Treatment
Hi everyone I don’t know how to start this, I was diagnosed with breast in 2017 when pregnant. My baby and I went through mastectomy, chemo and radiation together because she was still in my belly when I was going through all that, thank God she came out beautifully and strong. She is 20month and a very happy girl. But now unfortunately my cancer has metastasis into my bones and liver. Having chemo again with all that comes with it. I get really stressed and frustrated. The chemo knocks me down so hard I can barely get out of bed sometimes, can’t eat and am losing so much weight.. I feel like this cancer is winning but heal no am not going down without a fight.
CDK4/6 inhibitors PBS
Hi, Can someone share their experience or knowledge of who can access CDK4/6 inhibitors? I’m trying to establish what my situation would be in the current PBS environment if I became stage 4. I am on an AI for endocrine therapy. The wording in the PBS documents is unclear it says exclusion criteria - treated with AI for more than 28 days. Is this for mets though or all stage cancers? Given that AI is now preferred choice of endocrine therapy for hormone positive cancer, does this mean if those of us on AI for early stage would not be able to use palbo, ribo or abemociclib if we progressed to stage 4 under PBS ruling and would need to self fund? Thanks everyone.Hello and liver
hi all thought id introduce myself. 43 with 3 kids I had bc 10 years ago. 2 years ago back pain and a scan showed Mets to sacrum. On xgeva and femara and in remission after radiation. Then most recent scan showed a met in my liver. Anyone else on a similar shitty path with the liver. I did a silly thing and looked at dr Google. Big mistake! Seeing my oncologist next Wednesday. Xxxxxx
Second brain tumour in 5 months
I was coming up to 5yrs clear & booked a trip to the UK on 3rd December, then was diagnosed on 11 October with a brain tumour. Had it removed & was paralysed on the left side but spent 6 weeks in hospital and rehab working hard & made my trip just in time (albeit with a broken rib I didn't know about). I had a full body scan in January & was told there was no cancer in my body but after an MRI this month I now have another tumour on the other side of the brain, much smaller & on the surface. Has anyone else experienced this & can I expect to have these tumours constantly popping up or have people just had a one off & nothing else for years. I see my surgeon next week but in turmoil that this could happen again so quickly. I live alone but have lots of supportive friends but my depression has hit another all time low, am I doomed or could this be a one off?
Can you feel if you have mets?
So I went to see my GP as I've had pain around my chest and arm and can't stretch it that started out of nowhere (I finished radiation in November) and while I was there I told her that I have had bone aches that come and go in my left shin and my back. As my cancer was an easy one, cut out, then radiation (although it was invasive the lymph nodes were clear) she thinks it'll be fine. She knocked up and down my spine with her fist and then my shin and said that if it was mets I'd be screaming in pain. Is that true? Even if it's just starting and only small? BTW the pain in my chest that some people on this chat suggested could be cording, she's convinced is a muscle tear and I'm having an ultrasound today. I can use my arm perfectly ok, it only hurts when I stretch it back. She never mentioned cording. Should I just not bother seeing a GP at all? I'm hoping the US can show if its cording and I can fix it.
