TrishV
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Joined 2 years ago
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Re: 6 month update TNBC Stage 4
Hi everyone Thanks for your messages My liver is back to normal now after 4 months of meds, weekly appts, and a tocilizumab infusion. Liver Doc gave the ok to get back to treatment. I have just started Capecitabine for a week. My scans showed tumour growth however we weren't really concerned too much as I haven't had treatment for 4 months due to inflammed liver, it's was a given there would be activity, no new areas of growth which was good. Hoping Cape will help and yes SG is next line of attack if needed. Feeling great,.working full-time so getting on with it. Hope everyone is doing well 💗83Views0likes0Comments6 month update TNBC Stage 4
Hi everyone, bit of a flat day, thought I would post an update, writing my journey out helps me. It's also so hard to find anyone with a similar diagnosis to talk to...on this site. TNBC Stage 4 Mets to lung, lymph Started Carbo & Gem chemo 4 months ago. 1st scans showed lung spots gone, chest spots gone, tumour shrunk considerably, great news. TNBC responds well to chemo. I was also given immunotherapy pembro, experienced very severe side effects, fever, liver inflammation and more, common side effects however wasn't permitted to continue on immunotherapy, shattered I was. Chemo also stopped. After steroids to reduce liver inflammation went back on carbo gem chemo and the 1st session back gem inflammed my liver. Today my oncol said no more gem. 😞 I can have carbo until I can't have it anymore eventually effects will kick in. My liver Dr is wanting me to go back on immunotherapy pembro with infusion of tocilizumab which stops liver inflammation. Oncol will review this, she isn't keen, but I am and it will be my choice anyway. My oncol going to have a round table with her oncol team to seek other options if they are available. TNBC one of the hardest if not the hardest to treat with very very limited treatments. I research every single week about trials, new treatments just hoping. I am very healthy otherwise, cruise through chemo, work FT and just feel great, so Today, I had a huge meltdown. I dont talk to my oncol about life expectancy ever, its too fearful for me and my choice not to, a rule I set on day 1 I met her. If anyone has a same, similar diagnosis, story I would love to hear from you. I've said alot here today, helps my mind a little bit. Take care to you all ❤️616Views0likes6CommentsRe: My journey starts today.
I am so grateful to you all for taking time out of your day to message me and share your personal stories. You have all made me feel like I have a space I belong to that truly understands what we are going through. I has scans yesterday and literally had a panic attack, couldn't breathe, crying. The nurses were outstanding to help me, and I have a new security blanket so to speak, a face washer over my eyes! 👀 Blocked out the machines, lights. I've never been sick and stepped in a hospital, so a simple scan machine freaked me out. Even today at biopsy my face washer got me through!, couldn't see a thing. Gotta do what we gotta do and its coming everywhere with me. 😊 I am really lucky to have amazing hospitals 5 mins from home, we have familiarity is a safety net for me, and not having to endure travelling. I'm finding my home, my bedroom safe just for now, until I find a little more courage. A little walk to keep busy now and then, but all I can do at the moment. My smiling moment today was being so thankful for the beautiful ladies who got me through my biopsy with less fear than yesterday. 😊 and also for my courage. Love to you all ❤️3Views0likes0CommentsRe: My journey starts today.
Thank you lovely ladies. Gosh feeling a bot down today, is it normal to be sitting and just start crying, I know it is of course, comes in waves. I know I have a journey ahead and am a tough women, so I can only take one day at a time. Scared at the moment of the results, but I have to believe no matter the result there is treatment, I know this.22Views1like0CommentsMy journey starts today.
I am so glad I found this group today and already reading everyone's stories gives me so much comfort I have somewhere to go when lonely. I find online chats good for me and maybe I might make some new friends to talk to and do things with. I live in postcode 3201 Melbourne. Nights already hard when partner is sleeping. I am 55 years young and usually deal with things alone, that's just me, but will lean a little bit more on my very small support friends. I visited my Surgeon today, its cancer she told me, have biopsy Tuesday, scans Monday. Lump too large to remove and I have very big boobies, so she said preferred chemo to shrink lump, then surgery, and radiation. I'm so scared of course, long journey ahead. Any other groups anyone can share with me would be appreciated. Anyone is welcome to reach out to me personally anytime. Thanks for listening, probably sound abit all over the place emotionally.477Views0likes14Comments
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