Forum Discussion
jamavon
5 years agoMember
Possible lung mets shock
Hi, At my 1 year check up for a Phyllodes tumour ( mastectomy and radiation ) they have found a 7mm lung node. PET scan on Thursday. Day off work today....how do you get through this?
11 Replies
- Cathyw_BCNAFFMemberThinking of you, hoping for good result.
- jennyssMember
from jennyss in Western NSW - gumnutMemberDear @jamavon
Just sending you a virtual hug and best wishes
xx - ddonMember@jamavon just thinking of you and hoping you are ok.
- arpieMemberBugger @jamavon. I hope your 2nd opinions gives you reassurance .... a BC buddy has lung spots (she had a small tumour removed 2 years ago) and whilst not 100% is going ‘ok’ just now.
There is a newish drug called keytruda that apparently works well on lungs that was mentioned with another buddy’s condition .... maybe mention it?
Yep, take one day at a time, scream, shout, howl if it helps relieve the pressure of the waiting .... sleeping is good!!
Take care xxx Lean on us. xx - jamavonMemberThank you all for the support.....Getting through one day at a time....I am reaching out to a couple of places for a second opinion. With such a rare cancer I want the best possible care I can get.
My issue is sleeping too much lol and wanting to avoid work ( writing school report comments at the moment ) - ChezaHMemberSending hugs for a positive outcome.
- FLCloverMember@Dory65 I’ve had a few kids books read to me too at 3am by Insight Timer. My fave was Cinderella 😄. Anything that works 👌🏻
- Dory65MemberThis must be a horrible shock @jamavon. Fingers and everything crossed for you - it might not be as bad as you fear. Can you see your GP for something to help you sleep or calm you, if your mind is racing? Avoid alcohol - it just makes things worse. Keep eating well and drink lots of water...Anything that brings you into the present moment can help ease the anxiety. Google "bubble breathing mindfulness" exercises. I also like Insight Timer. I used it recently when I couldn't sleep. It calmed me down - actually I really enjoyed having The Velveteen Rabbit read to me at 3 a.m. :)
- ddonMemberWaiting for the PET and then the results is awful. You will get through but it’s hard and I just wanted to send a warm hug xx