bevvzy
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Re: Lymphedema
LMK74 said: Bevvsy, it's good to hear from you again. This journey just sucks. I'm heading for a mastectomy in August and full axillary clearance. This is my very fear of having lymphedema. I too will be put on tamoxifen. Fuck cancer!!. I am so with you. I thought, ok take the whole damn thing off and it will all be over. What a load of shit. Even though I had a heap of nodes out my surgeon told me I would be low risk! Breast care nurse and onc both said any more than 3 or 4 puts you at risk and bloody tamoxifen has that as a side effect too. So when you have it off they dont tell you the "scars" physical but also mental, that come with it. Cut nerves to get to all the nodes, had a nerve block for that yesterday and did shit. My armpit feels like sludgy putty fat and full. Even though its only a few cm it feels heavy and uncomfortable. yep cancer is fucked. As for the tamoxifen, apart from the lymphedema, there are so many side ffects. The one I hate the most is the drenching sweats. Could be 6 degrees in orange and the back of my hair is drenched with sweat. its a bitch night tonight sorry ladies. Get fitted for sleeve on the 26th, hope thats the alst of the dramas. I just want to put all this behind me!3Views0likes0CommentsLymphedema
I had a mastectomy in late april for invasive ductal cancer. I was to have a sentinal node biopsy but due to the feel/appearance of nodes in surgery, ended up with axillary dissection. My surgeon didnt discuss lymphedema, seems he didnt discuss s lot ie my brachio...... nerve was "unavoidably" cut t o access the other lymph nodes and is now a living herll. Thank god i get my nerve block on the 14th. Anyway.my physio has been measuring my arm in 4 places each week and in the last 2 measurements there was a 3cm grtowth. Its also pudgy feeling in my armpit and my chest has some swelling just near the armpit. She put on an elastic type tubular ba ndage and said i would have to leave it on 24/7 and my go is saying about going to the lymphedema clinic. I guess whete im scratching my head is we are only tslking about a 3cm change and it was a week not overnight? Opinions anyone? 3cm seems pretty pathetic to be wearing this. It creases in my elbow fold a nd is pretty irritating ! Ps im also on tamoxifen and have just learned that it also has this as a side effect223Views0likes12CommentsRe: Bilateral breast cancer anybody???
I have just had right mastectomy 6 weeks ago with axillary dissection. Hormone pos. Said i was T2, stage 2. Grade moderate borderline high eg 2/3 . 2/3 but 3/3 for tubules. One pathologist said high grade so now not sure and i guess not that critical. Total was 7/9. I was sure i would have chemo followed by anti hormone, given size and grade. So i was really shocked and suprised and also worried that i wasnt going to have chemo. I thought it was a given. My onc said chemo would kill me before cancer ! I have a problem with chronic kidney infections and a chronic open wound (pressure /bed sore) although youngish i live in a nursing home with paraplegia. I was previously told the large communal living environment had a high risk of cross infections ie nurses. He said serious infection was almost a certainty. So he just put me on tamoxifen and said would have 6 weekly checks for 3 years then 3 monthly. Does this sound reasonable? Im concerned as the tamoxifen wont actually kill lingering cancer cells. I was also worried as heard that tamoxifen wasnt as effective as arimidex if post menopause. But as i have brittle bones he said that id go from a paraplegic to a quadraplgic if on arimidex as would worsen my bones. I just worry that the plan is so different from what i have been reading1View0likes0CommentsRe: Afinitor with increase in liver mets size.
I have read heaps about tamoxifen and arimidex. More so about arimidex as am post menopause. My onc put me on tamoxifen though as i am a paraplegic eith brittle bones. He has a funny way of saying things but said if he put me on arimidex id go from a para to a quad lol so put me on tamoxifen which i heard was usually reserved for premenopausal. I also heard plus read here that tamoxifen wasnt as effective in post menopausal women. Is that correct?Re: Hormone treatment
thats very good actually, just thought I would double check as there are a lot of things not on the MBS that really should be. Talked to the breast care nurse yesterday re chemo and she said i was probably not the best candidate if other options would be exhausted first. should be pleased I suppose but it worries me. The problem is the way it impacts the immune system and she said that because i am in communal living, a nursing home of 60 plus, and that I have a chronic pressure sore and kidney infections, that it would have to be something they factor in to my treatment. think will just have the other lopped off and be done with it all!4Views0likes0Comments
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