Member: Milly21 | BCNA Online Network

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Re: Molecular breast score index
Yes I wasn’t sure maybe it’s not as common to get it after all, the stuff I read may be incorrect? Not sure,
2 years ago Place General
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Molecular breast score index
Just wanted to know have other people had this test done when they reached 5 years on hormone therapy to see if a further 5 years is beneficial? I have never bee Offered one by my oncologist,seems others have,I had never heard of it till recently, people say it’s even covered y Medicare, would be nice to know either way,even if 5 more years is beneficial it would make me more excited to take it for that time,I’ve already taken it for 6 years,I’m on tamoxifen.
2 years ago Place General
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Re: Tamoxifen and weight gain
Just out of curiosity how long have you been on tamoxifen, so you lost a couple at start and then just never put much on?I only ask as mine has gradually gone up over time,nice to hear that you didn’t have weight gain problems,I might try acupuncture for some symptoms too,thanks
2 years ago Place General
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Tamoxifen and weight gain
Has anyone taking tamoxifen managed to not put on weight? I’m having trouble and only read stories about people who struggle with it too? I presume some people don’t get that side effect maybe,I worry the extra weight I’m carrying increases risk of reoccurrence any, has anyone tried 10 mg instead of 20 mg and has it made any difference?
2 years ago Place General
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Re: Second time around
Prismay1. Did you just go back and request a double mastectomy and reconstruction? Years down the track I often wonder if i should have done that to save years of worrying,I definitely will if I have any more trouble,I’ve just come off tamoxifen and nervous. I presume you have to pay for it yourself? Did the doctors try to talk you out of it,as I asked for that when diagnosed and was talked out of it,they said it was overkill.
2 years ago Place General
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Coping with perimenopause and menopause .
I had idc 6 years ago ,I took tamoxifen for 6 years,I’m not taking now,had usual symptoms taking tamoxifen,but now I’m off it I’m in nature perimenopause I’d say as I’m 48 and have all the symptoms,obviously I can’t take hrt or I presume a lot of natural estrogen supplements, thinking of going to doctors as have terrible insomnia as well,just wondering if anyone has had anything that has helped? I do the usual recommended things,I exercise enough,eat well,feeling very down,which no sleep isn’t helping,currently trying melatonin,not sure it’s made much difference
2 years ago Place General
menopause
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Re: Tamoxifen
That interesting,I have taken tamoxifen for 5.5 years in total now,with a few breaks,what is the system that works out how beneficial tamoxifen is in a percentage,I don’t think a doctor has done that for me?
2 years ago Place Hormone blocking therapy
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Lower dose tamoxifen
I have taken tamoxifen 20mg for 6 years,I have now had a year off tamoxifen as I stopped taking due to side effects, my oncologist would like me to persist and start taking it again as I’m in my 40s and he considers this young. my surgeon said I could just take less,he said there has been research that says it may be as effective,or I suppose it’s better than not taking it, has anyone doctors been happy for them to take less tamoxifen than 20 mg? And if you take less have you noticed an improvement in the side effects? If so do yo take 5 mg or 10 mg a day?
2 years ago Place Hormone blocking therapy
aromatase-inhibitors
tamoxifen
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Re: Are CA15.3 tests standard after 7years
Yes I was wondering if they are elevated it means you have stage 4 always, but maybe they can be elevated for other reasons too
2 years ago Place General
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Re: Are CA15.3 tests standard after 7years
He never said there was a problem
2 years ago Place General
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Young women & breast cancer
This group is for young women affected by breast cancer. In the context of breast cancer treatment, ‘young’ usually refers to women who are pre-menopausal. Here, you can connect with others who understand the unique challenges that come with a diagnosis at a younger age. We talk about things like fertility, pregnancy, early menopause, ovarian suppression, relationships, and the emotional impact of treatment and recovery. Whether you're newly diagnosed or further along in your journey, this is a safe space to ask questions, share experiences, and support one another. You are not alone during this uncertain and overwhelming time.
Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.

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