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Tmm19_
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Joined 6 years ago
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Ovaries removed
I was diagnosed with lobular breast cancer in June 2019. ER+ I’ve finished chemo, had surgery & about to start rads next week & then have to take tamoxifen after I’ve finished rads. I’ve read on forums that some ladies also have their ovaries removed if they have ER+ breast cancer. Is this because they have the BRCA gene? My surgeon has not mentioned anything to me about having my ovaries removed & I’m wondering if I should.Movement in arm
I had a bilateral mastectomy & axillary lymph node clearance 3 weeks ago. I’ve lost some movement in my arm & have numbness on the back of my arm. I’ve been doing the exercises the physio gave me while in hospital & was wondering how long it will take to get good movement back & if the numbness will go.604Views0likes10CommentsRe: Bilateral Mastectomy - please share your experiences and views.
Hi, I had a bilateral mastectomy & axillary lymph node clearance on the 7th Jan this yr. I was diagnosed with lobular breast cancer in June 2019. I underwent 6 months of chemo prior to surgery & will be starting radiation sometime in Feb. I stayed in hospital for 2 nights. I found the drains were more painful then anything. I had 3 in but left hospital with 2 & they were removed 9 days after surgery. I was up out of bed the same day of having my op using the loo & showering the next day. I just kept up with having pain medication but you will need help around the house & with showering ect once you get home. I’ve had no complications as yet. I’ve been sleeping in a recliner the last two weeks with a pillow under my back. My back starts to hurt if I lay down in the bed for to long as I still can’t roll over onto my side yet. Good luck with everything. 😊6Views0likes0Comments
Groups
Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.Invasive Lobular Cancer (ILC)
This group is for anyone diagnosed with invasive lobular breast cancer (ILC), which begins in the milk-producing lobules and accounts for around 10% of invasive breast cancers (US statistics). Connect with others, share experiences, and access peer support from people who understand the unique aspects of an ILC diagnosis.Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.