Forum Discussion
Profilatic mascetomy
Just wondering how many ladies have opted to have a double mastectomy with cancer only in one breast to try and eliminate the possibility of it coming back. Also was your choice based on a genetic factor or purely prevention and peace of mind?? Thanks kel xxxxxx
80 Replies
Hi Sam,
I haven't heard of this group but would love to join. Can you invite me? Heather York is my name. I don't know how you find me? Let me know if you need anymore details or if I can find you?
By the way, you are born at a great time. My birthday is Sept 11th but I'll be turning 39 this year. My daughter's birthday is the 12th.
Heather
- Hi all again Heather and kellie just wondering if you girls are on Facebook in the 'young women with breast cancer group'? It's a secret group which means no one can see it unless you're a member. It's cool for this kind of discussion and some women have put up photos of their reconstructions. If you're interested let me know as I think you need someone to invite you. I saw my ps and I'm booked in for sept 11...the day before I turn 38!! What a way to spend my birthday! Love to you all Xxx
Hi Chris!
How are you doing? I sent you a couple of PMs but I must have done something wrong because I don't think they actually got sent. Hopeless at technology.
To update, have no nipples yet, my last visit to plastics outpatients had no outcome as I the surgeons had all been called into surgery and I ended up not staying. Next one is July and I will see the Prof. He might tell me when I can finish with my reconstruction. My implants ended up looking smaller than the expanders, at 420 ml (expanders were 425), at first I felt they were too small but now I am fine with them, I think they;re pretty good they have softened up and seem to still be changing, I don't think they have completely settled yet. Love Sarah. Funny thing, I measure up to be a 10DD. I didn't believe it so went to 2 other stores, they all said the same. Have 2 bras, the rest of the time wear cotton crop tops
Hi Kel, I think I only had my expanders in for so long because I was in the public system.It was fine though my rib cage is a bit pushed -out in front (it will settle they say). I am happy with the outcome, they did an excellent job. Love Sarah
- Hi, I had my expanders for just 3.5 months. This was delayed for a few weeks due to repeat surgery for a massive haematoma that devloped at 3 weeks. This put my expansions back by 3 weeks, hence the delay. I was a private patient, and chose my times, with guidance from my Dr. He wanted me to wait for 6 to 8 weeks from the final expansion, to enable the breast tissue to get use to its new shape. I have had no issues since exchange, and it is alot more comfortable once the expanders are out. Love Chris xx
- Hi, I had my expanders for just 3.5 months. This was delayed for a few weeks due to repeat surgery for a massive haematoma that devloped at 3 weeks. This put my expansions back by 3 weeks, hence the delay. I was a private patient, and chose my times, with guidance from my Dr. He wanted me to wait for 6 to 8 weeks from the final expansion, to enable the breast tissue to get use to its new shape. I have had no issues since exchange, and it is alot more comfortable once the expanders are out. Love Chris xx
- Hi Sarah ;) do u have to have expanders in for over a year ?? :/
Hi Kel
I haven't been on the site for a while and have just seen your post. My experience after having had precursors to cancer, first in one breast then the other (and a strong family history) was that having both boobs removed and expanders placed and finally (a year and a half lafter the expanders) implants was really a HUGE relief. Now I see the surgeon once a year for a quick exam, no more mammograms. I waited a year for the initial surgery and as the time drew close to my BMX I tried to keep really busy and not to think about it. I knew I had made the right decision for me. So please try not to worry too much, I think you're doing the best thing by doing all you can to make sure you are free of disease. Will be thinking of you on July 23. Best wishes, Sarah
- I'm terrified :/ I wish that it wasn't such a long wait , 16 weeks all up. I don't care about losing my other one it will head south soon anyway.if when I woke that was it I think it wouldn't feel so big. But it's really the start of it all. My breast is to dense to see through it so the docs would have to do a MRI every yr instead of a mammogram.im not sure how real they will look , I've read about having fat injections at the end to make them appear more like a real breast.i did read a great quote a few mths ago from a lady that went through the same thing. She had a tee shirt made that said " Yes they r fake my real ones tried to kill me" I thought that was funny. Keep in touch girls xxxxxxx can't really end with " save the Ta Ta's " ;)
- Hi Ladies, I too have had a prophylactic mastectomy and reconstruction at the same time. Because a mammogram failed to pick up my BC, I felt it would be hard to fully trust a mammogram in the future, so after one mastectomy, and chemo, I went back 9 months later to have the second one off and have tissue expanders added. I never had genetic testing, as there is no breast cancer in our family, but still didn't want the risk of getting BC twice. You only have to read these blogs to know that many, many women get BC more than once. I am very happy with my decision, and the results of my reconstruction. Love Chris xx
