janeys25
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Hi all. It's been a while since I last posted. Had my first (1/4) and as it turned out my only chemo treatment on 28th Jan (docetaxel/ cyclophosphamide) which went well and 24 hours later gave myself the pegfilgrastim injection. Noticed the joint pain on the Thursday. Friday, joint pain extremely bad in the knees, slept, and temp was just over 38 when I got up. Called ambulance. Went to PA where I ended up on ward 2E. 2 infections, one in left breast from surgery. Drained. After 2 weeks sent home. Great. NO MORE CHEMO. I fell into 1% of people who cannot cope with chemo. Was home for 6 days before I lost my appetite, fever, nauseous. Rang hospital for guidance as temp 37.9. Called ambulance. By the time I reached hospital temp 39. After getting through Emergency I ended up on Ward 4. All I wanted to do was sleep and bring up mucus. (I also have divituculis.) Went downhill. BP went very low. Fevers. Kidneys damaged (probably due to heavy antibiotics and ct contrast). Ended up in ICU for 2 nights, then back on Ward 2E. Infection had returned. Temp spiked at night. Bloods/cultures taken. Arm was a constant pin cushion. Veins collapsed. Finally came home after 2 weeks on meds (still reducing). Radiation therapy has now been brought forward and for longer now, awaiting date. So in all a pretty rough time. Glad to be home. Having to learn to hold breath for 25 seconds for rads as I have to do the deep hold. Not looking forward to that contraption. Kidneys coming back to near normal. Just want to let others know that you too may end up in this group. Oh when I was in ICU my eyes turned bloodshot. I called them the devil eyes. They knew I was getting better as my sense of humour was coming back and the oncologist never knew what I was going to say next. I was well looked after. Never felt afraid of what was happening. Just asked questions about what I could do to help get better. I let them do all the tests possible to get results and to help plan next stage. If you are unwell, and your temp is at or close to 38 please do not hesitate to go to hospital. Cheers Janey113Views0likes5Comments- 0Views1like0Comments
Re: 3rd round of surgery
Happy New Year everyone. Another update. Had meeting with Oncologist yesterday, lovely woman at PA hospital in Brisbane. Now when I first met everyone, there was only ever talk of Surgery and Radiation Therapy and was told no chemo required. I realise after surgery this can change, but after 2 surgeries (3rd to come on 10th Jan) nothing was mentioned about Chemo until I met my Oncologist yesterday. I have Grade 3 Tumour. I had a small group of clusters (largest being 1cm) and a 1mm cell sitting all by itself. I believe this is the cause of them wanting to do Chemo. It came as a shock. Blind-sided you could say. It also came on the anniversary of the passing of a dear friend from cancer 2 years ago (I believe hers was not diagnosed early enough in the UK). So I have some paperwork to read through today about the treatment (12 week course, 4 doses) to happen before the end of January (as it will be 12 weeks from my first surgery). I also went to that appointment by myself (which I now realise wasn't a good idea). I didn't think anything of it until then. My friends have now given me a kick up the backside and I'm to tell them when all my appointments are and they will roster themselves around me and come with me from now on. I got the message, don't try and be brave and do this alone, your friends/family are there to be leant on. Use them (nicely).2Views2likes0CommentsRe: 3rd round of surgery
Thank you all for your kind words and support. Much appreciated. @ddon, thank you too. Sorry you had to have a mastectomy. As the Dr said yesterday, I have large breasts so there is room (the benefits of being a big girl I guess). Yes I wished the surgeon had removed it on the 2nd surgery, but I guess they don't know until pathology. It turns out now 3 of us at work have breast cancer. One had a double mastectomy this time last year, and 2 of us diagnosed Oct/Nov this year. We have the support of each other and can at least talk about our journey together. Merry Christmas to you all, janeys25,1View0likes0Comments3rd round of surgery
Hi all I was diagnosed back in October with early stage invasive breast cancer. Had surgery on 28th November. Results showed no clear margins from 2 tumours. 2nd surgery was on 17rh Dec. Results today. Margins clear but there's a pre-cancerous tumour sitting above the area, so surgeon wants that out. 3rd surgery on 10th January. Wasn't what I wanted to hear today and it left me a little down. I do however start seeing the Oncology team next week. My friends have been really wonderful. Hope you all can have a fabulous Christmas.289Views0likes15Comments
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