Hi, At my 1 year check up for a Phyllodes tumour ( mastectomy and radiation ) they have found a 7mm lung node. PET scan on Thursday. Day off work today....how do you get through this?

That is not the news you wanted - and you still need to know more detail. If you have someone you can talk to, talk. Letting out your frustration and worry won’t change the situation but it will relieve some stress. Then you take the next step. And the next one. And after Thursday you might know a bit more about the next set of steps. It’s all any of us can do facing this sort of thing. Talk here if it helps. Howl too. Reach for whatever help you need. But then take a deep breath and go forward. It’s the only direction that counts. Keep strong.

Thank you all for the support.....Getting through one day at a time....I am reaching out to a couple of places for a second opinion. With such a rare cancer I want the best possible care I can get. My issue is sleeping too much lol and wanting to avoid work ( writing school report comments at the moment )

Bugger @jamavon. I hope your 2nd opinions gives you reassurance .... a BC buddy has lung spots (she had a small tumour removed 2 years ago) and whilst not 100% is going ‘ok’ just now. There is a newish drug called keytruda that apparently works well on lungs that was mentioned with another buddy’s condition .... maybe mention it? Yep, take one day at a time, scream, shout, howl if it helps relieve the pressure of the waiting .... sleeping is good!! Take care xxx Lean on us. xx

Dear @jamavon Just sending you a virtual hug and best wishesxx

Waiting for the PET and then the results is awful. You will get through but it’s hard and I just wanted to send a warm hug xx

Possible lung mets shock | BCNA Online Network

Cathyw
Member
5 years ago
Thinking of you, hoping for good result.
jennyss
Member
5 years ago

from jennyss in Western NSW
gumnut
Member
5 years ago
Dear @jamavon
Just sending you a virtual hug and best wishes
xx
ddon
Member
5 years ago
@jamavon just thinking of you and hoping you are ok.
arpie
Member
5 years ago
Bugger @jamavon. I hope your 2nd opinions gives you reassurance .... a BC buddy has lung spots (she had a small tumour removed 2 years ago) and whilst not 100% is going ‘ok’ just now.

There is a newish drug called keytruda that apparently works well on lungs that was mentioned with another buddy’s condition .... maybe mention it?

Yep, take one day at a time, scream, shout, howl if it helps relieve the pressure of the waiting .... sleeping is good!!

Take care xxx Lean on us. xx
jamavon
Member
5 years ago
Thank you all for the support.....Getting through one day at a time....I am reaching out to a couple of places for a second opinion. With such a rare cancer I want the best possible care I can get.

My issue is sleeping too much lol and wanting to avoid work ( writing school report comments at the moment )
ChezaH
Member
5 years ago
Sending hugs for a positive outcome.
FLClover
Member
5 years ago
@Dory65 I’ve had a few kids books read to me too at 3am by Insight Timer. My fave was Cinderella 😄. Anything that works 👌🏻
Dory65
Member
5 years ago
This must be a horrible shock @jamavon. Fingers and everything crossed for you - it might not be as bad as you fear. Can you see your GP for something to help you sleep or calm you, if your mind is racing? Avoid alcohol - it just makes things worse. Keep eating well and drink lots of water...Anything that brings you into the present moment can help ease the anxiety. Google "bubble breathing mindfulness" exercises. I also like Insight Timer. I used it recently when I couldn't sleep. It calmed me down - actually I really enjoyed having The Velveteen Rabbit read to me at 3 a.m. :)
ddon
Member
5 years ago
Waiting for the PET and then the results is awful. You will get through but it’s hard and I just wanted to send a warm hug xx