đ˘ Have you ever faced a big bill, or a long journey just to get a diagnostic breast scan? We want to hear from you.
When you find a concerning lump or notable change in your breast, one of the most important things that you should be able to access quickly and safely is the answer to: is this breast cancer? We know that for too many people in our community, the pathway to diagnosis is full of barriers: high outâofâpocket costs, long waitlists, no public imaging options, or hours of travel just to access essential scans. ⨠As part of our EndâofâFinancialâYear national advocacy campaign, weâre calling for fair and equitable access to diagnostic imaging for all Australians. To do that, we need real people to share their experiences and stories that show what is happening right now. BCNA is seeking lived experiences from anyone who has faced challenges such as: đ¸ Travelling long distances or interstate for a diagnostic breast scan đ¸ No public diagnostic facility available in your region đ¸ Significant outâofâpocket costs for essential imaging đ¸ Long waitlists that delayed your diagnosis đ¸ Impacts on treatment, health outcomes, or mental wellbeing due to these delays. đŞ Your story is powerful. It can help us demonstrate that access to a diagnosis is not a luxury - itâs a right. Your story will help us advocate for a system where every Australian gets the answers they need, regardless of their bank balance or their postcode. If youâre interested in having your voice heard and suppotring BCNA's advocacy efforts, please complete our Expression of Interest form here; đ https://formstack.io/907FC All stories will be handled with the utmost care and confidentiality by our Communications department. Thank you for helping us shape a better system where every Australian can get timely, equitable access to the diagnostic care they deserve â¤ď¸Chest Cancer Breast Cancer
Hello readers (all members, carers, staff, the public), Having read various requests, pleas, posts that communicate the need to INCLUDE males, in fact all people of any gender and age, and still see vastly inadequate awareness and action, please understand why this call for action might reflect how urgent, emphatic and furious it can become. How many requests, how many years, how many lives suffering shame/embarrassment/stigma/isolation, how many deaths, how much ignorance, even among today's GPs, how little support, how many undiagnosed cancer cases??? For anyone who cannot feel empathy, like it-does-not-affect-me or they-are-JUST-minority, then think⌠if it is your: son, brother, father, partner, husband, grandfather, grandmother, child, other loved ones, or someone you respect. Actions please, especially by BCNA, and other organisations, in the position of power to do something about it -right now. Strongly recommend: Marketing Team, able and influential. BCNA pagesâ banners are the worst misinformation propagator of âwomen-only, pink pink bathing-big-busts-the-goal-in-life; no children, no males, no matter cancer undiagnosed untreated they are nobody. Requests of years ago still ignored. Please right now stop plastering pink pink bright pink all over, highlighting bulging breasts in pink bathing suits as if for a women-only swim club, exclusively pink bright pink skirts, and just women maniacally laughing. Over-the-top incongruous. Please donât switch to extreme stereotypes either, like typically the most wrinkly hand being held by an age-contrast hand, in copy-cat robotsâ stock-photos marketing. While youâre adjusting, please very ably and kindly reduce all the auto flipping/sliding panels, hyperactive donate-button, and fast drop-drown whenever we just hover or just breathe; itâs turning us into a nervous twitchy moving-image-nauseous wreck. Some have x months to live, can marketing spend 3 hours to make a beta, 3 days to go live, for them to see in time? Merchandise. Please adjust the pink pink pink ribbons. How about a more INFORMATIVE, educating, creative, inclusive pink+green+brown for example, avoiding gender-again gender blue. Something neutral and universal? A flower+leaf+stem, sun moon star, or a simple band? A sticky post please, kind can-do staff, to educate and change habit. Something like âGenderless breast cancer affects allâ, in green? Avoid gender-colour. Members posting please use neutral communication instead of all these âlovely ladiesâ. We are supposed to know better, and the public can read these posts to learn from us. No, it is not enough to have ONE day of the year for half the population -cancer affects everyone in the personâs life. No, it is not acceptable to shove males, children, and so-name-called CALD (we are all of us diverse multicultural so itâs not right for one group to name call the âothersâ as diverse) to go talk