First cycle of Paclitaxel dose dense
@Locksley So starting my premedication last night with 5 Dexamethasone & 1 Famotidine and then the same dose this morning plus 1 Loratadine 60min before treatment starts, totally dosed up ready, I had an appointment with my oncologist first to talk about possible side effects and how I'm going so far. Then had my Paclitaxel without any allergic reactions at all such a relief it did take a lot longer than getting AC 3.5 hours compared to 2 hours but that's ok as its one of my few outings. So I'm hoping it's a sign of how my next 3 cycles will go. Hope everyone's going good in their treatments. xo
Decision time re continuing Paclitaxel due to peripheral neuropathy - help needed
I have started to have signs of PN on soles of feet after 4 of 9 planned weekly Paclitaxel. Onc has left it to me to decide when to pull the pin. Symptoms are mild atm I think (numbness on soles, slightly tender on rough surfaces, discomfort after 3/4 of my usual 40min walk) but I have no idea how quickly they will progress from this to severe and very long lasting ones like some of you describe in other threads. I am terrified of becoming badly incapacitated after all the effort I have put into exercise and gym to keep mobility, balance and strength as I grow older. Time is so limited to access expert advice between weekly treatments and Christmas and I am scared that even one more dose may tip me over the edge. Is there anyone who was in a similar situation that can perhaps give me some concrete idea of the timing of the progression of their PN from week to week. The onc has said if I say this is all I am prepared to live with for 12 months he will delay the next treatment and see if there is any improvement. If there is he will try one more because it has shown that improvement is possible. If no improvement I will then have to go onto another kind of chemo that takes longer and is more involved (and I guess another swag of side effects 🙄). He says my prognosis would not be affected. Any information will be much appreciated as only a few days before next chemo. 🙁 Thank you!
Its been a while
Its been a while since I posted. Since my first post, I've completed my 2 months of AC, then had a little health blip with fevers and an infection that the medical staff couldn't find in my body, then I had a frightening Supraventricular Tachicardia event, thankfully whilst I was in hospital where basically my heart decided that the heart rate should not go below 200! Turns out my lungs hadn't responded very well to the AC treatments after all! On the Oncologists advice, the weekly Paclitaxel treatments was suspended for a couple of weeks but now I am back on treatments, my mouth has flared up with ulcers and is majorly sore. Sucking on lozenges and rinsing with an Anaesthetic mouth wash is tedious, but we do what we have to do right? The most annoying thing I am finding is that my vision seems to have changed in the 4 months since I started this journey. I struggle to be able to read things for a long period of time. I'm hoping that once I am through the chemo that my vision may(?) return to normal? Anyway, onward and upward :#