 3 weeks.. any tips, things to be aware of?? It’s been such a rollercoaster I think I’m still processing ..