among yourselves in that corner or in a locked group. As if get out of my sight. As if we donât care. As if youâre not one of us. It is not fair to burden this task on the shoulders of the ânot one of usâ to educate the mass. The task is on us. Please get updates of info to reach and make sure GPs and all other medical professionals are up-to-date and aware. Still a problem, in 2026. Please action, everyone. Kind members please do, if not already. Please search âmaleâ, âmenâ, and topic âInclusionâ 2019? on this site, to listen, to hear, to understand, to be kinder. Letâs mark todayâs date 20-Mar-2026 awaiting action. We are counting, each day. More suffering. Any effective action. Please. With hope and thanks. [Edit: Tagging PeterBâ and traveltextâ to acknowledge and show appreciation.]đ Save the Date - New Global Breast Cancer Care Framework
If you've got an interest into the healthcare system side of the breast cancer experience, you might like to join the VCCC Alliance for an upcoming online event introducing the Breast Cancer Care Quality Index (BCCQI) - a new, globally informed framework designed to help identify gaps in breast cancer care and support action aligned with the WHO Global Breast Cancer Initiative. đ Monday 2 March 2026 đ 1.00â2.00pm AEDT (Melb/Syd time) đ Online Hear from three international leaders involved in the development of this innovative measurement framework, including: Dr Benjamin Anderson (WHO Global Breast Cancer Initiative) Dr Maira Caleffi (Union for International Cancer Control) Dr Ana Rita Gonzalez (Policy Wisdom) This session will explore the global breast cancer cost, the need for consistent care, and how the BCCQI can support countries to translate global targets into meaningful local action within healthcare systems. đ Save the date! đ Event information: VCCC Alliance event pageâźď¸Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, we acknowledge the missing link and everyone who has waited to be counted. Tomorrow, we make it count. For too long, a community has been living in the shadows, their experiences missing from our national data. BCNA has been fighting to change that. Change begins tomorrow.November 27 đ¨ Big News Coming! đ¨Counting Metastatic Breast Cancer
In 2022, BCNA began the Making Metastatic Breast Cancer Count initiative - a vital step toward ensuring every person living with metastatic breast cancer is counted and supported. After years of advocacy, collaboration, and research, weâre thrilled to announce that on November 27, we will finally share the outcome of this groundbreaking work. This is more than just numbers - this is a long awaited step in the right direction towards visibility, equity, and driving change for thousands of Australians living with metastatic breast cancer. đ Learn more about the journey: đ Time to Count: A Way Forward đ Our Pledge đ Get ready for the big announcement on November 27! Together, weâre making metastatic breast cancer count. đBCNA calling out the government - failing to protect Australians from genetic discrimination
Breast Cancer Network Australia (BCNA) is calling out the government for failing to protect Australians from genetic discrimination while showcasing its new genomics framework. Cancer Australia launched the National Framework for Genomics in Cancer Control this morning, which aims to integrate genomics into routine cancer care, improving outcomes through personalised medicine. BCNA welcomes the framework but condemns the Australian Governmentâs failure to follow through on its commitment to legislate a full ban on genetic discrimination in life insurance, a critical reform to ensure all Australians can access genetic testing without fear of financial repercussions. âThe Government cannot claim progress in genomics while failing to uphold the fundamental rights of those affected by breast cancer and other genetic conditions,â BCNA Director of Policy, Advocacy & Support Services Vicki Durston says. âIf genomic medicine is the future, then protections against genetic discrimination must be part of that future. âNo more excuses. There must be action before an election is called or Australians are at unacceptable risk.â BCNA calls on the Government to immediately prioritise its promise to introduce a full ban on genetic discrimination in life insurance, ensuring all Australians can access genomic testing without fear. Read full media release via link BCNA calls out government for failing to protect Australians from genetic discrimination while showcasing its new genomics framework (Media Release) Take action now! âď¸ Share this post to spread the word âď¸ Contact your local MP using the form link Email your MP about delays in banning genetic discrimination | DELAYS TO BANNING GENETIC DISCRIMINATION IN AUSTRALIA
