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ShellO16's avatar
ShellO16
Member
11 years ago

Tamoxifen

I have just received my script for Tamoxifen and filled it but am after some advice before I commence. 

I had a lumpectomy 2 and a half months ago and last week completed 5 weeks of radiation.

I am still getting a lot of nerve pain and feeling quite fatigued from the radiation and have been advised that it could last for a few weeks yet.

Should I wait until I'm feeling a bit less tired before commencing my medication and can you start on Tamoxifen gradually? I'm worried about the side effects and really just can't deal with them at the moment.

Thanks Shell :)

  • Jandy...you start 1/2 tablet yourself, very good idea. I'll try now.  TKS

  • hi there-- yes i just started with the one tablet --having the break was good but i was quite commited to it as oncologist said it was --along with lumpedectomy--were key to treating my bc.  Other helpful things may include is ..i didnt read about the side effect possibilities in case that would encourage them...i  took it in the am as i find it easier to remember and didnt want any sleep influences...i did get some initial side effects especially after drinking coffee and having spicy foods but im not giving those up and this is no longer a problem.  I just accepted hot flushes and they seem to go.  i take it after breakfast....after  awhile of no hot flushes ..they returned ..and that was fine--then they went again--so for me, not making a fuss seems to be helpful..when stressed they seem to fleetingly come back

    when i was first diagnosed with bc i was hit for a six and in a matter of fact way--thought 'im going to use medication to support myself' so i researched and went to my gp for effexor which helped with anxiety and also seems to be useful for menopausal symptoms so that was great; i no longer need this for anxiety and in the next few months will come off it and see how it affects any side effects of tamoxfin; but im not in any hurry and it is about supporting myself through this process.  best wishes

  • I finished my radiation in November 2012 and didn't start my tamoxifen until mid Jan. I wanted to get through Xmas and our family holiday before dealing with any side effects. I started on a half tablet for the first two weeks just to ease into it.  My oncologist was fine with me delaying a few weeks. 

    As it turned out I haven't found that I've had any major side effects from tamoxifen. Sometimes I wake really early and I do have to work hard to avoid weight gain - lots of exercise and watching what I eat  - but it's hard to know whether these things are related to the drug or middle age or maybe it's just me. I do get mild hot flushes but that is about all.

  • I finished my radiation in November 2012 and didn't start my tamoxifen until mid Jan. I wanted to get through Xmas and our family holiday before dealing with any side effects. I started on a half tablet for the first two weeks just to ease into it.  My oncologist was fine with me delaying a few weeks. 

    As it turned out I haven't found that I've had any major side effects from tamoxifen. Sometimes I wake really early and I do have to work hard to avoid weight gain - lots of exercise and watching what I eat  - but it's hard to know whether these things are related to the drug or middle age or maybe it's just me. I do get mild hot flushes but that is about all.

  • Hi Shell, I finished my 6 weeks 30 times Radio 3/Sep, and just got the prescription from my Onco last Thursday.  I am still holding it and not yet get the medication..

    I would say you may leave it for 1 week or 2 and then to start.

    (I am going to get this today...Mmmm maybe tomorrow)

    Take care

    Rosanna

  • Thanks for the advice. It's good to hear from someone who has already been there. I also didn't require chemo and am grateful for that. Did you start on 20mg of the Tamoxifen or did you go onto it gradually? Also, what time of day do you take it? I've heard that taking it at night seems to work best for most with regards to night sweats. Regards, Shell
  • Radiation can knock you around and that fatigue i still remember a bit like how you feel after skiing all day --it peaked for me too around the last week and then i was also advised that it would still be around for the next 2 weeks.  one thing that was helpful is the machine broke down half way through so i got a break and towards the end of that could feel my energy coming back so that was good to know.   my oncologist suggested i start tamoxafin a month after radiation (i didnt have chemo) as then i had the effects of radiation were out of my system and we could see what was what and also starting from a more recovered position.  this was good for me; as well as not getting too concerned about some initial side effects as they disapated.             best wishes