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Pebbz1981
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Joined 9 years ago
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Re: Instagram account
Hey all. So i decided to just keep my instagram account instead of having 2 and i just made it public. My name is same as what it is here. I have not posted much cancer related since going public but hopefully will start soon. Just gotta find that right first post. Thanks for all the comments and support and hope you will follow me and find what i post interesting.Re: Dysphagia
Hey all. Just a quick update. I had the botox injection about 6 weeks ago. So much better. Not on solids but i am eating much more softer foods like pasta, toast, potatoes,pasta and so on so on. I have put on 2 kgs so far. Its a vey slow process. If anyone needs or is considering botox for throat muscle for dysphagia or similar i recommend. I will see ENT again in 4 mnths to see whats happening and if its worse, same or better. If it gets worse till then we do botox again if it stays same then we leave it till it starts to play up. The other problem i have now is my sinuses. Post nasal drip is an issue but i will write about that another time. Hope everyone is well.Re: Dysphagia
Hey all. Just a quick update. I had the botox injection about 6 weeks ago. So much better. Not on solids but i am eating much more softer foods like pasta, toast, potatoes,pasta and so on so on. I have put on 2 kgs so far. Its a vey slow process. If anyone needs or is considering botox for throat muscle for dysphagia or similar i recommend. I will see ENT again in 4 mnths to see whats happening and if its worse, same or better. If it gets worse till then we do botox again if it stays same then we leave it till it starts to play up. The other problem i have now is my sinuses. Post nasal drip is an issue but i will write about that another time. Hope everyone is well.17Views1like0CommentsInstagram account
Hello all. So im thinking of starting an instagram account just to document some of the ups and downs i have with metastatic , being young, dysphagia, and everything in between but for the last few weeks i am struggling to come up with a name. I thought about living with metastatic breast cancer but i think its a bit long. Any suggestions or does anyone have an account i can look at aswell? I was 27 when first diagnosed in 2009 and found it extremely hard to talk to people my age as everyone was so much older and now being diagnosed with dysphagia i am finding it hard to find people to get advice from. So i thought maybe if i can help people then it would help me along the way. Thank youDysphagia
Hello all. So over christmas and new years i was in hospital again. I have been having some swallowing issues for about 6 months now and its seem to have got worse as the weeks go bye, when i mentioned it to my oncologist she said it could be a mixture of chemo, body being so weak, radiation to breasts and just the cancer itself. So she didnt do anything about it. Just before christmas we called ambulance to the house cause i was javing trouble breathing, long story short, ended up in hospital for unrelated issue, but refused to leave till i got answers about the throat issue. Did tests turns out i have Dysphagia......... does anyone else have this? I have been on puree diet since christmas and it is HARD. My husband and i are doing our best to make recipes up then hope once its pureed they taste good. I have ent specialist next week and i hipe hes able to give me some good news. Any help or recipes maybe you ate when you had trouble swallowing would be greatly appreciated. I can give my email address if it makes it easier or msg me privately. Thanks so much in advance.414Views0likes12CommentsDysphagia
Hello all. So over christmas and new years i was in hospital again. I have been having some swallowing issues for about 6 months now and its seem to have got worse as the weeks go bye, when i mentioned it to my oncologist she said it could be a mixture of chemo, body being so weak, radiation to breasts and just the cancer itself. So she didnt do anything about it. Just before christmas we called ambulance to the house cause i was javing trouble breathing, long story short, ended up in hospital for unrelated issue, but refused to leave till i got answers about the throat issue. Did tests turns out i have Dysphagia......... does anyone else have this? I have been on puree diet since christmas and it is HARD. My husband and i are doing our best to make recipes up then hope once its pureed they taste good. I have ent specialist next week and i hipe hes able to give me some good news. Any help or recipes maybe you ate when you had trouble swallowing would be greatly appreciated. I can give my email address if it makes it easier or msg me privately. Thanks so much in advance.Re: What they do not tell you about accessing your super
@Vangirl they have changed it since i tried accessing my own money. I think maybe its time agin to try. Maybe if that has been updated some other things have been updated that might be in our favour. We can only try i guess. @arpie you make a great point and i never thought about it but its got me thinking now a d i would like to know the answer or if its actually happened to anyone out there?.17Views1like0CommentsRe: What they do not tell you about accessing your super
@Zoffiel, I tried accessing my super once i was diagnosed with metastatic, i though i can pay of the debts and spend some money on sprucing up the house and go on a holiday with my husband, you know enjoy the money before i am gone. My oncologist filled out all the forms and did everything possible to help me get the money which belongs to me.........There "doctors" said claim denied........WHY? a terminal illness has to have a lifespan f less than 1 yr...... I said to them well i am terminal and i hope i get to live longer then 1 yr , i hope i live 10 yrs and more. So even though the money belongs to me and now i keep paying fees on it so each year it gets less and less, i am not enititled to pull it out. Eventually by the time i have left my husband will be left with nothing. Ridiculous. That and private health cover....Dont even get me started on them haha.25Views1like0CommentsRe: Bit down lately
Hello all. I just want to start off by saying Thank you so so much for all the messages of support, I greatly appreciate it. Since posting the message, I have started a gratitude journal and have been writing in that every night for the past week, i also went to my parents house for a visit ( they live next door) I have been trying to nibble on food a little bit more as i have lost my appetite with everything going on, I managed to have a long overdue discussion with my sister about what i need from her and how she can help and support me and in the mean time my parents also heard the struggles i have been going through, last night some family members came over for a visit which was nice. ( i find it awkward to talk to people now as i dont have anything to talk about). My sister is getting married in october and i honestly was not looking forward to attending the wedding but now i have been on google trying to find gifts and ideas to make the getting ready at home morning special for her. My throat and ear seems alot better, not completely gone but alot better. I have been speaking to a cousin of mine which has been a fantastic help and she actually mentioned the gratitude journal and next we are going to start meditation. I have tried it before and it did not work but i am willing to give it a go again. I have read everyones messages and i really hope other people going through the same things as me were able to find some inspiration also in some of the very very kind words spoken. What we are all going through is not easy at all and 9 years on it is not any easier. We all have our good days and then we all have our bad days. I have not managed to get out into the sunshine as yet or really out of bed as i am just in a bit too much pain but i am hopeful maybe on the weekends i can sit outside for a little bit with my husband Jason. I hope one day they find a cure for this wretched sickness and this will all be behind us but untill then we must find the strength to continue and move forward and live each day we have left however long that is trying to be happy and living somewhat of a "normal" life. I wish everyone a great day and hope to talk to you all again soon, this time about something happy hopefully.
Groups
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This group is for young women affected by breast cancer. In the context of breast cancer treatment, ‘young’ usually refers to women who are pre-menopausal. Here, you can connect with others who understand the unique challenges that come with a diagnosis at a younger age. We talk about things like fertility, pregnancy, early menopause, ovarian suppression, relationships, and the emotional impact of treatment and recovery. Whether you're newly diagnosed or further along in your journey, this is a safe space to ask questions, share experiences, and support one another. You are not alone during this uncertain and overwhelming time.Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.Let's talk: vaginas, menopause & me
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