🗣️ Invitation to share your voice: Understanding Cancer Related Stigma Through Lived Experience
BCNA’s Consumer Engagement team is inviting members of our Online Network to share their experiences of stigma and shame following a cancer diagnosis. Cancer related stigma is not only about visible changes. It can be social, cultural, emotional, and systemic. It can affect how people see themselves, how others respond to them, and how safe they feel seeking care or support. These experiences are often deeply personal, and they can vary widely across communities, cultures, and healthcare settings. 🌏 Why your perspective matters In June, a BCNA trained Consumer Representative will be presenting at the Multinational Association of Supportive Cancer Care Australia Conference. This presentation will bring consumer voices into an international conversation about whole person care, supportive care, and the importance of patient partnership in addressing stigma. To ensure this presentation truly reflects the diversity of experiences across Australia, we are gathering insights from our broader network of members. 📝 Take part in the survey By completing this short survey, you will help shape the content of the presentation and strengthen the messages shared with clinicians, program leaders, policy makers, and researchers. Your voice will help ensure lived experience remains central to conversations about stigma, care, and support. 👉 Take the survey here 🗓️ The survey closes on Friday 8 May 2026 📩 If you have any questions, please contact [email protected] Thank you for considering sharing your experience and helping amplify the voices of people affected by cancer.56ViewsSign in to react to this post0Comments📣Have you experienced differences in surgical quotes? We’d love to hear from you.
We’re looking to connect with our members living in Victoria who have received one quoted fee for surgery, and then either secured or discovered a lower cost elsewhere. Your experience can help highlight why greater transparency in healthcare costs is so important. 🌿 These insights will support advocacy efforts around the need for a transparent costs register, a topic very important to us here at BCNA that we will be working towards later this year. If this sounds like you, or someone you know, please comment below "learn more" to share your experience. Every story makes a difference in creating a fairer, more informed system for all. ✨101ViewsSign in to react to this post2Comments🔬 Share Your Views: Early-Onset Cancer Research 💗
Have you been diagnosed with cancer between the ages of 20 and 49? Your experience could help shape future support, services, and research for others affected by cancer. 🌟 Researchers at Queensland University of Technology (QUT) are seeking people with lived experience of early-onset cancer to share their insights through a research study exploring life during and after a cancer diagnosis. A cancer diagnosis at a younger age can affect many aspects of life, including: 💼 Work and career 📚 Study and education 👨👩👧👦 Family responsibilities ❤️ Relationships 💰 Finances and future planning The research aims to better understand the unique challenges and support needs of people diagnosed with cancer between the ages of 20 and 49, helping to inform future programs and services across Australia. This study has been approved by the QUT Human Research Ethics Committee (Project ID 11485). ✅ You may be eligible if you: • Were diagnosed with cancer between the ages of 20 and 49 • Received your diagnosis and treatment in Australia • Currently live in Australia 📝 What's involved? • An anonymous online survey (approximately 20 minutes) • An optional one-on-one interview to discuss your experiences in more detail 💡 Every story shared helps build a better understanding of what it means to live with and beyond cancer at a younger age. 📄 Interested in learning more? View the QUT flyer below.31ViewsSign in to react to this post0Comments📣 Have Your Say on the Future of Hospital Care in Australia
You are invited to contribute to an important national consultation on the next edition of the National Safety and Quality Health Service (NSQHS) Standards. These Standards help guide the safety and quality of care provided in public, private and day hospitals across Australia. They are reviewed every 10 years, and this is your opportunity to help ensure the next edition reflects what matters most to patients, families, carers and consumers. 💬 Why participate? Your experiences and insights can help shape future hospital care, ensuring the voices of people affected by breast cancer are heard. Whether your healthcare experiences have been positive, challenging, or somewhere in between, your feedback is valuable. 📝 About the survey Takes approximately 20 minutes to complete All questions are optional You can skip questions, take breaks, and return later using the same device You may review the draft Standards or a shorter Patient and Consumer Requirements summary before participating Survey closes 25 September 2026 Please note that some questions may ask you to reflect on personal healthcare experiences and may feel sensitive. If at any time you need support, you can contact Lifeline on 13 11 14. 🔗 Complete the survey 📢 Feel free to share this opportunity with others in your networks who may be interested in providing feedback. Your lived experience is powerful. By having your say, you're helping shape safer, higher-quality healthcare for current and future patients across Australia. Thank you for helping ensure the voices of people affected by breast cancer are part of this important conversation. 💕39ViewsSign in to react to this post0Comments📢Have You Taken Endocrine Therapy After Breast Cancer Surgery? We'd Love to Hear From You
Have you been diagnosed with Stage 2 to 3 HER2-negative, HR-positive breast cancer and received treatment after surgery? BCNA is partnering with Inherited Cancers Australia (ICA), So Brave, healthcare professionals, and independent healthcare research agency Elbow Insight and Strategy to better understand the experiences of people diagnosed with this type of breast cancer. The findings will help improve understanding of the challenges, needs, and experiences of people affected by breast cancer, and help inform future support for our community. 🌸 Who can participate? 👇 You may be eligible if you: ✅ Are aged 18 years or older ✅ Have been diagnosed with Stage 2 to 3 HER2-negative, HR-positive breast cancer ✅ Are currently taking, or have previously taken, treatment after breast cancer surgery, including hormone-blocking (endocrine) therapy What's involved? 📝 The study starts with a few short screening questions to confirm eligibility. If eligible, you'll be invited to: ✨ Complete a 25-minute online survey ✨ Optionally register your interest in a second phase involving a 7-day online diary (approximately 45 minutes in total) As a thank you for their time, participants will receive a payment for participating. 💕 👉 Interested in participating? Register for the Research Study Here Thank you for helping us better understand and support people affected by breast cancer. 💖42ViewsSign in to react to this post0Comments🌸 Research opportunity: Healthy lifestyle support after breast cancer
Women across Australia are invited to take part in a research study exploring views on exercise and nutrition support after a breast cancer diagnosis 💗. This study aims to better understand what encourages or discourages participation in lifestyle programs, when support feels most helpful, and what information women need to make informed decisions. The findings will help shape the design of a future exercise and nutrition trial for women after breast cancer treatment. 👥 Who can take part Women aged 18 years and over who have been diagnosed with breast cancer at any stage, are currently in treatment or have completed treatment, and live in Australia. 📝 What’s involved Participants will be asked to complete an anonymous online questionnaire. There is also the option to take part in a short online or phone interview lasting around 30 to 40 minutes to share views in more depth. Participation is voluntary, and people can pause or withdraw at any time. 🔬 Researcher spotlight This study is led by Dr Cindy Tan, a senior clinical dietitian and cancer survivorship researcher with more than 20 years of experience supporting women after cancer. Dr Tan is passionate about developing practical, realistic lifestyle programs that support confidence, wellbeing, and long‑term health after breast cancer 🌱. 📩 Want to know more For study enquiries, contact Dr Cindy Tan at [email protected] For BCNA related questions, contact [email protected]57ViewsSign in to react to this post0Comments
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