Time??

Thanks will do. I have an appointment Tuesday so will ask then.

@"k@th3r1n3"   

Yep - you should get a copy of every scan, report - everything!  Your GP should also be on every referral so that they get them as well.

I have a big box that I put EVERYTHING in that I get relating to my BC ..... that way it is all in the one spot.   Reports, scans, bills - pretty well everything.  Then I know exactly where everything is too.   

Have you got someone to go with you to appointments, etc as a '2nd set of ears'?  A family member or a trusted friend?  They often pick up on things that you may miss - and are physical support for you as well (and possibly a driver!) :) 

All the best for Tues xx

It takes a while to get on top of every detail and I don't think I'm there yet and it's been over 6 months.  You should get a copy of every report, even if you don't want to look at it at the moment.  @primek has a couple of good sites up her sleeve to help you decipher the information.  My GP sat down with me and went through my path report to make sure that we both knew what I was dealing with.  I bought a zip-up lever arch file from Officeworks (the first one was a 2 ring binder but it was soon too small) and some plastic sleeves and dividers.  All of my letters, reports, etc., go straight into that folder and I take it to most appointments so I have everything on hand and I'm never searching for that particular piece of paper.  I also ask for results to go to each doctor including my GP - GPs often get left off the list and when you have to see them for something related, they have no idea what your current treatment plan is (the reasoning behind it is that apparently, GPs can get freaked out by some of the blood levels in chemo patients but if they've any sense, they will realise).

Having your report is a good idea. Even if you look at it later. It does help to understand why certain treatments are advised.

And yes time frames sound right for chemo. I had a mastectomy with reconstruction  and so my chemo was 6 weeks to allow healing time. I  also had a grade 3 cancer.

My oncologist said to that potentially  my surgery was curative. I too had no nodes. The chemo is to search and destroy any potentially floating cells. Knowing you are node negative is fantastic.

It does feel like forever to wait but it will come soon enough. Use the  time to organise hats / head scarves etc. Cook up some easy meals for chemo days etc. I also went to the dentist and had a really good clean and check and kept up strict mouth care throughout. I never had any mouth issues on chemo and feel this helped. Kath x

If you have had the surgery then technically the cancer is already gone. Chemo or radiation is the mopping up in case cancer spoors got in to the blood stream and are looking to set up shop somewhere else. It takes a while to form in to anything worrying so yes you do have several weeks where you may wait for the chemo process to begin. No biggie.<3

Hey @arpie so far my youngest son is coming with me as most of the appointments are made on his day off so he gets what I miss.

@Sister thanks for your words of wisdom. I will ask for my reports and try and use the websites that @primek recommends. 

@onemargie I'm not sure what is happening re my chemo. Guess I have to be patient till Monday x

@Brenda5 and @primek thanks girls I'm feeling calmer about the chemo.. I'm already organised with beanies, berets and got my eyebrows tatooed :) next is to buy some sexy wigs. 

You are both awake at an indecent time. Hope it's because you're partying and not because you can't sleep ;)

Love Kat

Hey @arpie so far my youngest son is coming with me as most of the appointments are made on his day off so he gets what I miss.

@Sister thanks for your words of wisdom. I will ask for my reports and try and use the websites that @primek recommends. 

@onemargie I'm not sure what is happening re my chemo. Guess I have to be patient till Monday x

All the best for your next round of meetings and phase of treatment ....@k@th3r1n3 ... terrific that your son is accompanying you.  

Try not to get too concerned ... keep doing what you love doing xxx

Unfortunately poor sleep still goes on for some time past diagnosis and treatment at times.  <3