Oncologist visit
Hi everyone, well today was my visit to oncologist for two months, I'm taking kisqali and letrozole and my results were great and she told me everything was stable I'm so pleased everything is doing what's it's suppose to be doing. Enjoy your day everyone I know I will be now šš
Kisquali
FYI - I did post in private group last night but no response so thought I'd try here as well. :-) Hi there all, Strange question for you all for a Sunday night - I'm on my 13th round of Kisqali, still on 3 tablets which is highest dose. I'm taking in combination with Letrozole and the bone strengthening injection every 2-3 months. I'm doing really well on this treatment combo and apart from ridiculously disgusting dry feet that are revolting and foot pain, nausea and tiredness, I can't complain too much!! Recent PET scan has shown that my bone mets are still present but not active according to oncologist which is amazing news apparently. My question is, I think my hair is thinning out and I have a "sore head". Only way to describe it is it feels as though my hair has been up in a "tight ponytail" and scalp is sensitive. Of course, I will check with oncology nurse tomorrow but thought others might have similar experience that they could share. Can't ask anyone at home to check for bald patches as single mum here and don't want to freak my kids out totally - I think that was the hardest part of my original cancer journey for them when I shaved my head as it was all falling out from chemo. Other question for musing this late on a sunday night is, are there others in this group on Kisqali or Ribociclib combo that have been told they are doing really well - I can't seem to shake the feeling that the PET scan got it wrong!! Thanks in advance
Recovery from pleurodesis and starting Ribociclib (amongst other things)
Hello Everyone, A bit of background 2013 i was newly diagnosed on my 39th birthday with invasive ductal carcinoma, ER + Her2 negative (Stage 2B, lumpectomy, 2/13 nodes, chemo, rads, tamoxifen) Also left my husband during treatment, for multiple reasons, a good decision. Around my 44th birthday this year in July, 5 years later, the sneaky bastard of a thing has returned! I was getting short of breath, and thought for a while that I lacked cardio fitness, even bought myself a skipping rope. This symptom did not improve and that little voice inside my head piped up to get this checked out. A chest xray revealed quite a lot of fluid in my right pleural cavity, almost 2 litres of fluid was drained, subsequent scans and cytology revealed bone mets to my spine, rib and sternum and adenocarcinoma (malignant pleural effusion) 2 weeks ago I had an operation by a cardio thoracic surgeon called a VATS talc pleurodesis, this is a more permanent solution for the fluid collecting in my chest cavity rather than having multiple aspirations to drain fluid that will just keep accumulating. Over 4 litres drained and a 6 night stay in hospital hooked up to a drain. Recovery has been slow and painful from this procedure and I'm wondering if this has been the case for other people? My lung is still colllapsed, I do hope that it will re inflate eventually, leftie is doing great but righty was squished for some time. 19th Sept I'm schedule for an oopherectomy (ovaries removed to induce menopause), jeez I hope I'm match ready for the next op! I'm sure ladies on here that have had this procedure would have mixed side effects and reactions, I guess I'm after some reassurance that I won't turn into a demon woman. My oncologist will start me on Ribociclib with an Aromatose inhibitor. This drug has very recently been approved by the PBS, are there any ladies on this drug and are you coping well with it? I have 2 beautiful boys aged 9 and 11, I truly hope to be around long enough to guide them through their milestones into adult men. That's the thing that really effects me with this diagnosis, the impact on my children. We all want our mums to be around for a long time, my mother has been an amazing support to me over the years, I could't thrive as much as I have without her. Anyway, thank you for taking the time to read my post, you chicks are amazing and I enjoy reading your posts as getting real responses to people going through the various procedures, drugs and experiences is more supportive and helpful than reading a clinical study on Dr Google. Love and healing energy to you and your families. Trish