Neck dissection

Golly Gosh, Jo2880IBC​  You've had a tough time of it & this diagnosis would knock anyone for a six xx    I am so glad that you have a very proactive Oncologist & she was able to talk with your team about possible surgery .... it's always mystified me when they basically just say 'stage 4 - no surgery' when the tumours remain 'in situ' .... so well done to your Onc. xx. Keep asking those questions!  

I can't help with your question about members have had similar surgery - but we have had a few members with inflammatory BC .... if you go into 'edit' and add 'Inflammatory Breast Cancer' to the title, it may get a response from someone currently dealing with it.   You can also put 'Inflammatory Breast Cancer' into the search area (magnifying glass) and some posts should show up. xx 

Whilst there isn't a cure for stage 4 .... yet ..... there are new treatments being used all the time - including immunotherapy.  Has that treatment been raised/explained yet? 

If you find it all a bit stressful, definitely give the helpline a call for a confidential chat on 1800 500 258 (Mon-Fri, 9-5)  A problem shared is a problem halved xx

BCNA also has links to Charlotte Tottman's Podcasts on Breast Cancer .... she is a specialist BC psychologist who was diagnosed herself over 5 years ago, having double mastectomy and choosing to remain flat.   She found that her own experience form diagnosis to completing treatment wasn't really what she'd been 'advising women' over the years .... so her podcasts are from her own lived experience of the whole shebang.   She talks very calmly and informatively - and is very easy to listen to - and Raelene Boyle's story is amazing too  xx

Listening to Raelene Boyle's podcast is well worth it, as well as Charlotte Tottman's! | BCNA Online Network

Take care, and all the best for your upcoming surgery & treatments

Make sure you have a trusted friend/relative with you at all appointments and also consider recording them on your phone as well - as it is almost impossible to remember everything that is said at the time.  This way, you can go over it again, in the quiet of home xx