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TeePee
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Joined 8 years ago
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Re: Finished treatment, now what?
Thanks ladies. I’ve made an appt to see my GP and I’m going to ask for a full blood work up to see if I’m lacking in anything, but I thought it might be good to ask those in the know! I’m really keen to find an exercise program to get me going again, so I’ll look into Encore. Unfortunately I’m a single Mum with not much family support so organising time to myself is tricky, though I’m planning on going back to work in a few weeks for 2 days to start with.7Views1like0CommentsRe: Chemo deferred due to Neuropathy, mixed emotions
Re your scan Q - I had surgery, chemo then rads and then they wanted to send me on my Merry way with no scans. I had a bit of a disagreement with my oncologist about this and am now having bone and ct scan next week, though she’s not happy about it. My understanding in WA is that you no longer get scans after treatment finishes, just a yearly mammogram or on scans if you feel symptoms or a lump. Given I had no symptoms and didn’t feel a lump in the first place that wasn’t much comfort for me. I insisted on the scans since I haven’t had any since before surgery, and I want some reassurance that the surgery/chemo/rads all worked!4Views1like0CommentsRe: Chemo deferred due to Neuropathy, mixed emotions
OMG! so who is doing your surgery - will the surgeon be back from leave or are you having the surgeon in training? re chemo - I only had 10 of the planned 12 paclitaxel as the neuropathy suddenly got worse much like yours. Initially I was disappointed but came to realise it was my body’s way of saying it had had enough - and I didn’t want to push it and make things worse and permanent. Chemo finished almost 3 months ago for me and the neuropathy hasn’t gone away but has improved greatly.4Views1like0CommentsFinished treatment, now what?
Hi All I haven’t been in here for awhile, I think I just battered down the hatches to get myself through treatment. Diagnosed with Grade 3 Triple Neg in Aug 2018. Single mastectomy with lymph clearance in early Sept, followed by 4x AC and 10/12 paclitaxel weekly (finished Feb) then 25 rads which finished 3 weeks ago. As I’m Triple Negative I don’t have any hormones to take. I’m kind of lost as what to do from here. I feel like there should be some exercise programs I should do - I have awful joint pain, especially in my ankles. I also wonder if there are any vitamins/minerals supplements I should take to get me feeling good again and help with my recovery, but no one has advised anything. I feel like my treatment has been quite disjointed, like I haven’t really had anyone overseeing my care plan. Any advice or recommendations what I should do from here in terms of dos/donts, exercise, diet or vitamins etc? Any advice greatly appreciated! Thanks Tania360Views0likes11CommentsRe: Seroma post-op
Who in their right mind is grateful they got cancer? I haven't seen any posts like that thankfully and I hope I don't! The one that gets me is when people say god only does these things to people who are strong enough to handle it. Well f$&k me dead....I'm tired of being strong. My second child was stillborn at 36 weeks gestation and I feel like I used up my strength quota right there, followed by a horrific marriage breakup a few weeks later (that the kids and I are still dealing with), then this. I'm also tired of people telling me how strong I am...I mean, what bloody choice do you have? Rant over! My seroma is still there and painful and I don't know what to do about it. I was seeing a physio for that and cording but I inadvertently complained that she hurt me and now she's not really interested in seeing me. Do I find another physio in Perth to help? For such a small thing it's bloody hurty, I can't get comfortable in bed!11Views0likes0CommentsRe: This Christmas I will be.......
kmakm said: Oh @TeePee, timing! All things being equal you might still feel OKish as you'll still be in the stage where the steroids will be keeping you 'up' so to speak. It was day three when I started to come down. I'm the trifle maker in my family. What do you put in your Christmas trifle? K xox The last 2 rounds of AC I didn't take the steroids other than through the Iv, as they believed I had a reaction to them - it gave me a 5cm band of redness around my mastectomy scar. I'm hoping I feel ok and don't need to take the steroids. I also didn't have the lerazapam this time either - I'm not sure why they were giving it to me - but I couldn't function at all after chemo which is tricky when you're a single Mum to 3 kids! I make a different trifle every year, my favourite is blueberry and limoncello, though this year I'm making berry and lemon curd using almond cake so it's GF. Or that's my plan at least! our Christmas will be much smaller this year at my aunts - one of her son's and his family is going to his Dads, and her other son's partner just left him in the last few weeks (they have 3 children) so we will be a smaller group which maybe isn't a bad thing. Did I mention it's also my son's birthday on Boxing Day? No rest for me!!! i also have chemo on NY Eve...I usually don't care much about NY but this year it somehow feels significant, no way 4 months ago did I think this is how my year would pan out...I want to kick the year to the curb and wish it good riddance!4Views2likes0CommentsRe: Chemo Fec-D
@suzi_s61 I just had my 4th and final AC yesterday and start 12 weekly paclitaxel on 10 December so we can do this together! I was lucky with AC and didn't have to. Any side effects so hoping this continues with the paclitaxel. I'll also be having carboplatin every 3 weeks also. I'm im getting a picc line inserted next week as it took 4 attempts to get the cannula in yesterday, so no swimming for me over summer!!18Views0likes0Comments
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.
