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Louweezer
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Joined 6 years ago
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Re: Creative Corner!
Hello! I am new to the Creative Corner - howdy all! I have de novo metastatic breast cancer, and one of my ways of coping was to start stitching rude words!!! I made this pair specially for a friend going through chemo under lockdown in London earlier this year. A sentiment I am sure a lot of us would agree with! I post all my wicked words on my Instagram @madebyhands.me Enjoy!Re: Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi @christa still going strong - last scans all good. De novo with tumour at T11 which was pressing on my spinal nerve so it was removed and I had radiation - all ok. Still have pain which is managed with some good drugs... I feel the same as a lot of the ladies here - I am past the 2 year mark on the Ribociclib 600mg/letrozole/denusomab combination and wondering how long a can keep the nasties at bay for. Great to hear @Deebs is 33 months in and stable :)Re: Kisquali
darling @Glynnis I hear you - our contract got cancelled in the first week of this pandemic so all non essential spending has gone off our list. I have the last polish slowly growing off so I will see what state my natural nails are in a few weeks! I hope you are staying safe at home like all of us in our situation - I have been housebound for two weeks tomorrow after a final family get together in Thredbo thanks to the OTIS Foundation who I found out about thanks to this BCNA website. Then two days later lost my job. Crazy times ladies! I hope we can all stay positive and thank god for these groups so we are not alone. Big love to you all out there xxxRe: Can’t sleep all night, after chemo.
hi @Superzap so true otherwise you end up in a spiral of oh god I am not sleeping -panic now I am stressed about not sleeping - but I need to sleep to get well - oh god maybe that’s why I got sick and repeat 10,000 times!!! Oh yes, we’ve all been there haven’t we?!!! Ok - back to Grey’s Anatomy...... xxxx
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
