Intro- Triple Negative and Hodgkins Lymphoma
Hello Beauties, Found a lump in late Feb which was Triple negative breast cancer. 6 months to live if no treatment. When advised, I had found out day before I also have Hodgkins Lymphoma (returned) in 4 places near heart and pancreas. Right now all All 6 lesions have shrunk. On chemo no 10 for TNBC (AC and taxol).. In my 5th month of BC chemo. Surgery looming. Awaiting surgical appt soon. I am 3rd generation with BC but brca negative. Lots of decisions coming up. Surgeon talked mastectomy last time. If I have reconstruction I am guessing it will have to be after chemo/rads for the hodgkins and I may need rads for BC after mastectomy. It's been a hard road. Still a way to go. Wish life was back to normal soon... Thanks ladies. I look forward to sharing your journies. Your fellow warrior Kylie in Brisbane( North Lakes area)
Scar Management for anyone finding them taking a long time to heal, red, bumpy, itchy...
Hey All, I just wanted to say in the past I haven't really worried about my scars from surgeries, however since doing my Diep Flap recon in February and subsequent revision surgery in July, I had my abdominal wound reopened. It was red, itchy and bumpy so thought I'd have a consult with people who specialise in scar management. Thanks to my friend @nikkid for the contact, I went today. I know in my post op visits there really wasn't much talk of scar management at all, so thought I'd pop a post for anyone who is finding them annoying red, itchy, bumpy and wanted some help with it. They use silicon dressings that I wear at night only, I then massage over 4-6 weeks in circular motions, (even an electric toothbrush) to break up the scar tissue about 4 times a day. My scars are so annoying and irritating,so that's why I decided to get some extra help. So I have a great recommendation in Melbourne for anyone needing that. Big hugs Melinda xoPost Surgery, Mastectomy and Reconstruction Bras
Hey All! I wanted to share a wonderful lady I had an appointment with today, her name is Genevieve Gort and her business is Breast Care Victoria & Surgical Garments, she is a Registered Nurse but now does bra fittings for Breast Cancer Women. She works in a studio at home in Port Melbourne. I have to say it was such a wonderful experience to get out of this stupid Amoena Bra!!! and into a much better post surgery bra! she liaises with Surgeons and Plastics Nurses to try and get this different compression surgical bra in place. It zips up at the front with hooks and eyes on the shoulders. I purchased about 3 other types, they have NO underwire, 1 cream, 1 black and a Rose Coloured one, very feminine looking. They ranged from $78-$90 each, but so worth it! My health fund also paid a benefit of up to 4 garments per year up to $150, so I was out of pocket approx $160 for 4. They are so comfortable and I feel so much better! She is extremely lovely, and loves her job!! So I highly recommend this lady in Melbourne for post surgery, mastectomy and or reconstruction Bras! She has a web site but needs to be upgraded. Hugs Melinda xo
