Friday update!
Hello everyone, welcome to the Friday update! Community Highlights We have 29 new members. Please give a warm welcome to Kate13, MayaV, dtrif5, Effi and all our new members. This week we had 79 posts and 436 comments. Here are a few posts you may have missed - Big red Let me yell it loud and clear .....chemo is done! Surgery over Things I don't miss about ac chemo BCNA News & Events At BCNA we are committed to providing high quality, easily accessible support to all our members and we are proud to announce we are now National Relay Service friendly. This means if you are deaf or have a hearing or speech impairment you can contact us via the National Relay Service. Learn more about the National Relay Service at www.relayservice.gov.au. Have you received the second edition of BCNA's Hope & Hurdles pack (distributed since January 2013)? We are currently reviewing the pack and would like to hear from you! To help us improve this resource and better support people living with secondary breast cancer please complete the online survey before 12 June: www.surveymonkey.com/r/H-Hsurvey2016 BCNA is thrilled to be voted by its peers as number six on GiveEasy’s 2016 Index of Australia’s most innovative not-for-profit organisations. - Read more We are excited to announce that next month we will be visiting three locations in Western Australia to host breast cancer information forums. - Read more Have a lovely weekend. Ann-Marie x
My first post
Hi everyone, this is my first time to reach out to anyone out there who maybe able to help me. I was diagnosed with breast cancer in May 2010. Had mastectomy, chemo, radiotherapy. In March thru to April 2011 had a failed attemped at breast reconstruction. In October 2012 I was diagnosed with secondary breast cancer in the liver and bones. After ct scans and various other tests revealed both had spread extensively thru my body. I have had xeloda, navelbine, denosamab injected every month. Over the past year my bone cancer has been the worst. If not for it I would be quite well and life would have stayed somewhat normal. Unfortunately, I no longer drive the car , I walk with a walker, and need care to dress, get in and out of bed etc. The plus is that I try to greet everyday with a smile and I remind myself of the things I can do rather than what I can't. My carer is my wonderful hudband. He now works 3 to 4 days a week. We have had an enormous roller coaster ride since my first diagnosis. I have my pain managed but find I have to rest most of the day and fear this will worsen. I am almost at the end of my tether. I saw my oncologist last week and I had to make the decision to go on more intravenous chemo, more ct scans , blood tests, maybe a bone marrow biopsy, or to let things take their course.I have chosen to go ahead another time. I hope I am strong enough. Is anyone out there a bit like me and can you suggest maybe some pain relief you have found helpful. Looking forward to hearing from someone out there. Kind regards, Denise
