Thank you!
Just wanted to say a big thank you to all of you who sent letters to your ministers regarding CDK inhibitors and to those who encouraged others to write either by sharing our social media posts or posting your letters and responses on the network. Your efforts really did make a difference and we have finally seen an approval recommendation by the PBAC for these important new drugs. Our work is not done yet though as we now need to put pressure on the pharmaceutical companies and government to reach a cost agreement quickly so that Ribociclib and Palbociclib can be placed on the PBS and therefore be more widely available for first-line treatment as soon as possible. Once they are on the PBS for first-line treatment, we will advocate for Compassionate Access schemes to open up for those requiring the drugs for later line therapies. We know there are many women who could benefit from them who have had other lines of treatment and we want you to know we are fighting for you. Danielle Spence, Director, Policy & Advocacy at BCNA, advised ‘CDK inhibitors, when combined with a hormone therapy drug, don’t just slow down the progression of the disease but can also provide a better quality of life without the toxic side effects of chemo. BCNA will therefore continue to lobby for these drugs to be available to all who can benefit from these therapies.’ We will therefore be asking you soon to write again to your politicians so watch this space!281Views3likes2Commentspalbociclib now on pbs as of may 1st
Hi everyone, woo hoo, the government has finally put palbociclib on the pbs as of may 1st 2020 it will become available. I do not know if there are any set criteria for this ie only for those on a first line of treatment as has been the case in the past,. I have tried for several years for this to happen and finally the government has seen fit to do this. I do hope this is now available for ALL women regardless of where they are in their metastatic treatment. wendy55